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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Waybad1 on Sunday January 20, 2019, 11:40:41 PM »
I'm a 58 year male that has had Grover's for about 10 months. It came on suddenly just on my upper back and was a relatively small itch. I didn't do anything for
a couple of months thinking it was just dry skin. When it appeared on my chest and the itching increased I went to my doctor. By that time it was intense and I thought
I might have scabies. My doctor didn't want to even get near me and prescribed Permethrin cream and of course that did not work. I insisted he give me more and he did
and also gave me Invermectin. After that didn't work he gave me oral prednisone. That actually worked after taking for a week. I saw the rash get lighter and was hopeful.
He gave me another oral prescription that did nothing. I finally went to a dermatologist who recognized it right away and said it was Grover's. She said I was lucky it wasn't
scabies and that made me feel good until I discovered what Grover's was and I was wishing it was actually scabies, it would have been gone months ago. I went back to my
doctor and he had never heard of Grover's (great) He gave me Betamethasone which calmed the itch, but smelled awful. It did work for the itch for about 2 weeks, but when
I stopped taking it the itch came back right away. I am currently using Triamcinolone which helps with the itch, but to me is not a long term solution. I only used it for 2 weeks
and decided just to wait it out. I feel like I am polluting my body. I have been taking hot showers for the last week until my skin is red, but it does numb it for hours. Hot showers
might just be as bad for my skin but the itch is insane. I take Xanex to just barely sleep. I am healthy besides the Grover's, no other skin issues ever. I just had major blood tests at
UCLA medical center with everything good except high calcium levels. My doctor believes this has something to do with it. I will be going in for parathyroid surgery soon. I hope this
helps, but am not holding my breath. If this works or it goes away on it's own I will report back. I hope I am one of the lucky one's where it goes away on it's own


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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by TomA on Thursday January 17, 2019, 08:35:55 PM »
Best of luck with your recovery! I,too, have found success with the Prednisone when I took it for other issues. But when I went of it the Grover's returned. I didn't have the same success with either bit. A or D. Continue working with your dermatologist on treatments.

The good news is that the disease has a six to twelve month timespan for most

Keep us posted.

Tom A
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by enomisk on Wednesday January 16, 2019, 05:07:59 PM »
I am a 55 Y/O female that was diagnosed with Grover's disease in November 2018.  It was a BAD case that started in about Sept.  I literally was at the end of my rope.  I could not sleep, or focus on anything because the itch and rash was all over my head and body with the exception of face and legs.  It was relentless.   The only thing that seemed to help was Prednisone (oral Steroids) I had to take up to 40 mg a day to get relief from the INTENSE itching and rash.!  I decided to research the heck out of the disease and a way to get rid of it.  I found may forums and read through all the threads and found some common denominators in folks who found relief so I decided to try them all.  Here is what I have done so far over the last two weeks to get COMPLETE relief in about a week:

I eat a cup of Cilanto a day in a Smoothie I make with just rainbow sherbet and water (BTW  I HATE Cilantro)
I take 5000 units of Vitamin A and 4500 units of Vitamin D daily
I put Honest Company zinc sunscreen all over my body after my shower
I have weaned my self off of the oral steroids down to just 15 mg a day (so far)  I plan to go all the way off and see if the natural remedies work alone.

Wish me LUCK!
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Helpful Remedies / Re: Solar Urticaria Help & Relief ?
« Last post by CoraOrtiz on Monday January 14, 2019, 08:48:54 AM »
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Let me introduce myself ... / Re: 50+ woman with Grover's
« Last post by CoraOrtiz on Monday January 14, 2019, 08:48:04 AM »
Ich möchte über das Wissen auf dieser Website Bescheid wissen, unabhängig davon, ob die Daten tatsächlich ausgetauscht werden oder nicht, weil ich die Informationen ändern möchte.
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Oi Admin ! Wake up ! / Re: How to reply...?
« Last post by Surachate on Wednesday January 09, 2019, 08:02:03 AM »
 The information provided is very useful to me.
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Let me introduce myself ... / Re: Hello, I'm new here <Grover's Disease>
« Last post by enomisk on Monday January 07, 2019, 06:51:49 PM »
New to Grover's myself and wondering how you're doing?  Did Cilantro help?  Are you finding any relief?  I am having a really hard time with my itching/burning, sleepless nights and the thought of having this for months or years is making me so depressed!  I try to stay strong for my family but I literally cry in the shower thinking about how awful this and how will I be able to endure for a long period of time.  Mine seems to be worse than others.
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Let me introduce myself ... / Hi All! 55 year old female new to Grover's Disease and I hate it!
« Last post by enomisk on Monday January 07, 2019, 06:10:53 PM »
I was diagnosed with Grover's through biopsy (3 sections off off my back) about 2 months ago.  It started in September as an itchy rash on the back of my scalp and then slowly progressed down my neck, shoulders, entire back, buttocks, stomach, hips and under arms and now on the front of my neck.  The itch is so intense and maddening I can't stand it! I am desperate for answers and help.  I am currently taking about 30-40 mg of Prednisone daily which has eased the itch enough where I can sleep a bit and the rash is subsiding a bit.  But this is a strong drug and I don't want to ruin my body/liver, etc. They say that Accutane (or isotretinoin) works on some.  But that stuff is said to be the most dangerous drug around with severe side effects, so no thanks!   No prescription creams have worked so far.  The BEST cream I have found has been Sarna anti-itch cream.  It burns a little at first, then cools and eases the itch for 20 mins to an hour (works longer right after a hot shower). So starting today, I am going to try to go a more generic and holistic route and see what happens. I recently read that many people were having good results with 5000 units of Vitamin A per day as well as about the same amount of Vitamin D daily and also probiotic supplements.  So I'll try it!  I also read on another Grover's forum that ingesting a bunch of Cilantro every day has helped several Grover's sufferers. Some said they cleared in a few days, others a few weeks, others had no relief.  I'm trying that too!  Another group has had success with Zinc creams....so I'll try that as well!  I also read where sulfates found in wine (my favorite thing) among other things, can cause flares so I am cutting that out of my diet.  I also read that going gluten free is helpful...so I guess I am on that bandwagon too.  I am desperate people!  I am raising my 17 month old grand daughter and can't afford to lose any more sleep and I need my energy. This disease is ruining my life!  Any words of wisdom or encouragement would be helpful! 
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by chazas on Friday December 28, 2018, 09:18:57 PM »
I have had Grovers for a decade or so.  This year I went through a 6 month flare, but am much better equipped to handle it than I was last time.

I was somewhat controlling it with twice daily Cordran lotion, but my skin had enough of that and I had to back off.  Went to every other morning steroid, and good old triamcinilone cream seems to work better for that.  Calcipotriene cream every morning/evening when steroid is not used.

To minimize itch, Zyrtec daily and ever since I had an exczema outbreak on my legs a couple of years ago, Cerave cream everywhere else (with the anti-itch version patted over my treated Grovers areas).

Either this regimen work somewhat, or my flare is dying down naturally.  Take your pick.

Happy new year, everyone.
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