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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by TomA on Yesterday at 03:44:14 PM »
Waybad1, around ten years ago my Derm put me on Soriatane, a sister compound. I had a beautiful month, but when depression and suicidal thoughts set in, I'm not a depressed person at all, I chose to go off it. That was just the start. About six months later I got quite ill and was diagnosed with ulcerative colitis and put on a treatment plan. The medication made things worse and I had to go off it, twice. Left untreated the condition cleared up in time, and I have been clear through a couple of colonoscopies. All this sickness for only one month's treatment. On Googling Accutane back then I discovered there were class-action lawsuits surrounding this issue, and thought it had been pulled from the market. Long story short, please be very cautious taking this medication. What I went through was not anywhere near the little relief I received.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Waybad1 on Tuesday June 18, 2019, 03:20:19 AM »
If anyone still checks in on this board I am going to start a round of Accutane starting tomorrow 6/18/2019.
I will start out with 40 mg a day and adjust from there if needed. To be honest after 16 months of Grovers
I could care less what the side effects are. I will repost in a couple of weeks my progress
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by golfboy307 on Tuesday June 04, 2019, 07:00:58 PM »
Thanks for the info on Kenalog.  I had never heard of that, good to know it is an option.  I am on about year five of this, but mine is so much better after I removed my mercury fillings and cut out seafood.  Hopefully mine will continue to dwindle down further.  I use the Triamcinolone cream topically only right now.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Waybad1 on Wednesday May 29, 2019, 07:03:41 PM »
A Kenalog injection is actually triamcinolone acetonide, the same as the cream. 40 is the mg of the injection. They base the mg on your weight. For some my dermatologist
said the relief can last up to 3 months depending on the severity  of you Grover's. The 2 times i took it it lasted 10 days each time. He said my Grover's based on his
experience will last between 3 to 5 years. Either way I know I can have 40 days of relief every year. Kenalog is very popular for severe allergies. I just know it gave me total
relief for 10 days. More then that it gave me hope for what it will be like when it (hopefully) goes away. I took blood tests before and after both injections and my liver function was
not affected at all. To me I can now plan of activities without fear of itching based around when I get my next injection. It's also nice to see the rash go away about 90% and not
leave any scars
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by TomA on Tuesday May 28, 2019, 09:57:10 PM »
I also tried the shampoo thing when posted and had the same result. I think he was spoofing us. Fortunately I don't have the same problem with the sun. I don't spend a lot of time in the sun as a skin cancer survivor and I load up on sunscreen, but I do bike a lot here in South East Virginia
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by golfboy307 on Tuesday May 28, 2019, 08:31:35 PM »
Regarding recent posts:

Selsun Blue:  there are some previous pages on this thread that mention some success with Selsun Blue.  That would suggest that the poster likely had another similar condition caused by a fungus or outside pathogen.  Worth trying.  I did try it and it made my spots worse.

Sun exposure:  two schools of thought here.  One common trait most Grover's sufferers have is fair skin and a good amount of sun damage.  So, you would think it wouldn't help.  However, many people such has yourself report that it can clear up existing spots.  Sun exposure and pool/beach water tend to make mine worse.

From the other poster:  what is a Kenalog injection?
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by fresedo on Monday May 27, 2019, 10:21:17 PM »
I have been diagnosed by a biopsy about a year and a half ago. The Grover bumps have been a permanent presence on my chest and belly since.
Recently, I started exposing myself to midday sun (Vit D) and what happened? After only a few sessions half of the bumps disappeared leaving white spots and the  other half is desiccated and probably on the way to disappearing.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Maestrofred on Monday May 27, 2019, 03:33:52 PM »
Has anyone ever heard of treating Groverís disease with Selsun Blue medicated shampoo?  Someone in the medical field suggested it to me.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Waybad1 on Saturday May 18, 2019, 09:48:51 PM »
I don't know how bad it is for you, but I received a Kenalog 40 injection on February 22nd for complete relief including
the rash disappearing 90% that lasted for 10+ days. It made me feel so alive and gave me at least a feeling of what was to
come as my very experienced doctor said would have Grover's for 3-5 years. I received that same injection May 9th and it has
so far lasted 10 days. I did it do to an upcoming move that i definitely wound not have been able to do due to the itching. I took
a comprehensive metabolic panel before the first injection and after it ($28.00 walk in service is all it cost) my readings elevated
slightly, but returned to normal a month later. I took another panel after this months injection and my liver readings again raised slightly
My doctor said nothing to worry about as far as the readings go. I plan on doing this every 3 months.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by golfboy307 on Wednesday May 01, 2019, 03:57:34 PM »
I have not tried CBD oil, but let us know if it helps
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