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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by washava on Monday January 15, 2018, 03:09:38 PM »
Hello, this is my first time on this forum/board.  I am a 57 year old female, diagnosed (without a biopsy) by my dermatologist last April with Grover's.  I have started to read the 97 pages of this thread....but as some are so old I wondered if the advice/recommendations in them had changed.  From what I started reading it sounded like sun damage was thought to be a factor.  I have small red bumps only along the bottom of my breast line (where my bra strap would be.)  Nowhere else.  They do not itch.  My dermatologist prescribed Ciclopirox Olamine cream twice a day; this has had zero effect.  Then she recommended washing with a sulfur soap...also no change.  I am fair haired and have stayed either out of the sun or slathered in SPF all my life.  At any rate, the sun would not have ever reached the area affected...so sun damage can't be a factor in my case.  Wondered if anyone who has Grover's that has not spread or itched has any suggestions for treatment.  Thanks!
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by camesque on Thursday January 11, 2018, 08:56:35 PM »
I'm new to the thread. I have a number of newbie questions.
Any swimmers with Grover's out there?  I was diagnosed via biopsy 3 years ago, initially only on the chest and stomach, but it has spread to my back and thighs.  Swimming is my exercise of choice, as I have a spine condition. I am in the pool 4x/week. I also use the hot tub after my swim, where I do my physical therapy stretches.

I use Triamcinolone acetonide ointment when it flares, but between flares if there are only a few lesions I do not bother to use it. Should I be using it more often? Today  my dermatologist recommended that I use the Triamcinolone ointment  twice a day everywhere I have an outbreak (currently that's a lot of territory) for two solid weeks, to push it into remission. He said that he wants me to feel I have a little control over this thing by getting to a place where I am clear all over, rather than always having some of it somewhere.

And when there is not a flare, what is the right thing to do - moisturize with something gentle and fragrance free, or not moisturize so as to keep the skin dry? I work in an office, so I after a swim I do put on under clothes that cling to my body (bra, camisole, panties), and always wear a silky liner under my pants trying to avoid irritation on my thighs due to my clothing. 

And finally, folks, what is the worst that can happen with this disease? Does it have serious implications beyond itching and discomfort? I've had breast cancer, so I tend to think of any condition that can't kill me and doesn't require me to have surgery, sudden menopause, chemo and radiation as imminently tolerable - just glad to be alive.

Thanks in advance for any observations you care to share from your experience.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Seaborn on Monday January 08, 2018, 01:52:17 AM »
This is a strange disease. I am a 60 year old Caucasian male who was biopsied and diagnosed with it last year.  My disease only occurs on my back with no incidence anywhere else. As a youngster I grew up on the shores of Lake Michigan and like most children of my age, I was always shirtless in the summer and always baking on the beach, without the benefit of any sunscreens.  In my late 20s I tired of the cold and moved to Florida and continued my habit of going shirtless and hitting the beach, again without the benefit of any sunscreens.  I continued to live there until my mid 50's and never once did I suffer from any of the effects of Grover's Disease. However, I subsequently moved to Arizona and only there did I begin to suffer the affects of Grover's Disease. I have the pustules, the scabbing, the intense itching and the burning. With me it is a reoccurring disease always occurring in the springtime when the pollen counts are at their highest.  This leads me to believe that two things influence my incidence of the disease: dry skin and an autoimmune response.  To counteract the effects I use the following: Clobetasol Propionate, USP.05%,   a prescription topical steroid to reduce the inflammation, Sarna Sensitive which contains pramoxine hydrochloride 1% and Loratadine 10 mg.(generic Claritin) to reduce the itching and both available OTC. I have found that the combination of these will get me through the worst part of the year when the allergens are at their highest.  Once the pollen counts drop, my Grover’s Diseases goes into immediate remission with no signs of it throughout the rest of the year.  I have also found that any laundry detergent with enzymes or fragrances aggravates the disease.  Arizona is renowned for its hard water so I use Borateam to soften the water and always put my shirts through a double rinse cycle.  By using these methods of treatment and changes in lifestyle, I can tolerate the inconvenience of having Grover’s Disease. There may not be a cure but there are ways to mitigate its effects!   :D

9 years later.. and it is back with a slight twist.. I have moved from Arizona to Thailand.  Same heat, more humidity!  I have gone this long without a relapse!  But back in September the rash reappeared!  We tend to put bad things out of our minds so I totally forgot what it was!   I thought it was scabies.. or some exotic tropical disease.  After seeing 3 specialists, I finally so one who diagnosed it as neurodermatitis.  Oddly enough, this affects more women than men and at a younger age.. so I think the first diagnosis was correct.  By the way if you look at the hisology of both diseases they are almost identica! This bout though has had two interesting side effects, one being, pins and needles!  I have found gapabentin to be the most effect drug on that side-effect.  The other has been lichenified skin.  Ivermectin and Eucerin ointment relieved that problem.
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Let me introduce myself ... / Re: Grover's Disease- Looking for specialist in AZ.
« Last post by Seaborn on Monday January 08, 2018, 01:27:54 AM »
Did you find a specialist?  I was treated for it at North Mountain Dermatology.  They were very good.  My course of treatment was topical steroids, anti-fungals and gapabentin.  I've gone 10 years between episodes. 
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Oi Admin ! Wake up ! / Re: Verification hoops
« Last post by Taranut on Friday January 05, 2018, 04:16:16 AM »
I would like to give a thorough review, I hope it will not be a problem.
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General Health / Re: migraine headaches
« Last post by Taranut on Friday January 05, 2018, 04:07:09 AM »
I'm the same I always have this headache. Am I a migraine?
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by jd1 on Wednesday January 03, 2018, 10:32:34 PM »
Hi everyone,

