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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Idaho on Saturday December 08, 2018, 05:40:41 PM »
Hi Kikia,

I was baffled by why it affected the skin on my torso and chest, but not the skin on my breasts.  This makes no sense to me.  I was thinking I was having an allergic reaction to certain shirts and that my bras were helping eliminate the allergy on the area that was covered.  I asked my dermatologist about it and she said: "Grover's does what Grover's wants".  Not really an explanation, but what I'm taking away from my research is that there really is little understanding about this condition.  Your question about does anyone with financial resources have it, so we might have more research and answers is a good one.  Wishing a speedy recovery to all.

Idaho
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Let me introduce myself ... / Hello, I'm new here <Grover's Disease>
« Last post by Idaho on Saturday December 08, 2018, 05:31:52 PM »
Hello,

I'm a 50 year old woman and I live in Idaho.  I developed the symptoms of Grovers, mid-summer, around July of this year.  I went to my local urgent care, thinking I was having some type of allergic reaction or maybe swimmer's itch.  The doc was a bit unsure of what it was but we tried steroid treatment and she said we may need to seek the guidance of a dermatologist.  I didn't follow the medication instructions properly, my bad, and I went back and said I screwed up on taking the medicine, so we doubled down on the medications for another trial at bit stronger dose.  The urgent care doc remained puzzled as we tried to come to a conclusion of what I was dealing with.  Alas, it didn't really improve much and I was about to go on a week long vacation with old friends first week of Septemeber and I was losing my mind because I was so dang itchy all the time, I scheduled with a dermatologist.  She thankfully got me in the same day.  She is amazing, she asked me questions and looked at my torso and said: "I think you have Grover's Disease".  She took a biopsy and sure enough, that's what I have.  I've been blessed in my 50 years, and have never been diagnosed with a 'disease'.  What a shock!  I joked to my friends and family, that I am slowly going to morph into a blue, fuzzy muppet.  But kidding aside, the initial treatment the dermatologist gave some relief and improvement, but not cure.  Now at the beginning of December and I'm still dealing with the sores and the crazy itching!!!  After doing some reading here, I'm going to give cilantro a try and see where it takes me.  Thank you for taking the time to read my story.  There's something comforting in sharing one's experience. 
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Bits and Bytes / Re: PDF
« Last post by Ledcere on Friday December 07, 2018, 11:31:57 AM »
Thanks Andy :)
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Skin Complaints and Skin Disorders / Re: Pityriasis Lichenoides Chronica
« Last post by Ritz on Thursday December 06, 2018, 02:23:35 PM »
Sorry to hear a abut your daughter's suffering! I've had plc for about a year now, only 3% remaining compared to what I had last year at this time!
I cured my self by cleaning up my diet, anti-inflammatory diet, organic, mostly veggie diet with probiotics.
You should try that for your daughter, she's young so she'll heal fast! Good luck!
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Palmoplantar Pustulosis (PPP) Board / Re: The PPP Chronicle - Diet or Drugs or Both?
« Last post by PaulBeck on Thursday December 06, 2018, 03:03:09 AM »
Good day all!  Yes... despite rumors to the contrary, I still exist.  In coming days I hope to reinvigorate *this* PPP thread. Sincere wishes for Calamity Jane in her endeavors on the alternate PPP thread.  Basically, as many of you already know, my approach and focus has been diet with a constant eye on SOTA drugs.
  I must admit that I have been less than vigilant in intervening years, and a small spot of PPP has reappeared on the arch of my left foot.  I'll keep you up to date on my efforts to drive this back into remission, so stay tuned!
  My love and empathy to ALL, regardless of your approach to this hideous disease.  Symptomatic RELIEF is *always* the goal, as it improves the quality of life.  After holding this at bay for many, many years I hope to bring it under control again.  This affliction can be challenging.  I'm hoping that long term sufferers have found some answers, and am looking forward to researching any advances that have been made in the past 15 years or so.
  Feel free to send me a message via the utility furnished in this forum.  I have NEVER failed to respond to any questions or inquiries about the subject.  Peace and love to all.  It is all that matters.  As always; Be WELL!  Be SAFE! Be HAPPY!  (And remember, *your* mileage may vary.)
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by kikia on Saturday December 01, 2018, 09:09:38 AM »
hi everyone,
i have had grover's for 15 years, and it has never gone completely away!
it torments me every day, affecting my whole lifestyle-- what i wear, how long i can tolerate wearing certain things, obsessive over what possible cures etc. i can try next!

it amazes me that tens of thousands of people have it, and yet no cause or cure has been discovered!
(i wonder if any billionaires have it, and if so they may want to fund the research!)

anyway, right now my question is:
why does it only affect the torso?
there's got to be some login behind that--
you would think it would be a clue as to its cause and therefore cure, no?

wishing all of us healing!

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General Health / Re: kidney stones
« Last post by Palazzo on Thursday November 08, 2018, 08:28:35 PM »
How long have you observed these things, Anthropositor? I'd love to hear more details, honestly. I think you're on to something.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by timtom on Saturday November 03, 2018, 12:24:54 PM »
Same vendor, Garden of Life RAW digestive enzymes.  They have a lot of varieties on their website, I just took what my store on the shelf; the "Mens" version.
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Skin Complaints and Skin Disorders / Re: Pityriasis Lichenoides Chronica
« Last post by emmamae on Monday October 22, 2018, 05:46:38 PM »
Ugh, looks like everything is still the same after 10 years. No new advice and no new cures.   :(
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Skin Complaints and Skin Disorders / Re: Pityriasis Lichenoides Chronica
« Last post by emmamae on Sunday October 21, 2018, 02:49:51 AM »
Hi, my daughter had a very severe form of PLEVA when she was 4. I posted on here quite often during that time until her system seemed to just kick it our of her body after 6 weeks. She did use a steroid cream and zithromax ( she was too young for stronger antibiotics at the time.) Needless to say it was a horrible time for us and we were truly thankful when it suddenly went away from her body in the exact order it arrived. It did leave white pigmentaion marks the eventually faded away. I was scared for along time after it would come back. Now it has been in remission for 10 years. She is 14 and a normal active teenager and a Ballerina and in generally good health. She had her wisdom teeth out and got an infection and 1 month later... after 10 years PLEVA free, it is back :-( Her Dr thinks the infection may have triggered the response. I also wonder if it is a combination of that with stress.
This time it does not appear to be as much or aggressive as when she was four. I immediately knew what it was. It started on her arms this time and then lower stomach, a little on her back and upper thighs and in her armpits. I took her to her original Dr who did a biopsy on her the last time. She agreed it was back and put her back on the steroid cream but prescribed Doxycycline this time around. My question to the board is, has anyone been in remission for a long time and then have it return? When it came back was it as bad as the first time? Longer? It is hard for me as clearly at 4 she was so young, now her body, hormones etc have all changed. Also wondering if there are people who have a pattern of getting this once in a while but it is always the same, like will hers kick out again in 6 weeks? Thank you to anyone who may have some answers.
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