Recent Posts

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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by Hailey on Monday September 18, 2017, 07:56:02 PM »
M@t,
We did a round of antibiotics, both topical and oral. The new doc thinks it's sterile folliculitis, so no treatment would really have an effect. I'm now doing light box therapy- third week of twelve. It seems better as the weather has cooled. Will let you all know any updates.
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Let me introduce myself ... / 56-year-old male with Grover's disease
« Last post by David J on Tuesday September 12, 2017, 05:33:11 AM »
Hi forum members.

Iím a 56-year-old male from Australia. Two months ago I experienced the sudden onset of a rash which was biopsied and diagnosed as Groverís disease. I also have eczema, psoriasis, folliculitis and seborrheic dermatitis. Over the last week or so Iíve been getting hives as well.

Unfortunately the Groverís has been progressively worsening since its onset and this seems to be accelerating with the warming spring weather.

I donít drink or smoke and have a healthy diet. Avoidance of heat and sweating is limiting my former exercise routine. Iím currently trying a gluten-free diet and have been taking fish oil and curcumin supplements since before the diagnosis. Topical steroids and clindamycin havenít provided any relief.

Sleep deprivation and distress over this condition are making it difficult to stay focussed and meet my professional commitments.

Iím hoping to be one of the fortunate people who find the condition self-limiting but know I canít count on this. Otherwise hopefully over time Iíll learn to manage it well enough to get some of my life back.

Itís a shame the Groverís thread on this site isnít as active as it was but itís a great resource anyway.
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Let me introduce myself ... / Re: Polymorphic Light Eruption
« Last post by FaheyLynn on Friday September 08, 2017, 06:43:36 AM »
After you use it. Now how is it gone?
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Hurricane Harvey poses problems unprecedented in American history.  As this event continues to evolve, it will test the mettle of all of us in the region to get our bearings as best we can.  Let us try for some perspective at this particular early point, while the emergency continues to evolve.  Katrina, the hurricane more than a decade ago, took approximately 1800 human lives.  So far, Harvey has taken perhaps 20.  An ongoing monsoon in Mumbai, India has killed a reported 1200.  How many of us even noticed?  How many of us have an idea of the current number of clearly genocidal wars that are ongoing today?  I'll not dwell on it.  The subject at hand is respiratory infection of various kinds which have the potential to very quickly mutate into pandemics of global magnitude.

It is worthwhile to note, however, that disease prevention is complicated much more in environments where thousands upon thousands are jammed together under Spartan conditions including exposure, privation, and extreme overcrowding of throngs of refugees who have already lost everything they own, and are suffering the existential shock of starting their lives again from scratch.

My wife and I lost our home eight years ago.  Being of advanced age, it was exceedingly difficult to begin again.  Yes, we are unlikely ever to retire.  She, in her eighties, and myself in my late seventies are also unlikely ever to live in a rest home.  The cost is prohibitive and probably will remain so.  My blindness of a few years, nine years ago, is now just a past nightmare which ultimately had a happy ending.  My eyes now both work scintillatingly well, exactly according to my game plan.

So I say this to the current crop of abject refugees where ever in the world you may be; Don't lose heart!  Fear is the mind killer.  And under your emergency circumstances, get some cooking oil somehow, and especially if you are in an overcrowded emergency shelter somewhere, under adverse conditions, swab your nasal passages several times a day with the oil.  Peace be upon you all.

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Skin Complaints and Skin Disorders / "Miracle cure" sunscreen for PMLE - found!
« Last post by Beany on Wednesday August 30, 2017, 07:12:19 PM »
I specifically registered for this site so I could pass along what I have learned to other PMLE sufferers.  For years I have gotten the telltale red, itchy PMLE rash every time I visit the Caribbean.  Once two occasions, it was so bad as to require a visit to a hospital.  I am a tireless researcher, however, and I tried everything I could find -- Heliocare pills, SunSafe pills, AGR+E, and every sunscreen, er, under the sun -- Blue Lizard, Neutrogena, Ombrelle, plain old zinc oxide -- you name it, I tried it.  None of them worked 100%, though in various combinations it might be two or three days before the rash set in, instead of a breakout on Day 1. 

