Title: Lichen Planus
Post by: juju on April 04, 2003, 12:25:40 AM
| has anybody experienced lichen planus like myself...where did it come from? |
Title: Re:Lichen Planus
Post by: juju on April 04, 2003, 12:27:45 AM
| my husband left me because of this ugly stuff all over my arms and legs...i feel very disfigured...i'm wearing long sleeved clothes and pants to cover myself...there goes my sex life..:( |
Title: Re:Lichen Planus
Post by: peterb on April 04, 2003, 11:27:04 AM
Hi JUJU
A big welcome to the Forum, so sorry to hear about your husband leaving you. There are plenty of happily married people here, with worse complaints, whose husbands/wives do mind their partners condition.
Here is a link to your condition and it will get better, apparently time is a good healer of this. http://www.aad.org/pamphlets/lichen.html
Have you seen a Doctor or Derm about this, as this should be your first point of call. I hope you can make your husband understand and get to know about your condition. I wish you all the best with your husband. Please feel free to visit here as often as you can, maybe some other members can offer some useful advice. :) :)
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Title: Re:Lichen Planus
Post by: Nick on April 04, 2003, 12:15:45 PM
Hi there juju :hi:
Welcome to SkinCell :)
For you to be left on your own like that must have been a terrible blow. I'm so sorry to hear that happened. Unfortunately some people have a hang up about skin problems and can't see the true person underneath.
Well try not to get too down, you're in good company here- we're a red, flakey, itchy, bumpy or scabby and fortunately many of us have very supportive partners.
As Peter said, Lichen Planus does heal with time unlike many of us here who are chronic and will suffer for the rest of our days. It doesn't make it any easier in the here and now thouhg knowing that it will clear. We'd all lovea quick fix for our skin problems.
Your Lichen Planeus may have started following a viral infection but it can also be associated with immune system disfunction, either temporary or more long term. Most importantly though is not to worry yourself over it :hug: It will pass :) |
Title: Re:Lichen Planus
Post by: Val on April 04, 2003, 02:23:57 PM
:hi: Juju,
Welcome to our forum ;D
Sorry to hear that your skin is giving you some grief just now. I'm pleased though that it is something that will go in time.
Also sorry to hear that it has effected your personal life. Try not to let it stress you out too much (easier said than done I know), as stress often make's these things worse. There are people out there that will see the person beneath the skin, hopefully your husband will join that band once he really thinks about it. In the mean time, I hope you do have some support from other family and friends. You can always count on support here, it's what we do for each other.
Take care, :hug: |
Title: Re:Lichen Planus
Post by: deirdre on May 30, 2003, 07:55:16 PM
Hello,
I was diagnosed as having LP on April 1. I don't see any posts on LP going back that far, so perhaps (I am new to his group) that is why I didn't find this site in an earlier search.
What is PUVA treatment?
Does LP really go away (I have seen quite abit of information that discusses LP as chronic, or as going away only after a fairly long time and then recurring)?
The treatment I've seen discussed involves Rx steroid creams, and oral antihistamines.
A few people I've encountered in an LP users' group have tried capsaicin cream (the milder version) and are elated by this. I am reluctant to try this, as the LP lesions look suspiciously like broken or disturbed skin to me.
Do any you have any views on stress-coping (or problems with coping with stress) as a factor in triggering LP?
How about LP as a form of allergic reaction?
Do any of you also have OLP?
Thanks. |
Title: Re:Lichen Planus
Post by: peterb on May 30, 2003, 08:09:21 PM
:hi: Deirdre
A very big welcome to the Forum, I gave a link above on this, you may like to try these two as well.
http://www.fujisawa.com/medinfo/faq/planus.htm
http://www.dermcenter.com/treatments/puva.html
LP can apparently can be eased as well through less stress. I think this is the same for most skin conditions. Just be aware of the long term use of Steroids?
Well glad to have you on board, a few other members may have advice for you to.
peterb :) |
Title: Re:Lichen Planus
Post by: deirdre on May 30, 2003, 08:23:10 PM
Thanks, Peter.
