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Testing Testing ...1.2.3. / Re: split and re-merge part I
« Last post by Bomozomaaoka on Friday October 20, 2017, 04:02:55 AM »
us post, which was also after a post.
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Skin Complaints and Skin Disorders / Re: Advice for skin diseases
« Last post by Bomozomaaoka on Friday October 20, 2017, 04:02:02 AM »
matitis is a skin disease the same, just different severity. Folliculitis and acne is the same disease, bu
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Skin Biopsy, if the side effects are as difficult as they sound. Treatment in time at a particular dermatologist regularly creates more correctness.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by TomA on Monday October 09, 2017, 09:16:26 PM »
Danny, thanks for your kind words. We're just in this all together, and it's good to have a place to share our experiences. I trust your healing will continue.

Iain, in an earlier post you suspected a yeast infection, in this latest post you're now saying it's fungus related. From whatever cause, it sounds like you are finding relief and that's a good thing. I hope it continues. I've started experimenting with unfiltered apple cider vinegar and I'll let everyone know how it works. Getting the smell past my wife is the first challenge, but she's not complaining too loudly so far. I think I may be finding some benefits at this point, but it's too early to say at this point.

TomA
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Skin Complaints and Skin Disorders / Re: Anybody with Severe Tinea Versicolor making progress?
« Last post by sam207 on Sunday October 08, 2017, 05:33:30 PM »
Hi everyone, I just wanted to quickly share my story in the hopes that this will help others. I've visited this forum a few times over the years as a guest in hopes that someone had some new information that might help me.

I have for over ten years suffered with 'tinea versicolor,' trying many different treatments (natural and over the counter) and I always saw very little to no improvement. One day earlier this year I searched online for "hypopigmention" because I came to the conclusion that there just couldn't be any way that I had tinea. I came upon a post by someone with my exact same story with pictures that looked a lot like what I had. They contacted a dermatologist who specialized in darker skin tones (in which this is much more obvious) and he diagnosed them with progressive (familial) macular (midline) hypomelanosis." He advised them to go to their nearest dermatologist and get a prescription for 1% clindamycin topical lotion which completely normalized their skin after a few months.

I decided to do the same, however, it wasn't as easy as I thought it would be. My dermatologist (working under a well-known and prestigious NYC dermatologist) flat-out refused to prescribe me the lotion at first, because he had never heard of this condition and didn't think I would have something that he thought was so rare. He insisted I had poorly treated tinea versicolor and later insisted taking a skin biopsy. I kept insisting and he grudgingly prescribed me the lotion that I wanted to at least try since it was harmless. After a few months now, my skin is FINALLY NORMAL, and without a scar from a skin biopsy.

I hope this post helps others who might have the same condition which is commonly confused with tinea veriscolor. I had been to many dermatologists with great reputations and years of experience. Maybe some dermatologist might see this post and proceed with a bit more of an open mind regarding this condition as well.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by dannyfc on Sunday October 01, 2017, 07:11:43 AM »
Hi all

It's remiss of me not to have visited the forum for ages as it gave me the answer to my problem . Tom A, golf boy and a lady whose name I cannot remember posted some excellent stuff and talked a lot of sense. Unfortunately on forums such as this it can get lost in the wash, as there are lots of posts from people who mean very well, but unfortunately are going down blind alleys or don't have grovers disease.

I will summaries my story and if it helps one that's a positive...

