Hi, i just found this forum and saw that there are many people out there that have the same medical condition as i do. First of all, i am not a doctor and do not pretend to be one and the following is my personal experience with PLME (polymorphous light eruption). First realization you have to accept: there is no cure for this condition. You will have a tough time even getting a proper diagnosis. i live in Boston area where we have the best MD's in the world and it is still mis-diagnosed. Now that you have accepted that there is no cure, let's talk about 2 things we can do: Prevention and management. By the way, I've been dealing with PLME for 30 yrs now and it sucks.
Prevention: staying out of the sun is the best option but if you are not a vampire this is not an option. Wear UV protectant clothing, Under Armour and other manufacturers make UV clothes now.Stay out of sun during peak times (10-2). Limit your sun exposure, and make sure you have a UVA blocking sunscreen. I have recently found a product called Athelios w/Mexsorex and it works fantastic at blocking UVA rays, but it is expensive.
Management: If you have an outbreak of papules on your skin, you can ask for prednisone, this helps you once you get an outbreak. Do not break the papules by itching them, I find running my skin under scalding water helps to reduce the itch, just my experience with this. Predisone messes with your metabolism and you gain a ton of weight with it. I've recently been prescribed (clobetasol propionate .05%) and this cream helps to get rid of the outbreak as well. If you plan to go away to Florida or somewhere warm and sunny you better prepare or you will ruin your vacation. i usually start aking predisone to "prepare" my bosy for the Sun that I am about to receive, it worked well for me a few years ago when I went to florida, along with putting clobetasol cream as well.
I hope this helps some of you out there, i have much more experiences to share with you in my 30 yrs dealing with this. If you want to me to post more "home remedies" i use just respond to this post.
If you have PLME, you have my condolences, as it is a tough illness to deal with. It is not life threatening but it takes an emotional toll on you as you cannot hide a skin ailment