I buy into th estress factor, buut some of the people I've encountered on the web are almost hostile on that issue. I'll paraphrase one email I received. Everything here is reworded, except the phrase "stress free": "What me have stress! It must be nice for you neurotic wimps to have such an easy path to recovery, but for those of us who live virtuous and stress-free existences, there is no easy way out."
Which is why I posed the stress question somewhat delicately.
I understand that here are risks with lonmg term steroid use, which is why I am looking for alternatives. The steroid cream does help, though. |
Title: Re:Lichen Planus
Post by: peterb on May 30, 2003, 08:29:09 PM
| I suffer from Psoriasis and a couple of months ago, my wife passed away. The stress of visiting her in hospital for 6 months prior to this, as caused me to have flare upon flare etc. So we all here know that stress is a big factor. You wont find negative answers here, we are all part of a big family now. |
Title: Re:Lichen Planus
Post by: deirdre on May 30, 2003, 09:09:54 PM
I am so sorry to learn that you lost your wife. My stress factors are far less extreme. In my case, I think maybe I need to relearn ways to cope with stress, and am working on that.
I periodically get something that my dermatologist tells me is Psoriasis of the scalp. She prescribes a special shampoo and lotion (which she describes as being a pain to use, but which didn't strike me as a hassle) and it seems to work wonders. It seesm to strike in winter. I had originally thought my LP may be related to that. |
Title: Re:Lichen Planus
Post by: fishs on May 30, 2003, 09:33:52 PM
:hi:
Welcome JuJu and Deirdre
Hope you enjoy your stay with the forum..
I am sure you will find everyone very helpful and please feel free to have a look around and visit the cyber bar .
Everyone will lend support so feel at home here
Fish |
Title: Re:Lichen Planus
Post by: electric_ian on May 30, 2003, 11:23:34 PM
Hi Deirdre and welcome to the forum :hi:
Ian :hi: |
Title: Re:Lichen Planus
Post by: Val on May 31, 2003, 05:01:27 AM
:hi: deirdre,
Welcome to our forum ;D pleased to have you with us.
Promise you won't get a hostile or negative feedback from here. ;) As Peter has already told you we are one big cyber family here ;D and we support each other all the way.
I've also had a look around about LP, and nearly all the sites I've looked at say that most sufferes do find it does go away. :) Fingers crossed that you will be one of them. A few more sites for you to look at:
http://www.dermnetnz.org/index.html
http://familydoctor.org/handouts/600.html
http://www.aocd.org/skin/dermatologic_diseases/lichen_planus.html
All of them also mention the stress factor, and from what we ourselves know of all these skin conditions, stress can and does make it worse. I know you said you're working on that, well keep your mind open, maybe some of those soothing stress tapes/DC's or a nice long bath with scented candles around you, or even some of the oils. Try them all, find which works for you and de-stress. ;)
Keep on coming back here, look all around the boards including the funny, social and bar, a lot of us find that just reading the post here do help to keep the stress down. And if you feel like having a good rant about it all, then go into the rant room and go ahead. It's near the bottom of the main boards. :)
Looking forward to getting to know you better, so keep on posting ;)
Take care
Val :hug:
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Title: Re:Lichen Planus
Post by: deirdre on June 03, 2003, 09:58:05 PM
Hi Val and fishs,
Thanks for your warm welcome.
One of teh frustrating theings about LP is just how little is known about it. There is so much contradictory information out there... even on the three excellent sites Val bookmarked for me (one describes it as "rare", another as "common" - where does one go?). I suspect that people with LP may find it particularly hard to deal with this frustrating ambiguity, as stress -- particularly, how one deals with stress - tends to pop up as a suspected factor on most LP-related sites.
I must say that accepting that the stress factor may be valid, and taking proactive steps to learn to learn better coping techniques (not that I ever let anyone notice that I was experiencing stress) is improving the overall quality of my life, even if it has nothing at all to do with the root cause of Lichen planus. Frankly, itching and little bumps aside, I think I may be enjoying my new (or should that be renewed?) outlook on life.
