PPP or Pustular Psoriasis - A Chronicle

[wlginri]

Hey there Tota!
   I just have a few questions about the Biotin. I bought a bottle at the local pharmacy the other day. It's made by Rexall and is 1500 mcg per tablet. So I would need 2 tabs three times a day to get up to the 9mgs. Correct? I had read that here in the States, the theraputic dose for Biotin deficiency is anywhere from 10-30 mgs a day. Also is there a reason why you break up the dosing? Could it be taken all in one dose? I am willing to try this as all of the material that I have read says that Biotin is non toxic and the body will not absorb what it doesn't use. I am at a very mild stage right now so I think this would be the opportune time to start and will let you all know of my progress. Wishing all of you well.
                                            wlginri

[tota]

Hi wlgnri and thank you for responding,
reg. the biotin, if each tablet is 1,5 mg you need 2 tablets 3 times a day. I'm sure that the three times is to make sure you have enough biotin in your body each 24 hrs. I do not know this brand you mention, Solgar's biotin is only 0,3 mg pr. tablet so you need 10 to make 3 mg, (30 tablets pr day) Now's biotin is 1 mg pr. capsule and cheaper and you need only 9 pr day. Do not forget vitamin C. If the patches from Duoderm are available where you live you should try them on you soles, they are probably too thick for the palms of the hand. If I had not had them I wouldn't have been able to walk for months - but as I said earlier they will not heal the PPP but take much of the itch and pain away - and ruin your socks since the thick lining tends to run out when walking.

Like most of us the first thing I do in the morning is to check for new postules, again when I come home from work and constant picking throught out the evening and night. Now I get maybe 1 (one) on each foot every other day and the affected area gets smaller by each month, but do not expect instant recovery, good things happens slow! I'm sure the healing progress would be much quicker if we could have the strains mentioned on the Japanese site. It is funny though that even with this much smaller bad area the itch is not relatively less, it is like a one inch cut which hurts as bad as two inch cut - if you understand what I mean.
Have a good weekend
tota

[wlginri]

Tota,
   Luckily , I have the more severe ppp on my hands and not my feet. Sometimes I think that is a blessing in a way. I can usually get around really well with very little pain in my feet. I am willing to start the Biotin because right now my hands look pretty good and I want to have it loaded in my sytem and see if it stays this way. There is a member here that lives in Japan and I have asked her to research the Doc over there. God knows we don't need anymore charlatans giving quack advice. I hope she can get to him as it sounds like she has a terrible case. Good luck to you and I will keep you posted as to my progress! wlginri

[r.valentina]

Dear all,
My name is Valentina and I am Italian. My sister suffers from PPP. I'm pretty worried about her since she's only 33 and she's beginning to have problems both with her feet and hands! She consulted several dermathologists but, as you probably know, none of them was able to help her!
I'm now serching on the Internet to find some Institute abroad (US or Europe, no matter where!!). Here in Italy there aren't many resources for people affected by PPP. Doctors just gave her some topical remedies.
She had also problems with her tyroid; she's been treating her tyroid misfunction and now it seems to get better.. but soon after having solved this problem she found out to have PPP.
Do you know by chance whether tyroid and PPP are related some way?
Can you reccomend a good Institute in Europe or in the US? Please help me. I'm really concerned and I'm scared she could get worse!! 
If you are not allowed to say any doctors'name, please just mention the country or the city.

thank you!

Valentina

[SF]

vale!!

i'm also italian (half) and don't suffer from PPP, but in the beginning in italy was diagnosed as having it.

i have no idea in which region of italy you are in, but i know of an amazing dermatologist near milan who has helped my skin tremendously, and so far was the only doctor i found in italy who knew something about my condition.

let me know if you need info on my derm

[Gobe]

 

Welcome to Skincell Valentina!

I am quarter Italian.

 

[r.valentina]

Hi Gobe, Hi Spellingflame!
I'm glad to know there are some half/quarter Italians in this forum!
It would be very kind of you, Spellingflame, if you could tell me the name of this doctor. I live in Perugia (Umbria), but I think my sister doesn't matter where the doctor lives, as long as he can really help her!!
Thank you so much!

Ciao ciao
Valentina

[peterb]

Hi Valentina

A warm welcome to Skincell.

Peter and Rosie.

