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Let me introduce myself ... / 31 year old female with Grover's Disease
« Last post by Hailey on Thursday June 22, 2017, 04:29:28 PM »
Hi, everyone. New to the forum. I'm a 31 year old female who was just diagnosed with Grover's Disease via skin biopsy. It's been persistent for four months, and seemingly came out of no where. I keep a very clean diet- no sugar for 8 months, and no gluten for 9 years. I eat organic, free-range, grass-fed, and what have you. I have no mercury fillings.  I believe the onset of my skin rash was largely due to a) moving inland after living no further than 4 miles from the ocean my entire life, and b) due to stress and pain from an old spinal injury that has recently caused pudendal neuralgia, as well as major repeatative crisis in the family for the last year. I am also a full time college student and step mother to a special needs child, so the stress is quite massive as of late. I've never had any other skin issues beyond being fair and not having tolerance for harsh chemicals/perfumes. I only use dove soap and have been known to make my own detergent. I am very allergic to poison oak and mango sap, but a recent panel shows no food allergies.  I do the ketogenic diet to control inflammation in the body, fibromyalgia, and Epstein Barr issues... which leads me to think Grover's may have an immune component.  But can excess ketones (acetone) expelled through sweat cause or exacerbate Grover's? Is there such a thing as a false positive Grover's biopsy? My derm  basically said to buy a spray bottle with a fan and hope for the best. I practice a lifestyle of self-care, meditation, spiritual seeking, etc. I get as regular exercise as possible, considering the heat and sweat. I feel like I'm already doing all the things suggested to alleviate Grover's Disease, and my age and gender make this Dx seem wrong to me. I am currently using triamcinalone in as small of doses as possible, combined with Sarna and ice packs, but today will be in the hundreds!  My derm also said to do bleach baths twice per week, so today I thought I'd go to the city pool to stay cool, instead. Thoughts, tips, and advice, please!!!
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Skin Complaints and Skin Disorders / Re: Schamberg's?
« Last post by beeludz on Tuesday June 20, 2017, 11:12:41 AM »
Hello,
I'm a 24 year old female, and have been diagnosed with schambergs disease over 4 years ago, I thought i'd share my story and all the info that I've gathered over the years to anyone else who's struggling with this out there!
How it started: I got really sick, took lots of antibiotics in a short space of time, and took a while to recover, soon i started noticing tiny red dots on my feet.
Mine started on my feet, eventually grew into red rings, and eventually went higher up until my knees, it looked terrible and my self confidence has been a huge struggle being a girl who enjoys wearing dresses and skirts and shorts, as i'm sure all of you experience. I ended up at a nutritionist who made me realize that my food could be contributing, since this is an auto-immune issue and everything stems from the gut. The main things I was intolerant to, and most people are also were gluten and dairy. I became a vegan, and stopped gluten, and after 6 months the red rings faded into more of red dots, it was still very visible and still spreading up my leg and beginning to appear on my hands, but looked way better than before.

I went to 10 different skin doctors, and eventually did a biopsy to confirm that this was schambergs, and tried using topical steroid creams that one skin doc gave. The pigmentation definitely became way lighter but as soon as i stopped using the creams it came back, and worse. I realized steriod creams are not the solution since they're just temporary making it look better, it does not heal the root of the problem. I also tried homeopathy treatment for 2-3 years, and no improvement with that as well.

Last month, I switched to lypo-spheric vitamin C instead of my normal 1000mg vitamin C supplements, and started taking 500mg of rutin and Mega GLA few days ago. I have noticed improvements with the lypo-spheric vitaminc c, and it looks promising, so will keep everyone updated with that and how the next month with rutin goes.

Over the years I became abit obsessive, and one by one figured out a few things that i've noticed are making a difference, and do help:

- Keeping legs elevated, sleep with a pillow under legs, if walking alot keep taking breaks sit down and elevate legs, if working on a desk dont keep legs down on the floor, get a foot rest.

- Lypo-spheric vitamin C instead of normal vitamin C supplements (big difference!)

- Gluten/Dairy Free diet (I notice dairy dramatically increases inflammations)

- I quit drinking coffee (noticed an improvement)

- Quit/limit alcohol

- moisturizing daily (using fragrance free moisturizers for v sensitive skin)

- I changed my soaps and detergents to sensitive skin ones (might help)

- STRESS LESS! stress is the biggest cause of any auto-immune issue, to heal the auto-immune problem first heal the stressers in life which is very challenging and i'm still struggling with but at least try your best to stress less

- Yoga! Increases and improves blood circulation

- Diet high in Vitamin K: cucumber, avocado, kale, salad leaves, asparagus, broccoli

And I'll keep you guys posted on the rutin and mega GLA :)



3
Skin Complaints and Skin Disorders / 5 years with Schambergs: Life mission to crack the case
« Last post by beeludz on Tuesday June 20, 2017, 11:09:41 AM »
Hello,
I'm a 24 year old female, and have been diagnosed with schambergs disease over 4 years ago, I thought i'd share my story and all the info that I've gathered over the years to anyone else who's struggling with this out there!
How it started: I got really sick, took lots of antibiotics in a short space of time, and took a while to recover, soon i started noticing tiny red dots on my feet.
Mine started on my feet, eventually grew into red rings, and eventually went higher up until my knees, it looked terrible and my self confidence has been a huge struggle being a girl who enjoys wearing dresses and skirts and shorts, as i'm sure all of you experience. I ended up at a nutritionist who made me realize that my food could be contributing, since this is an auto-immune issue and everything stems from the gut. The main things I was intolerant to, and most people are also were gluten and dairy. I became a vegan, and stopped gluten, and after 6 months the red rings faded into more of red dots, it was still very visible and still spreading up my leg and beginning to appear on my hands, but looked way better than before.

