Hi I'm new with Linear IGA Dermatosis

[tabby]

Hi,
I'm new to this forum - I am excited there is a site like this dedicated to skin issues.

I have Linear IGA Dermatosis (what a mouthful that is!)

I don't see Linear IGA Dermatosis listed anywhere, but it is a rare autoimmune skin blistering condition.  I hope to meet other people here that have this.  I suffer from very painful lesions in the throat and mouth. I've been on prednisone and now am on dapsone, which helps.  I keep wondering about diet and food allergies, esp. wheat and gluten, could they contribute to this?  The blistering can be incredibly painful and this is a really hard illness to live with, I hope I can gain support and advice here, and find other people that have this rare condition.

Tabby

[Gobe]

 

Welcome to Skincell Tabby!

I'm sorry to hear about your condition.  It sounds very painful and must be really difficult to live with.

 

[Fishs]

 

  Hi there Tabby..

 Welcome along to the forum ..

  Hope you will enjoy your stay with us ..

 Yes   not sure if we have members with this form of dermatosis

 Will have a look and see what we can turn up for you ..

 Folk here will be most helpful so hang in there and I am sure  members will respond with some info for  you and plenty of suppot is available ..

   Diet and other allergies could well be adding to your problems so others will follow up I am sure ..

Fish

[GuzziHeroV50]

Welcome to the forum, Tabby.  What you have sounds mighty evil

[Ami]

Hi Welcome to skincell

[lurker]

  Tabby,

  If you suspect you are allergic to something then I would suggest you see your dermatologist or an allergist and get yourself tested.   There are basic ways to do allergy testing - blood test (RAST and patch test.  

  I'm sure others will come along with more advice.  While you're here, take a look around the boards.

  Welcome to SkinCell!  I hope you find this a warm and welcoming place.

  - lurker

[Val]

Tabby,

Welcome to our SkinCell cyber family.

I haven't heard of this type of Dermatosis before either. But don't worry if there isn't anyone else here with it yet as I'm sure someone else with it will find us soon.

In the mean time I'm sure you will find that you will get as much support as you need from our members. We all help and support each other no matter what skin condition we have ourselves, so just join in with us.

I will do a search on your condition tomorrow, but how about you telling us more about it and how it effects you?  We do like to learn as much as we can about these different conditions, and also you will be helping someone else who thinks they may have the same problem as yourself.

I have something called Palmoplantar Pustular Psoriasis, yes another big mouthful like your's.

Looking forward to reading more of your posts and hope you will join in around all the boards.


Val

[kneecapper]

Hi and welcome to the forum. I found the following information on your condition:

http://www.emedicine.com/derm/topic240.htm#target1

http://www.dermnetnz.org/dna.bullous.pemphigoid/liniga.html

The information on these two sites indicates that your condition is drug induced, so I am wondering what other conditions that you might have and what other medications that you are taking.

Maggie

[Monika]

Hi Tabby, nice to meet ya

[Val]

I noticed that too Maggie, but also noted that it can also arrive spontaneously or through lymphoma, haematological conditions, rheumatological conditions, ulcerative colitis and solid tumours.

So I'm also wondering Tabby if your condition just arrived or is connected through one of these other conditions, or a side effect of any medications?

Of course you don't need to answer those question's unless you are comfortable in doing so.

It does look like a very painful condition you have and I hope it's not as bad as some of those photo's shown on those site's Maggie found.

[PaulBeck]

Welcome tabby !  
I haven't heard about your condition, but you'll find much companionship in these boards, and likely some of the 'old timers' have something to say from which you'll benefit.
Later!
K

[peterb]

  Tabby

A warm welcome to the forum.  Plenty of support here. hope you enjoy your stay.  

[Andy50]

Welcome to the forum Tabby

[Nick]

Hi Tabby,

Firstly thanks for joining and welcome

The rarer the disorder, the less the resources available to research.
By you opening up this post you have already started to help find other sufferers, the search engines will pick on this topic and will then feature it when someone searches for the disorder. Plus I have added it to the skincell front page with a link heading straight in to this topic too.
Hopefully others with the condition will search and find the thread, that's how many of the other disorders bring in other sufferers

The condition sounds really uncomfortable to live with.
There's a lot to be said about the link between skin and food. We have members here who have found varying degrees of sucess by modifying their diet, like Monika who is now gluten free because it's a bad trigger for her.
What makes you think that the LIGAD may be linked to wheat or Gluten ? Have you been able to see any improvement or reaction to any change in diet at all ?

Just remember that no matter what, we're here to help in any way we can
All for one and one for all

[scarletgail]

  welcome to skincell tabby

[lurker]

  Tabby,

  As the others are wont to say, you should not feel alone with your skin again as you now have a cyber family to lean on when times are tough, and friends to share news when times are good.


 - lurker

[kneecapper]

  Tabby,

I am happy to know that the links have been so helpful to you. It is interesting that the condition broke out after the birth of your first child. Perhaps there is a hormone link that might be a clue in understanding the condition.

Val has contributed some very useful information about the possible causes of your condition. It seems that there are a few avenues that need research.

From what you are describing I doubt that diet has anything to do with your condition.

Anyway we are here to help and support you during those tough painful episodes  

Maggie

[tabby]

I stumbled onto 2 interesting web sites (hope I am not repeating info you all know):

www.rarediseases.org (NORD)  they have a directory of over 1000 rare diseases

www.aadassociation.org/patientadvocacy.html  (Coaliton for Skin Disorders - they have links to lots of other organizations, even an Infalmmatory Skin Disease Institute.  

[Nick]

Hi there Heidi  

Just remember that SkinCell is all about support and fellowship, not just for the more common conditions like Eczema or Psoriasis but just as importantly for the lesser known and rarer conditions too.

When you registered you instantly became a part of a genuine family of skin disorder sufferers and the forum is now as much yours as it is mine or anybody elses :bughug:
Let's hope that we can increase awareness of LGAD in the process

All for one and one for all

[peterb]

Congrats on your news of having a baby, may you have a good year.  Keep us updated on Baby and Folic Acid.