Bit slow in adding to the comment about snooty doctors. In my experience i've found that lot of the doc's i've seen have acted that way because they have no idea about the illness!!! When first diagnosed and having loads of ops i was told by incapacity review board that HS doesn't exist!! (i think we can all testify that it does!!
). And the first doc i was under tred a drain which meant it tracked all the way down my arm, so i think he was funny with me cos he knew he'd made it worse cos he had no knowledge of HS either.
I've now had 12 excisions and skin grafts (and various x-y plasties etc) and the 2 plastic surgeons i've been under (Mr Cooper in Morriston, Swansea & Mr Daly in Nottingham City Hosp) have been really good.
At moment just finished 3 month course of 2 antibiotics which held it at bay but its starting to come back, problem i've got is i need op on torn cartiledge in my knee and that surgeon won't do it (or even put me on waiting list) wile i'm having any other treatment.
oh and on the clothing front, when my HS was at its worst (especially in genitoanal area)i just wanted to sit it a bath all day!!!
Not really practical for day to day living.
Tony