1. I was diagnosed with grovers disease 2013 by bi-op in Nuffield hospital Cheltenham 2013. Please note you can only have grovers definitively confirmed by bi-op, nothing else. I also had dermatitis...I was 49.
2. Unfortunately for me my condition was deteriorating rapidly. My conditions, spots covering nearly all my back as well as part of front torso, also on legs.  Memory loss,mood swings,extreme fatigue and worse of all two blackouts in public.
3. The drugs I were taking, which are talked about a lot on here were having no effect my symptoms were getting worse and I was genuinely worried they were becoming life threatening.
4. I spent the whole weekend on the internet and mainly on this forum reading the posts. At that time I read all posts at least 3 times.
5. From the three people I mentioned on the forum the theory of mercury poisoning came up, then the name dr Paul dantzig , professor at Colombia NYC .
6. I was straight on the phone to him and flew to see him twice. In Jan 2014 he put some stuff in my body and two main tests, urine and blood. My urine samples showed him the second highest Mercury readings he had seen.
7. He was brilliant and calmed me down by saying he had treated thousands with over 90 per cent success rate, I would be no different.
8. He also said something that scared me. In certain individuals he links grovers to Mercury and Mercury to dementia. Some of the symptoms I was displaying he thought would lead to the rapid onset of that disease and I may not have lasted 5 years.
9. Three actions, the drug chelation two courses, it binds round your organs and pulls the Mercury out..second all Mercury fillings out (50 percent of the composite is Mercury),no fish for rest of my life.
10. I had five Mercury fillings, two very large, two had split. All were taken out by private dentist in Feb 2014 and replaced by porcelain. As an aside when Tim was taking them out he had what looked like a World War Two gas mask on, so did his assistant. He put my departing filings into a cylinder that had smoke coming out of it and sealed lock tight shut....I said these things were in my mouth!!...he gave me a knowing look and said he was in the dental industry but has never recommended these types of amalgams..

March 2014 all physical and non physical symptoms gone and my skin also looks very different, much younger. Today not one spot or symptom of those terrible times in 2012,13,14.

I believe that....
 I had the disease for a number of years, possibly as early as 15 years previous. I believe and Dantzig told me that it was degenerative as you get older, sun makes it worse. I was particularly vulnerable to it hence my problems. Dantzig can cure the vast majority of sufferers. The truth I don't think will ever come out due to the vested interests of the dental and fish industries.

I hope this helps a few and thanks again to the people I mentioned earlier because without them and this forum I would not have been cured..

Best

Danny
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Iain on Wednesday September 27, 2017, 03:42:20 PM »
When I last wrote earlier my approach to dealing with Grovers disease I was nearing a complete solution which I am very relieved to find has taken place. All the treatments I outlined were effective for treating Grovers disease symptoms.
Grovers disease is a fungal condition albeit conventional Medicine has not spent enough time researching it to specify this. As I wrote earlier I was tackling its symptoms which greatly relieved the unsightly skin problem together with relieving the intolerable itching for long periods.
The cure came from further enhancing the anti fungal approach. I started self prescribe treatment with fluconazole at 150mg once per day for 8 weeks and swabbing affected areas of skin on my back and chest with undiluted apple vinegar once per day. At around 7 weeks treatment I started to wet a small towel with undiluted apple cider vinegar and leave it on my back during the day. Repeated for two days to kill any surface funguses. From then onwards I was able to discontinue the use of Apple cider vinegar, but if you need to continue with it because yours hasn't subsided at seven weeks feel free to continue with swabbing or towelling with undiluted apple cider vinegar. Neither damage the skin.
As fungal conditions are notoriously likely to reoccur I have continued with fluconazole to ten weeks and my skin is clear and healed and smaller itching irritations on my neck, ears and forehead have disappeared and healed also without the need for swabbing with apple cider vinegar. All itching has gone and the skin is all normal.
Do continue with daily 150mg oral fluconazole for at least two to three weeks after all symptoms disappear to ensure no reoccurrence.
In common with many others I attribute the illness to a reduction in my immune systems resistance probably from stress at work, a reduction of my skins natural skin protective acidity level, and perhaps candida leakage from the gut into my body causing the spots and probably with malassezia over infection opportunistically feeding on the sebum in the areas of skin depleted of their usual acid protection.
Whichever is you case, Grovers responds to longer term anti fungal treatments. I wish everyone else who follows these procedures I oulined success and the complete relief from itching and the cure they desperately seek.
Kind Regards
IAIN
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Skin Complaints and Skin Disorders / Re: Pityriasis Lichenoides Chronica
« Last post by khrid3 on Wednesday September 27, 2017, 01:13:33 PM »
Hello, I am 21 years old, male, from the Philippines. I would like to share my story again for those who are not able to back read from previous messages. I had PLC since 7 years old. red rashes which are not itchy appeared throughout my body (except for the face) and it was initially associated with a very high fever. Since i am still a child that time, i do not care about these patches on my skin but still it affected my life as a child since i was embarrassed to play outdoors and with games which require to play with shorts or with tshirt off. Anyway, I am now 21 years old and I am glad that I am now free from this disease, although sometimes one or two fresh and light red patches appear, i consider this to be a great blessing to be free from many marks and patches all throughout the body. I was diagnosed with this disease after 7 years , when i am 14 years old but i consider myself to be somehow free from this disease when i am 19 years old. Imagine the 12 years of suffering.