 

[grannyfranny]

Hi r.valentina,
Sorry to say there is not much that will help this kind of psoriasis. I am in the US and have had it for 40 years. I am at my worst right now after trying 2 of the newest drugs for this. My advice would be to save your money unless you are going to travel anyway. Any thing you can get in Italy will probably help as much as any thing here.
Granny

[SF]

valentina, i've sent you a IM with the info of the doctor.

Gobe, i didn't know you were a quarter italian!!!

[Gobe]

valentina, i've sent you a IM with the info of the doctor.

Gobe, i didn't know you were a quarter italian!!!

My grandfather ran away from home because he told me that he believed the pavements of London were paved with gold!  He told me this when I was a child -- I lived with my grandparents and father.

My grandfather was Italian and came to this country before the first world war.  He arrived in London and met and fell in love with my grandmother.  The whole family then moved to Scotland after my great grandfather lost his leg in a horse and carriage accident.  They started a fish and chip shop then later an ice cream shop here.

 

[SF]

wow, that's quite the story Gobe! that's so cute your grandfather thought the streets of London were paved with gold...!! he must have been shocked when he actually got to london!

[deelynnd]

Hey all,
Not sure if anyone is replying to this particular forum lately, but...I was diagnosed with palmer planter psoriasis and would appreciate any help.  Paul, your suggestions look good.  I've tried Cordran tape and a compounded gel so far with no relief.  I can't stand the itch and pain.  I have crohn's disease also and may go back on remicade infusions, which may help (I hope!).  Have you heard of anyone getting this from remicade?  I never had this until after my 4th remicade infusion.  Thanks for any help!

[huggy2177]

