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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by djdmjd on Thursday August 10, 2017, 04:15:35 PM »
Greetings from New Zealand and hello to you all. Thank you to all the past and present contributions to this forum. When you are suffering with acute GD and very little sleep for weeks this forum is fantastic. Having GD for two years now it turned acute about two months ago. After following all the advise from fellow members i came to the conclusion that i had mercury poisoning as i eat huge amounts of fish. Two weeks ago i eliminated all fish dairy alcohol. This made no difference to my GD. I booked in to see my Naturopath to see if he could do something for the Mercury. This man is 80 and in fantastic health. He had never heard of Grovers and did not even look at it. He looked in my eyes at my hands and said he doubted that i had mercury poisoning and said that my body was highly acidic and dehydrated. He believed i had a mineral deficency and my face showed high stress. He put me on two homeopathic products fro NEW ERA. A number 3 calc/sulph and a number 10 nat/phos supplements. I went home and looked up cronic acidity in your body and found that plain old baking soda in water is the cheapest cure. Well four days on and last nite i slept for 8 hours. The first time in two months. My body is covered in tiny scabs from sores that are drying out and healing. It is clear that everyone is different and GD comes out for different reasons but if any of this infomation can help anyone suffering then i will be very pleased. 

Regards

Paul
How much baking soda to how much water please?
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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by M@t on Wednesday August 09, 2017, 03:00:55 PM »
How do you find on this site the "Grover's Board"?
I see people talking about going there.

If you click on the "Home" button then click on the skin complaints and skin disorders, there's a thread highlighted at the top of the list called "Grover's"
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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by Hailey on Monday August 07, 2017, 07:18:26 PM »
My only test was a biopsy that indicated Grover's (same as you, the skin cells were disentegrating). One derm is convinced the biopsy is correct, another thinks it's a false biopsy and that I have sterile folliculitis. I don't know what to believe, and it makes treatment difficult.


So glad to hear that life (and vacation) goes on!
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Paul W G on Monday August 07, 2017, 06:37:58 PM »
Greetings from New Zealand and hello to you all. Thank you to all the past and present contributions to this forum. When you are suffering with acute GD and very little sleep for weeks this forum is fantastic. Having GD for two years now it turned acute about two months ago. After following all the advise from fellow members i came to the conclusion that i had mercury poisoning as i eat huge amounts of fish. Two weeks ago i eliminated all fish dairy alcohol. This made no difference to my GD. I booked in to see my Naturopath to see if he could do something for the Mercury. This man is 80 and in fantastic health. He had never heard of Grovers and did not even look at it. He looked in my eyes at my hands and said he doubted that i had mercury poisoning and said that my body was highly acidic and dehydrated. He believed i had a mineral deficency and my face showed high stress. He put me on two homeopathic products fro NEW ERA. A number 3 calc/sulph and a number 10 nat/phos supplements. I went home and looked up cronic acidity in your body and found that plain old baking soda in water is the cheapest cure. Well four days on and last nite i slept for 8 hours. The first time in two months. My body is covered in tiny scabs from sores that are drying out and healing. It is clear that everyone is different and GD comes out for different reasons but if any of this infomation can help anyone suffering then i will be very pleased. 

Regards

Paul
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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by golfboy307 on Monday August 07, 2017, 04:32:01 PM »
Interesting both Hailey and Maria received non Grover's tests results.  I had two biopsies done on different areas and they confirm that my cells are experiencing "acolytic dermatitis", which means the cells are not "sticking" together properly.  My derm says that narrows it down to Darrier's and Grover's.  Mine is likely Grover's because I have none of the other Darrier's symptoms, which usually start early in life due to its genetic nature. 

Unfortunately, the skin is a big puzzle.  I just got back from a wonderful week in Mexico, but the saltwater and heat shredded my Grovers'.  It will take awhile for this to calm down.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Iain on Sunday August 06, 2017, 02:02:20 PM »
I have suffered from Grovers for almost a year now diagnosed by biopsy. It seems to affect the upper back mostly with some on the chest and and slightly the neck. Symptoms were worse in winter.
I found two ways to control it, and now from my research I believe I have found the way to resolve it.

