Psoriasis Hall of Pshame ![eczema,seb derm]

[Celery Peach]

Just found this & found it rather  

http://www.pinch.com/skin/pshame.html

[Tiny_Mo]

Thanks CP have passed this onto some friends who all suffer from P

[peterb]

Good link CP I have used this for ages, it gives you the low down on treatments which are dubious.

[russkygb]

WOW

thats opened my eyes

thanks for the link

cheers

russ

[boogiedougie]

  me too CP, thanks for the link.

[Bri9801]

I have seen it beofore too, but never the less a great link for everybody to know about

[electric_ian]

I have made this thread sticky as requested also added eczema and seb derm to the title as have been informed that some of these so called treatments are aimed for those conditions also...
Ian

[Hvns]

What a great link CP!

Hvns

[stargirl]

many thanks for link

[LOX]

I've known about that site for a couple years now. I learned about it early on in my self treatment for psoriasis.

I recommend the site to others, since most of it seems to be good valid advice warning against scams and quackery. Skin Cap, Skin Zinc...ughhh!!! Junk.

I use the word, most" because the single problem I have with The Psoriasis Hall of Pshame is the mention of the book that I followed to cure myself of psoriasis: Lisa Levan's book, "The Psoriasis Cure." It's also the book that inspired me to go the naturopathic route rather than use harsh drugs and light treatments. Seven months after buying the book, I was totally clear of psoriasis and remain 100 % clear to this day. So, as you might imagine, I have a huge problem when someone makes negative comments about that book. It remains in handy reach right there on my book shelf and I still refer to it often. Most of the healthy advice that I've shared on this forum and the National Psoriasis Foundation's forum comes straight out of the pages of that book. Practically verbatim.

I think most people turn away from that book simply because of the title on the cover. If the cover of the book bothers you, just tear it off and read the inside. That's where all the important stuff is anyway.

[Celery Peach]

Hi Lox

I appreciated what you are saying there, about the mentioned book, and indeed, that its insulting when someone puts down what has worked for you - natural or otherwise. I find it just as insulting when accused of 'giving in' to pharmaceutical drugs and not 'curing myself' by natural means. Which BTW I have tried many of myself with varying results.

I think the key word in all of it is this - CURE.

Cure is a very strong claim, especially when dealing with incurable illnesses, and I am sorry, but in my eyes, unless medical science has bona Fido evidence of a cure, then it cannot be claimed as such, its simply management of symptoms or remission.

I actually believe in natural treatments, but I think many of us struggle with the strict regimes needed to benefit from the full wisdom of it. Of course, find your allergies, cleanse your system and live as naturally as possible, but its a major life change that many of us are unwilling to follow.

Why then, charge people for a book, when quality advice of the same kind can be found on the net as you say ? Its not the cover of the book that bothers me, its the claim of a cure for an incurable illness.

[LOX]

Ahh, that infamous word, "CURE."

I've written about that dreaded word at length in previous posts.

I'd be happy if the word was banished from use.

I think the mistake comes from the fact that many people, when they hear the word, "CURE," they instantly think of permanence. Wrong !!! How can anyone know if they've been PERMANENTLY been released from ever getting the illness again as long as they are living on this earth ?

I never use it, but if you want to use the word cure, think about it this way:
Take steps to make the symptoms of the illness disappear, then work to keep them away. If the symptoms never return until the day you die, then I guess you can say that you've been "CURED." But until that fatal day comes that you breath your last breath, you will never really know if you've been permanently cured of anything. We all live in the natural world.....any illness has the potential for returning. If the illness ever returns, even if it's 50-60 years later, how can anyone claim to be permanently cured of anything. You can say that the illness has gone into "remission," but that's about it.

Even though I haven't had any symptoms of any form of psoriasis for 18 months or so, I do not, nor will I ever consider myself "CURED."
I think of Psoriasis as the name of that evil lttle lecherous demon sitting off in the corner in the shadows. I am still taking measures to keep him there.

[PaulBeck]

Hi All...
I'm glad to see this link come to the forefront again.  Since I finally got around to catching up on reading AND reorganizing my links, here are a few others mentioned by Nick, peterb, gary and forgive me I forgot to mention you.  Between these five, you've got most of your bases covered if trying to dodge the dodgers.

www.psorsite.com

www.flakehq.com

http://www.quackwatch.org/01QuackeryRelatedTopics/quackweb.html

http://archive.uwcm.ac.uk/uwcm/dm/dermlink.html

Be Well!
K

[ITMatt]

Thanks for the links - it's nice to no longer be alone.