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Author Topic: Does any of this sound familiar?  (Read 1636 times)
Kitty_stew
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« on: Sunday May 16, 2004, 12:02:45 AM »

   It's a long one, sorry
    I have what seems like pustular psoriasis mostly on my hands and feet.  I lose huge normal looking pieces of skin of my hands and feet in the places I don't have pustulars(is that a word?) daily and smaller yellow pieces were the pustular psoriasis has been.  I have lumps growing off the bones near my knuckes and in my shoulders, probably other places.  I lose several finger/toe nails a year. my hair and nails seem to grow much faster than normal.  I also get sick and weak feeling in sun light.  
   All of those problems started about 2 years ago, maybe less and have been getting worse ever since.
    About 2 months ago my tendons started to stiffen up and became visable thro my skin.  Becasue of the tendon problem it has become hard to do anything, my muscles no longer want to move as much as the could before.  Also I have a lot of pain in those tendons and some of the muscles they are attached to.  This problem is also getting worse, it has spread to most of my body.  Since this muscle problem I have been tristy all the time and sleeping 12-14 hours a day.
   The psoriasis is not a problem, because it grows in evenly with no pain or itching.I kind of enjoy my skin growing so fast as long as it doesn't show, because I heal unbelievable fast if something happens in those areas.
   I have been to several doctors including a derm. and the one for bones.  I have been tested for all kinds of dieses, disorders, and malfunctions.  They have been unable to even diagnose me with anything.  I am starting to get scared.

     I am starting to think all my problems are related.  What I'd like to know if these are symptoms of anything serious that the doctors may have missed. If anyone has heard of anything that sounds like this please please post it here.
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The future, like a giant neon arrow pointing straight down into a toilet, is as bright as ever.
Sunflower_25
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« Reply #1 on: Tuesday May 18, 2004, 04:07:33 AM »

i am sorry to hear about all of these problems to an outsider they all sound related. when you have something rare its hard to find someone to empathise with. your conditions sounds very serious and like its progrssing very quickly. i have never heard of anything like this. my only suggestion is to try a large hospital that deals with rare conditions on a daily basis. they can usually help if not solve your problems good luck to you and keep up your positive attitude its over half your battle.
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vive
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« Reply #2 on: Sunday June 06, 2004, 01:04:33 AM »

Have you been checked for psoriasitic arthritis and osteoarthritis?

Getting weak in the sun - my daughter can be allergic to sunlight (she takes medication to reduce her allergies, so can go out in the sun now).  I have heard that some people are so allergic to sunlight that they get an anaphylactic reaction.  

I do hope you find a hospital that can help -  there should be treatments to ease the joint problems.
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