Enough for a long intro, here are some things that i have encountered throughout my experiences with this disease.

What I have done:
1) Took controlled costeroid medication (having higher doses then getting lower doses after some time) - This does not help
2) Took UVB phototherapy for around 50 sessions. (This do help but temporarily, it helps to make lesions to blacken and flatten but still, red marks still appear)
3) Applying triamcinolone cream. (This does not help also)

As a patient who experienced this for a long time and is somehow healed from this disease. These are the following things I would suggest to do and things i notice and observe about the disease.
1) This is an immune-system related disease. Observe whenever your stressed or have some kind of sickness even though it is just common cold, red patches all throughout your body is angry.
2) Staying late at night may cause your immune system to be weaker, hence, more onset of patches/lesions on skin.
3) The most important thing about this disease is make your IMMUNE SYSTEM STRONGER! Drink colostrum milk, drink vitamins or in my case I only took herbal medicine such as malunggay life oil (available in the philippines) which i really testify to be effective on making your immune system stronger. Don't rely much on antibiotics, etc which could give you temporary relief but does not attack the main problem of weak IMMUNE SYSTEM.
4)Pray! ask our God for us to be healed. This sickness really made my faith strong.

I hope that i could be of any help. I am busy lately due to board examination but i would be glad to answer your questions after these busy days. Thanks and God bless to all of us. May all of us be healed from this disease.

Also, i would suggest that may this disease not ruin your life in any case especially because of the effects of this disease on our skin ( bad appearance). I hope that if you have a child who experiences this disease, please make his/her immune system stronger as early as you can. Now, onsets of red marks on my body just disappeared or become minimized to the point of having only one or two if i am really stressed but still, the flattened and black patches is still throughout my body and i don't think this would disappear with only a year or two.

Anyway, I really don't know how this disease started to me but I agree with the post before me that the cause is environmental. I remember that a month or few months before i got this disease, a fesces-smelling thing was brushed to my arms when i am playing. This is just a suspicion, there is no medical basis about this but still i hope that this could give anyone who reads this an idea that maybe a bacteria or somewhat undesirable came in contact with us.
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Skin Complaints and Skin Disorders / Re: Pityriasis Lichenoides Chronica
« Last post by Admo415 on Wednesday September 27, 2017, 01:21:24 AM »
Hi -

My wonderful 21 month old daughter was recently diagnosed with PLC.

I was wondering if J has an update on her daughter - hoping there have been no further spots!

What has been the general trend for younger toddlers with PLC, our pediatric dermatologist seems to generally see it run its course in younger kids in a few years.

We are making sure she get sun every day (we luckily live in LA). We have been told she has a "medium" amount of spots.

Any stories from other parents would be greatly appreciated!
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Let me introduce myself ... / Re: 56-year-old male with Grover's disease
« Last post by cathie on Saturday September 23, 2017, 08:07:12 AM »
I'm 64 year old female in Sydney just diagnosed also with Grovers. I also have actinic porokeratosis and immunodeficiency for which I have monthly gamma globulin infusions.  The itch is worse at night, when I wake or during the day I swim in the cold salt water at the beach and that helps. trouble sleeping definitely.  Difflam gel helped a bit. 
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