I went to 10 different skin doctors, and eventually did a biopsy to confirm that this was schambergs, and tried using topical steroid creams that one skin doc gave. The pigmentation definitely became way lighter but as soon as i stopped using the creams it came back, and worse. I realized steriod creams are not the solution since they're just temporary making it look better, it does not heal the root of the problem. I also tried homeopathy treatment for 2-3 years, and no improvement with that as well.

Last month, I switched to lypo-spheric vitamin C instead of my normal 1000mg vitamin C supplements, and started taking 500mg of rutin and Mega GLA few days ago. I have noticed improvements with the lypo-spheric vitaminc c, and it looks promising, so will keep everyone updated with that and how the next month with rutin goes.

Over the years I became abit obsessive, and one by one figured out a few things that i've noticed are making a difference, and do help:

- Keeping legs elevated, sleep with a pillow under legs, if walking alot keep taking breaks sit down and elevate legs, if working on a desk dont keep legs down on the floor, get a foot rest.

- Lypo-spheric vitamin C instead of normal vitamin C supplements (big difference!)

- Gluten/Dairy Free diet (I notice dairy dramatically increases inflammations)

- I quit drinking coffee (noticed an improvement)

- Quit/limit alcohol

- moisturizing daily (using fragrance free moisturizers for v sensitive skin)

- I changed my soaps and detergents to sensitive skin ones (might help)

- STRESS LESS! stress is the biggest cause of any auto-immune issue, to heal the auto-immune problem first heal the stressers in life which is very challenging and i'm still struggling with but at least try your best to stress less

- Yoga! Increases and improves blood circulation

- Diet high in Vitamin K: cucumber, avocado, kale, salad leaves, asparagus, broccoli

And I'll keep you guys posted on the rutin and mega GLA :)
 

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Skin Complaints and Skin Disorders / Re: Mystery skin disorder
« Last post by Elamras9 on Sunday June 18, 2017, 04:16:18 AM »
You'd better to see a doctor.
5
Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by golfboy307 on Tuesday June 13, 2017, 06:48:28 PM »
Olive,

I agree with Elisa, there is a lot of info back in these pages.  One of the approaches that worked for several people (but not all) was eliminating mercury.  There is a dermatologist in NYC named Dr. Paul Danzig that is convinced Grover's is caused by, or exacerbated by mercury in the body.  He encourages people to have their amalgram fillings out and eliminate seafood, followed by a course of chelation (to remove mercury from the body).  He claims a 90% success rate.  I followed his plan, but didn't do much chelation.  I have to say over the course of two years, my Grover's has subsided by about 80-90%.  I still get a small number of spots on my stomach, but not torso wide like I used to.  Am I cured?  No, but it made it much better.  And like you it does get worse in hot weather. 

Like TomA, triamcinolone is my favorite topical.

Hope that gives you something to consider.
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Skin Complaints and Skin Disorders / Protopic not working
« Last post by Anne5 on Saturday June 10, 2017, 07:53:46 AM »
 The dermatologist diagnosed me with allergic dermatitis and I am scheduled for patch testing in the next one or two months however I have a red rash around my mouth for which he prescribed Protopic Three weeks ago and although there has been a little bit of healing the healing seems to have stopped in the last week.   It is still red and itchy and I don't know why the Protopic is not working.   Does anybody have any thoughts of what else it could be why it's not responding to Protopic? 
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Let me introduce myself ... / Re: Numerous Boils in butt area
« Last post by CalamityJane on Tuesday June 06, 2017, 06:10:31 PM »
Hello and welcome to Skin Cell.

Unfortunately I can't help you except to say you are going in the right direction. A dermatologist is the doctor you have been hopefully referred to.

Some skin afflictions look like bacteria but they are not. Your wife must be very uncomfortable.

Please keep in touch with SC - there is a wealth of knowledge here.

Jane
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Let me introduce myself ... / Numerous Boils in butt area
« Last post by aj777 on Tuesday June 06, 2017, 05:41:46 AM »
Good Day everyone,

I urgently need some help please. My wife is suffering with boils that are constantly appearing on her butt. its been happening for the past two months. It started off with one and then another and then one on her inner thigh and it just began spreading. At one point she had about 11 at one point on her butt.

We went to see our GP and my wife was put on Antibiotics (two of them). The boils dried up and started calming down (this was about two weeks ago).

Now again these boils are popping up and even on her outer thigh as well now. At the moment she has about 5 or 6 and what we notice is that when one comes up, for some reason after a day or so another one comes up in the same spot on her other side (so one of the left and one on the right).

We are extremely worried and have got an appointment with some specialist Dr. in a couple of days but we are very worried in the meantime. Is septicemia a worry here and what can we do?

Thank you in advance.
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Skin Complaints and Skin Disorders / Pityriasis Lichenoides Chronica
« Last post by tchan918 on Saturday June 03, 2017, 04:57:53 AM »
Hi! I just got a biopsy report back and it said I got PLC.. I was wondering if there any cure? I'm 19 years old.. I have it on my buttocks, thighs, feet, arms, chest, back, and neck. Everywhere seems to be turning flaky and brown spots (I guess it's healing?) except the part near my stomach some heals then grows back.. I've been googling everything about this and I saw something about bromelain will help cure it? Has anyone tried it?
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Hi,

Thank you for this information. I have scahmbergs also. So should we not take Glutin and dairy products. Should I start Rutin. Is there any side effect of Rutin.

Thanks

Alam
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