Finally, I broke down and anted up for a bottle of Anthelios XL SPF 60 Comfort CrŤme.  Unlike Ombrelle and some other sunscreens I tried, this one has both Mexoryl SX AND Mexoryl XL -- one blocks UVA rays and the other blocks UVB.  It goes on like a body lotion -- not white or sticky -- smells good, and is virtually ALL DAY waterproof.  (I spend 4-6 hours a day in the water on vacation and usually need to reapply only once -- THAT'S how waterproof it is!). 

The results?  NO rash!  Not even a hint!  This product is truly a miracle.  There is currently a manufacturer shortage (the Canadian pharmacy I order it from tells me it is their best-seller) but should be back in stock in mid-October.  If you suffer from PMLE and nothing has helped, give the Anthelios XL SPF 60 Comfort CrŤme a try.  It's not available in the US -- you'll have to order from phamix.com or another Canadian or French pharmacy -- but it has truly changed my life!!!
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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by Maestrofred on Saturday August 26, 2017, 06:13:18 PM »
I just ordered some t-shirts from Thompson Tees, who are promoting undershirts that keep you from sweating and perspiring.  I am hoping that these will keep me dryer and have a reduction in Grover outbreaks.  I have found that I cannot use deodorant because when I do, I break out.  I have various deodorants that are supposed to be safe for sensitive skin, but after a few days I break out with a rash in my armpits.

I have also purchased a few Artic Cool shirts and they not only keep me cooler but they also help control my Grovers.  I always wear one when I cut the grass and I don't break out anymore while cutting the lawn.  (Sorry if this sounds like a commercial, but if these products can help it will be worth sharing my experiences with all of you).
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Skin Complaints and Skin Disorders / Re: Stretch Marks on a 10 year old girl
« Last post by CarinaChiara on Thursday August 24, 2017, 06:32:29 AM »
I purchased dermalmd stretch mark serum for my teenage daughter who had very visible red stretchmarks on her thighs from a growth spurt. She was very self conscious and didn't want to wear shorts or anything that showed her legs. In desperation, I started researching ways to help her and came across dermalmd stretch mark serum. It is amazing! I honestly thought I was going to be wasting my money but I was desperate to help my daughter. In just a few weeks the marks are barely visible and she is so happy. Moms out there, I would highly recommend dermalmd for your daughters who are going through the same thing. It really does work!
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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by golfboy307 on Wednesday August 23, 2017, 09:20:04 PM »
Hailey,

The folliculitis can be treated with an antibiotic regimen correct?  If that does the trick you would know that it is not Grover's.  Sometimes it is best to eliminate the differential diagnoses if you can. 

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Skin Complaints and Skin Disorders / Re: Grover's disease
« Last post by djdmjd on Thursday August 10, 2017, 04:15:35 PM »
Greetings from New Zealand and hello to you all. Thank you to all the past and present contributions to this forum. When you are suffering with acute GD and very little sleep for weeks this forum is fantastic. Having GD for two years now it turned acute about two months ago. After following all the advise from fellow members i came to the conclusion that i had mercury poisoning as i eat huge amounts of fish. Two weeks ago i eliminated all fish dairy alcohol. This made no difference to my GD. I booked in to see my Naturopath to see if he could do something for the Mercury. This man is 80 and in fantastic health. He had never heard of Grovers and did not even look at it. He looked in my eyes at my hands and said he doubted that i had mercury poisoning and said that my body was highly acidic and dehydrated. He believed i had a mineral deficency and my face showed high stress. He put me on two homeopathic products fro NEW ERA. A number 3 calc/sulph and a number 10 nat/phos supplements. I went home and looked up cronic acidity in your body and found that plain old baking soda in water is the cheapest cure. Well four days on and last nite i slept for 8 hours. The first time in two months. My body is covered in tiny scabs from sores that are drying out and healing. It is clear that everyone is different and GD comes out for different reasons but if any of this infomation can help anyone suffering then i will be very pleased. 

Regards

Paul
How much baking soda to how much water please?
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Let me introduce myself ... / Re: 31 year old female with Grover's Disease
« Last post by M@t on Wednesday August 09, 2017, 03:00:55 PM »
How do you find on this site the "Grover's Board"?
I see people talking about going there.

If you click on the "Home" button then click on the skin complaints and skin disorders, there's a thread highlighted at the top of the list called "Grover's"
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