Still, I may peek in on the rant room. It's comforting to know it's there, in case I ever need it.
BTW, I live in Toronto, aka SARSborough. It's been rather comical going for all sorts of medical appointments around the, including some in hospitals... filling in questionaires about have I been anywhere where SARS is spreading ("Yes, Toronto); have I been to any hospitals in the last 10 days (yes, and even during the fiesta time when all SARS precautions were dropped because it was costing so much and everyone was so fed up...); etc. Sadly, this is a pretty tough time for medical professionals in my community, and it isn't really a time that one wants to go back to the oral pathologist just because heer is a little bit of mouth tenderness.
I find that my new, Alfred E. Newman ("What me worry?") approach to life is really rather helpful with my local health crisis, as well as my personal outlook. Believe it or not, in des[peartion I decided to have a try at the Deep Cleansing Breaths I'd learned in prenatal classes, imagining that if they helped with labour pains they might help with the kind of anxiety you get when your gas bill resembles something out of a Monty Python sketch. It seems they do.
Why didn't I get this pesky rash years ago?
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Title: Re:Lichen Planus
Post by: Val on June 03, 2003, 10:53:18 PM
Hi Val and fishs,
Thanks for your warm welcome.
One of teh frustrating theings about LP is just how little is known about it. There is so much contradictory information out there... even on the three excellent sites Val bookmarked for me (one describes it as "rare", another as "common" - where does one go?). I suspect that people with LP may find it particularly hard to deal with this frustrating ambiguity, as stress -- particularly, how one deals with stress - tends to pop up as a suspected factor on most LP-related sites. |
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That seems to happen a lot Deirdre ??? I have pustular psoriasis on my hand's and feet, one lot tell me it's fairly rare the next lot say it's fairly common. Stress play's havoc with all of these skin condition's "they" know it but seem to discount it. ???
| I must say that accepting that the stress factor may be valid, and taking proactive steps to learn to learn better coping techniques (not that I ever let anyone notice that I was experiencing stress) is improving the overall quality of my life, even if it has nothing at all to do with the root cause of Lichen planus. Frankly, itching and little bumps aside, I think I may be enjoying my new (or should that be renewed?) outlook on life. |
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Not letting anyone know you're stressed ??? I would have thought that caused you more stress. :-\
| Still, I may peek in on the rant room. It's comforting to know it's there, in case I ever need it. |
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Why just the rant room ??? We were hoping you would start popping in here regularly just for a chat. :(
| BTW, I live in Toronto, aka SARSborough. It's been rather comical going for all sorts of medical appointments around the, including some in hospitals... filling in questionaires about have I been anywhere where SARS is spreading ("Yes, Toronto); have I been to any hospitals in the last 10 days (yes, and even during the fiesta time when all SARS precautions were dropped because it was costing so much and everyone was so fed up...); etc. Sadly, this is a pretty tough time for medical professionals in my community, and it isn't really a time that one wants to go back to the oral pathologist just because heer is a little bit of mouth tenderness. |
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:roll: :roll: I didn't think anyone could make me laugh over SARS, you certainly succeeded :roll: :roll:
I love your humour
I find that my new, Alfred E. Newman ("What me worry?") approach to life is really rather helpful with my local health crisis, as well as my personal outlook. Believe it or not, in des[peartion I decided to have a try at the Deep Cleansing Breaths I'd learned in prenatal classes, imagining that if they helped with labour pains they might help with the kind of anxiety you get when your gas bill resembles something out of a Monty Python sketch. It seems they do.
Why didn't I get this pesky rash years ago?
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:laugh: :laugh: Oh you must keep coming back Deirdre, we need these laughs. :laugh: :laugh:
Seriously, I do hope you do come back often. I also hope that you get some answer's soon and the pesky LP takes a hike.
:hug: |
Title: Re:Lichen Planus
Post by: deirdre on June 09, 2003, 06:01:55 PM
Hi,
I've started a string on Lichen planus under "Helpful Remedies," in case anyone wants to look there. |
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