I hit on the way to control the itch quite quickly, which is to bath daily and using a back scrub belt dosed with head and shoulders shampoo as used to treat dandruff, by scrubbing the back for 5 minutes daly to remove the sebum oil from the skin.The active ingredient in the shampoo is pyrithione zinc.
I like others found daily doses of 800 to 1200 iu of vitamin d3 somewhat helped my tolerance of the itch.
These facts led me to conclude there was a similarity to dandruff. The active organism in dandruff is a naturally occurring yeast called malassezia globosa. There are a number of yeasts in that family which inhabit skin in warm blooded animals and cause skin irritation.

I am now treating my Grovers as if it was a yeast infection.
Malassezia yeasts thrive on sebum oil, which corresponds to the area of the irritation. Daily
Cleansing as described with head and shoulders shampoo, and maintaining higher skin acidity by using a 25percent vinagre topical wipe on my skin are now reducing and stopping the irritation and my skin is healing.
I read that oral dosing with either itraconazol or ketaconazol can kill the yeast irritation. I haven't tried these because the yeast is a naturally occurring organism on our skin it will return, so I prefer daily control. However they are an option you may discuss with your doctor.

I hope that others will follow my ideas and find them helpful. For me it has changed my life understanding what is the cause of this intolerable itch and now being able to control it, prevent the itching, and allowing my skin to heal.

Kind regards
Iain


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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by Hailey on Saturday August 05, 2017, 12:40:18 AM »
Hey, everyone. I just saw a new derm and he thinks Grover's is a totally bogus idea. He said a lot can happen with the biopsy to get a false Grover's. He thinks I have sterile folliculitis, largely caused by stress and inflammatory response. Although I was glad to hear it's not something "incurable", I was disappointed to once again be unsure of what I'm dealing with. This is my 5th opinion, and each derm has said something different.  No cultures were taken, no tests done, and no real treatment.  He basically said to take a nondrowsy antihistamine... giving me no light at the end of the tunnel.  I am bummed, but I also can't complain much, because I do feel like it's better than it was when it started.  I'm grateful for the opportunity to know my body a little better, but the journey continues.  For everyone that has posted, thank you. I'm so sorry for the suffering of skin conditions like these. I'll be sure to post again if I find anything else out, but as I run out of derms in this rural area, I'm beginning to accept that this might just be one of those mysterious things that come, and hopefully go, leaving many unanswered questions.
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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by djdmjd on Thursday August 03, 2017, 05:54:41 PM »
How do you find on this site the "Grover's Board"?
I see people talking about going there.
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Let me introduce myself ... / Re: 23 Female with HS
« Last post by CalamityJane on Sunday July 30, 2017, 06:30:19 PM »
Hi Lunamama, welcome to Skin Cell.

There is much information on this forum and a dedicated link to HS on the home page  -    Hidradenitis Suppurativa Board.

Reading through the thread might give you some ideas of what has helped others who have been diagnosed with HS.

Sending positive wishes to you,

Jane
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Let me introduce myself ... / 23 Female with HS
« Last post by LunaMama on Thursday July 27, 2017, 04:03:29 AM »
 :'(
Hello, this is the first time using any kind of forum and I dont know if I am doing this correct but...welp here goes nothin'!
After many expensive invasive and pointless tests I found out I have HS. I did a little bit of research on my own because my quack doctor cant tell her wallet from a desperate patient. I can see there isnt much known about this illness.
All i know is that it hurts, it leaves embarassing scars and I am not happy one bit.
I havnt tried any medications yet. I am all for a helpful one but the birth control I was on for years have caused me mothing but trouble now. I have PCOS as well. So you can see my dilemma with trusting the all mighty BC medications. Lol.
I recently had a VSG, which is a weight loss surgery, and I have dropped 72lbs so far. It has helped ease the HS under my arms but my groin area is still a big embarassing problem.
Any helpful advice or experiences to ease my worrisome mind would be greatly appreciated.
Thank you everyone. :*
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