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Skin Complaints and Skin Disorders / Re: Mystery skin disorder
« Last post by JoellynC on Sunday April 23, 2017, 06:57:44 PM »
It looks like it might be related to your rosacea.  It could be Pityrosporum Folliculitis or another form of Folliculitis.  I suffered for decades with something that looked like acne, but was seasonal and was found on my upper chest and arms.  Turned out to be PMLE.  You may need to find a better dermatologist who is up on the latest research to know for sure.  The fact that Mayo clinic had no idea is unusual.
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Skin Complaints and Skin Disorders / PMLE interesting connection
« Last post by JoellynC on Sunday April 23, 2017, 06:47:11 PM »
Hi,

I have suffered with PMLE since my 20s and it got worse after a 2 week vacation in FL.

I suffered for years with no answers until 3 years ago (I'm now 50).  As I was diagnosed by my dermatologist I was also being diagnosed by my doctor as being severely Vitamin D and Vitamin B12 deficient.

Last year I found a very interesting connection.  I ran out of my Vitamin D and was lazy about picking some up.  I had the worse case of PMLE after going years with very little manifestation.

I also had remembered reading about Heliocare so when I ran out to get my Vitamin D I got some Heliocare too.

My successful treatment to avoid flair ups is in the morning I take my Vitamin D and Heliocare.  I then put a layer of sunscreen on.  I usually do SPF 30, but have gotten away with lower.  This covers me for the day of walking the dogs, short periods of sitting in the sun and driving in my convertible.  If I'm going to be in the sun for a lot longer like for an event or the beach I reapply sunscreen and take another dose of Heliocare in the afternoon.  I urge everyone with PMLE to get their Vitamin D tested.  Everyone is deficient, but being seriously deficient is damaging in a number of ways.  Be sure to get the right test.  My primary doctor didn't and I suffered for a year with an illness that a specialist found immediately to be Vitamin D deficiency. "Be specific and ask for a 25(OH)D test. There is another type of blood test for vitamin D, called  a 1,25(OH)₂D test, but the 25(OH)D test is the only one that will tell you whether you’re getting enough vitamin D."
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Journeyman on Wednesday April 12, 2017, 03:09:56 AM »
Hi All, I'm back, cos the itch is.  Eight months clear (the hottest eight months in our part of the world), and suddenly 24 hours ago I get itchy.  Not severe this time (touch wood), and back and shoulders rather than chest. I know it's the old G from the sensations.  A particular, persistent kind of itch, and very strong sensations followed by relief from a VERY hot shower.

TomA, I checked the band-aid thing and it doesn't cause me a problem.  Nor does seawater, which somebody else finds to be a trigger.  No seatbelt pattern.  No visible correlation with physical vs. sedentary work.  My diet, lifestyle, etc.: no change recently.

As several of us have said, it seems to be different for all of us, both triggers and treatments.

Last time I had it, it stayed with me from a cool temperate region in winter, to the tropics, and back again.  Lasted about four months, most severe at the beginning.  I haven't got a ghost of a clue so far what my trigger/s is/are.  I'll get back to the Vitamin D supplementation, because I just suspect that may have helped, and I do think that coconut oil was very soothing and perhaps alleviated symptoms a bit over time.  Short-term, a fiercely hot shower reliably gives me a few hours' relief, and nothing else does.  For me, the whole thing seems to come and go at random.  Part of the last eight months, I was eating less grains and more animal protein, because my partner was trying Paleo for migraines (Paleo didn't fix them, but we did confirm her sensitivity to wheat and dairy, which we had already suspected).  For me, part-Paleo/non-Paleo made no difference, and I know my body appreciates a hunk of wholemeal home-made bread and local cheese from time to time.  [Dear Paleo missionaries: I'm glad it works for you.  It didn't for me.  Thanks for sharing.]

I just have to come back to the conclusion that Grovers is a very individual thing.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Tock7 on Tuesday April 04, 2017, 09:22:27 PM »
I'm new here and have struggled with Grover's for over 10 years and diagnosed a couple of years ago.  I have just recently discovered that flu shots and immunizations flare my Grover's Immensely.  I was so clear until at my physical I was talked into a tetanus shot which I didn't really need.  My Doctor prescribes Fluconazole when I'm really flared, but naturally I try and use anything naturally to calm it. 
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Let me introduce myself ... / 50+ woman with Grover's
« Last post by Tock7 on Tuesday April 04, 2017, 08:58:57 PM »
I've struggled with Grover's for over 10 years but only diagnosed a couple of years ago.  I've just recently discovered that it I get a flu shot, or any kind of immunization, It flares my Grover's uncontrollably. Has anyone else discovered that?
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by TomA on Friday March 31, 2017, 11:02:18 PM »
That was supposed to say one gold filling removed.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by TomA on Friday March 31, 2017, 11:01:14 PM »
Some have mentioned here that they've had their metal crowns removed. I had one fills one that wore out. Having it removed didn't make any noticeable difference. On the hair dryer, I have found that some aren't strong or hot enough. On my current one I use high heat and speed and use a concentrator nozzle on the end.
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Maestrofred on Friday March 31, 2017, 08:22:47 PM »
Thanks, TomA.  I guess that I will have to try your technique.  I did go and see an allergist in January because I was afraid that I had developed some new allergies because I have been breaking out in other areas on my body that I have never had a problem with before - like my arms and in my crotch and down the inside of my thighs.  The only that showed up as a new allergy was to gold.  And I don't wear any gold.  I do, however, have a few gold caps in my mouth but the allergist said that they would not cause a problem.  Now I am wondering if there is a connection.
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Let me introduce myself ... / Re: Hi New Here, 50+ female with (Grover's Disease)
« Last post by ckg1989 on Wednesday March 29, 2017, 08:03:13 PM »
Hi- I am 45 year old female with Grover's, as well. Did you find a doctor who was helpful or a treatment that was successful? Please let me know. Thank you!
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by ckg1989 on Wednesday March 29, 2017, 07:58:30 PM »
Hi All- I was diagnosed with Grover's Disease by a Derma doc through a biopsy this past December. October through January was a nightmare as I had a severe case; on my back, chest, both arms, tummy, and thighs. Right now it's just all over both elbows and one side of my chest. I have never itched so badly in my whole life. I am seeing a derma doc who is great; she gave me a spray that takes away the itch for at least 8 hours. Of course, my case was so severe that I was on steroid injections/pills, hydroxyzine and then doxepin for several months. All of those things cause significant weight gain, bc I am a 45 year old female I have taken myself off of them. I would like to find a specialist in AZ bc there has to be more than all of these pills. Does anyone have a referral? Thank you in advance!
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