It's been a long time.  I've been using Chemet as needed for 10+ years, and it has been fabulous for me.  I called in a refill in November.  My skin was starting to feel wrong.  It's not a big deal anymore - I know what I need to do.

After all of these years, the insurance company decided to deny coverage.  I am having to go through the appeals process.

Of course, Grover's disease does not wait.  A couple of weeks ago, the lesions surfaced.  I don't like seeing this on me again.  I expect that it will take longer for me to get it under control.

I called the pharmacy and authorized the purchase - around $1700, I think.  I told the insurance company that I cannot wait for them any longer.  I believe that ultimately I will be successful in getting this reimbursed.  It is the only treatment that ever worked for me.  What, exactly, do they want me to do?

I am sharing this just in case it is useful for anyone.  If nothing else, for me, this experience reconfirms that Chemet = healthy skin and my Grover's disease is due to heavy metal toxicity.
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Helpful Remedies / Re: New light treatments being used to treat acne
« Last post by SharonBlaine on Thursday December 14, 2017, 05:44:59 AM »
It's fundamentally a light that infiltrates the skin and eliminates microorganism’s cells. Or on the other hand. enough it should. The blue light should eliminate microscopic organisms. The red light should recuperate and un-kindle.
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Let me introduce myself ... / Re: LET ME INTRODUCE MYSELF
« Last post by Ritz on Wednesday December 13, 2017, 09:47:07 PM »
Hi dianet28,

I was recently diagnosed with PLC too! I don't remember falling severely sick or getting any infection, but i do remember having extreme stress in my personal life for more than a couple months right after which this started. It started a couple months back, i noticed a little red ulcer like wound on my left upper inner arm, i remember wondering how i got hurt there!! it went away in a couple weeks, in the meantime i noticed similar spots on my inner thighs. Now i have them on my whole body, thighs, legs, arms! Can't look at myself in the mirror- looks roasted and burnt!!
I am taking doxycycline and applying a triamcinolone steroid cream for the last 10 days, i don't think its helping yet... i still see new spots every day and feel pricks all over my body!! Trying to change my diet to anti-inflammatory foods. My doctor suggests oral steroids, i am still considering it. I am very depressed and cant think straight right now!
If anyone has any suggestions, please help!

Thank you
Ritz
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Eczema Board / Eczema Due to exposing to Clorox or Foodstuff; Meat, Water and/or Flour?
« Last post by ronaldcheng on Monday December 04, 2017, 03:10:03 AM »
        I do not know when Dyshidrotic eczema issue began or appeared. I never had this condition before until in year 2015 which in June I started working as a full-time Chef Baker, at that time I was sort of ignorant, do not know what is right to do or wrong. So usually whenever our work is finished, before going home, we would always first wash our dirty tablecloths with clean water, then submerge them into a bucket of water along with a few small cups of Clorox bleach and I do the submerge job with my bare hands to get everything even for like a few seconds and I did so continuously for like 12 months, and yeah, I know I was a total idiot. And on the 13th month, both of my whole hands started feeling this weird itchiness on the surface but there weren't any this so-called "Tiny blisters" thing, just looking normal on the outside and so I ignored applying some medical cream and scratched them like I used to.

        The next day I woke up the itchiness was still there but this time, some slightly reddish and tiny blisters starting to appear, however still, I ignored applying some creams, stopped washing the tablecloths with bare hands; started using plastic gloves and went to work as usual continuously for like 6 days and guess what, the condition got worse day by day to the point I could barely hold a knife's fat handle, let alone chopsticks as my fingers got fatter and fatter and some crack-line-looking wounds on each of my fingers' joint surface above starting to appear and got thicker and deeper.

       I have no idea what went wrong with my fingers but my mum scolded me for stupidly continuously touching, submerge and exposing my whole bare hands to Clorox bleach resulting in complete reduction of my skins natural layers of protection and thus creating higher chances to get Dyshidrotic eczema easily just within 1 whole working day of continuously exposing my fingers to tap water, flour, condiments, sauces, and meats.

      Before I started my first job as a Chef Baker, I studied at Bakery and Pastry school and there I touched quite a lot of stuff for training purpose back in year 2013. But during my whole schooling period, I hadn't encountered such problem. My question now is, were my hands really poisoned by the Clorox bleach or was it the other thing? Flour? Tap water? Cream? Meats?

Any help is much appreciated. Thank you.
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