I've been dealing with PPP since 2001. I've seen nine dermatologists through the years and am meeting with another new doctor on the 12th of October. I am fed up with this disease, I am discouraged and mostly bummed out. I am lucky in some regards; I work with my husband at our own business; so when my feet are in the extreme, and I can barely walk - I can 'call in sick' and not get in trouble with the boss.
I am currently taking the maximum dose of MTX and using Halbetsol ointment. Neither are working. I just stopped taking cyclosporine. I also quit Humira, due to bad side effects, but mostly I couldn't wrap my mind around the whole shot thing. I cried before, during and after every injection.
I have to keep my hands moisturized throughout the day; or they catch on anything....and it's worse than a hangnail -- when skin rips from the palm of your hand. My feet are so raw, red and tender - so I give them a break, sit as much as possible, walk on the outer sides of my shoes (which effects my hip, but oh well)
Okay - I should quit complaining and whining.
I am normally a very strong person.
This PPP hasn't beat me yet -- I just have very down days. I attended the National Psoriasis Convention in San Diego a few years ago, I learned alot -- but not enough about PPP is available.
Mostly, I am looking for some friends to share these feelings with. I like reading about 'what works or doesn't' for people. I have a great support circle -- but as much as they love me, they cannot know what it's like.
Thanks for Skincell! I'm really happy I found you!