« Last post by PLC4ME on Today at 05:28:29 PM »
Hi guys I'm Brenda i was diagnosed of PLC year 2013 i had may recent CBC result and i have lymphocytes level of 42 which the normal value is 40 may i ask if anyone here had their immunologist check up doesPLC really related to what i heared about the blood disease or lymphoma? I'm a bit worried
And sorry to hear of your condition.. What did the specialist say about the high level? I believe the higher immune system would be quite normal as your bodies immunity has to work harder and create more immune cells.
I haven't logged on here since 2008 and so it's been almost 10 years. You can see my posts from page 8.. I had this PLC in 2005 for about 6 months and then I took tetracycline I think they were 500 mg tablets x2, 2 times daily. For a week now I have been getting more and more spots on my arms first of all and now on my shoulders and some on my neck and head and legs and feet. So I had to go to a compounding pharmacy to get them to make tetracycline because it's not available in Australia as a regulated prescription anymore. If you are taking it you need to stay out of the sun.
Another thing I recommend is taking cold showers, which prevents the flaring of the spots. The technique is to just cover yourself with soap and then wash yourself quickly within a minute. I am actually quite used to this because I have had dermatitis for more than a year on my hands but now it seems to be a bit better. I also get dry skin in general so I have to use soap free wash.
Otherwise make sure to get lots of sun as you need vitamin D along with vitamin B12. Thanks thinking of getting this supplement today actually. But it's probably better to get a full blood count so this level can be measured. If you live in a country like England or you have dark skin then vitamin D deficiency may be a problem.
I am almost under the belief that the cause of this disease is environmental. I messaged Shauna in 08 who was another member on here, because I was just reading old messages in my inbox, and I asked her if she had seen any small bugs or mites around her child's bed or clothes. And trying to remember why I asked that. Because strangely enough the bed Ive been sleeping in for the last 7 nights has been infested with these little bugs which actually suck your blood. I thought they were causing the spots as they are quite itchy and resemble mosquito bites, (only some itch). Anyway I let one of these bugs bite my hand this morning and it didn't produce a spot at all. So it's not the bite itself causing me spots but I think it's releasing a kind of bacteria in my blood. It's very aggressive and the fact the spots seem to accumulate in the same place on my body, (sometimes in a straight line), leads me to believe the skin reaction is local.
I will have to find my own dermatologist and get a referral, so that I can get a biopsy and determine what this actually is. The derm I had for my dermatitis was actually very high up however she recommended things like wearing cotton lined dishwashing gloves and cotton gloves to bed with the ointment. However these gloves were actually sustaining the dermatitis, so now I use disposable gloves.
Anyway I'm going to call this compounding pharmacy as soon as they are open so they hurry up with the tetracycline, otherwise I have a script for erythromycin. Will update here with the progress... and I'll upload a video or images with this little bug.
@mark24 I recommend giving the antibiotics a try as I believe they helped me when I had this skin condition 12 years ago.