Hey everyone,  New here, my rash started out back in 97' mainly, I gotten a heat rash when I was little on my hip but used cortizon and it went away.  Well back in 97' I started getting a rash on my arms and legs, I was in the Army stationed in Germany, at the time and I went to the doctor to find out what was wrong, at first it was little red pin dots in patches on my body and then they got bigger more then the size of a hand I mostly felt it went I ran the burning sensation.   They put my on some creame and kinda help but didn't cure it.  After my tour in Germany I came back home to Montana my mom has had some skin rashes and she made me an oatmeal soap bar and we used vinager, and that cleared it up pretty good it wasn't that red anymore just very light pink and didn't burn.  Well my next duty station was in Kansas not two days I was there I broke out with my rash again really bad.  They sent me to the Derm's office and he recommended light box treatment.  It helped in some way but did not totally clear up but it kept it at bay.  Well after my time down there I came back to Montana and started working outside in the sun doing landscaping and I barely had any out breaks on my arms and legs mostly on my hip area but I could live with that cause it wasn't that bad.  My mom and I were thinking it was the  climate I was in that is why I broke out cause I wasn't use to that.  Well back in Apr. of this years I got a job as a cashier, my feet started itching, at first I was thinking athelets foot cause i was getting little red dots by my toes.  Then I started getting little bumps on my feet and everyone I talk to said you get those from standing on your feet all day so I didn't think nothing of it, well I had to go down to Missouri for a couple months to train and my feet started getting worse, so I went to see a Derm and found out I had a fungus on my feet and something else well got rid of the fungus and that helped walking a little better but my feet still were red and had bumps on it so he gave me some ointment, well that didn't work to well so I started using aloe which helped alot, better then the ointment but  by this time my arms and legs started breaking out again because it was hot and I had to run in the morning which was making me sweat.  During this time I could still walk and run little sore in the morning and at night but i could get around pretty good.  Well I get back home and my feet still hurt and started looking worse, then my rash started getting worse on my arms and legs.  It was getting to the point were I could barely walk, well I don't have insurance so I don't like going to the doctors but my wife finally made me go.  Well by this time my hands started getting little bumps also and a couple blew up into a open sore and hurt when I used them, and being a cashier and handling money is kinda hard when you have sores on your hands but I dealt with it.  Well I finally got into the doctor and my feet were so bad they had a greenish tint to them, which was fungal, I was starting to get a staff infection on my ankle so they were sore and tender to touch or just walk on them and my feet had open sores on them.  Well the Dr. precrbed some antibotics and in a couple of days I could walk pretty well, then I lost them, but I called the Dr. and told her and I was on them for 5 of the 7 days and should have worked.  I'm thinking I was fixed upped, boy was I wrong about 2 days after my antibotics ran out my problem came back again a little worse but not the fungal problem I just started breaking out with blisters on my feet little small ones.  Well then Dr. prescribed me some steriod cream I used it for a 2 days and called her back it because it made them worse instead of little white blisters the size of a pin head they got to be the size of a nickel to a quater which made it hard for me to walk.  The Dr. put me back on antiboitics which started helping again I could walk and everything again, did the whole 7 days and then I had to goto a military drill for the weekend, that is when I ran out of antiboatics.  Well my fungus and my feet exploded, I could barely stand on my feet let alone walk.  After that weekend I went into the Dr. well she said she would give me more antibotics untill I could see a Derm.  By this time I was just putting lotion on my feet, sometimes aloe and I was able to walk but my hands were breaking out really bad so I had to wrap my hands just so I can work.  Well the day came had to get up early I work swing shift so I don't get up untill 11-12 in the afternoon.  Well I went in my feet were a little sore but not the bad.  He diagnosed me with psoriasis, which was kinda nice cause the other derms I seen told me exzama, impetigo, rosacea, or something else so I'm thinking he probally missed diagnosed me just like the rest of the Derms I have seen (now you see why I hate doctors).  Well he didn't want to see my feet, and he looked in my wraps and say one of my blisters on my palms its about half the size of a penny with other littler ones.  Well I had to goto work that days and my feet started burning really bad.  So I took a break to see what was the problem and its like barley 30 degrees outside and i go out and take of my shoes and socks.  Well steam starts rising off of them like they just came out of the oven.  Well I get my new cream and put it on well my feet felt pretty good till I tried walking on them and I had trouble walking again.  I just dealt with it like normal and made it through my day changing my socks twice cause my feet sweat and that is when I break out.  But putting the cream on didn't feel like it was helping.  Durning the day I started talking to people expecially this one guy and told him what the Derm dianosed and he told me he has that.  Well I asked him did he get the rash like this and I showed him my arms then I asked did he get blisters on his hands and feet and he did.  So I started thinking maybe the Derm wasn't a quack at all.  Well I got home last night and decided to look up psoriasis on the net, (gotta love the information super highway) and found there are different types of it.  Well to make a very long story short I have just about every different type there is even the most uncommon one.  Right now my scalp in broken out, my face around my nose area, my back and my stomach, not my chest (only part not) my arms and hands, my groin area, my hips my legs and my feet.  I have to agree on the whole some days you just want to cut them off cause they hurt so bad, but if I did that I would have to change my name from Huggy2177 to Matt LOL.  The way I am kinda dealing with it, I use a cane to get around, takes me about 5 mins to goto the bathroom and its only 10 feet to 20 feet away depends on where i'm at and wearing fingerless gloves.  I have been washing my feet either in the tub or i have been using baby wipes just to clean the clear fluid away, and to get my socks off.  I had to take today off from work cause I can barely move, and since i was home I thought I would find some info on what seems to be working.  Well if you gotten that far thank you for reading my bio on my rash.

[Jes.s]

  Welcome to Skincell Huggy. So sorry to hear about your skin troubles. You found the right place to be. There is so much info here, I'm sure you will find something that will help you. I have ppp and this site has really helped me. It's a hit or miss thing finding something that will help you but there are plenty of things to try, even if it's just an oatmeal soak to soothe the savage beast. Right now my latest thing is tons and tons of cocoa butter on the feet. They look better than usual. My derm reccomended Crisco instead because it's less expensive and there aren't any perfumes in it and when your not using it on your skin you can bake with it !!! I might try that next but I'm likin' the cocoa butter right now. Good luck Huggy, I'm sure you'll find some great info and help here.

[wlginri]

Welcome to Skincell Everyone!!!

Happy to have you all but sorry you have joined our ranks! Here you will find some great advice and a wonderful support system! Don't be shy! Join in!

I have had ppp for about 2 years now. A lifetime to me! There are people here who have had it much longer and can offer you all many different treatment options. Believe it or not, right now I am having a bit of a remission and couldn't begin to tell you why!! I use lots of moisturizer a million times a day and to be honest with you, I treat the ppp like a spoiled child. ( the more I ignore it, the better it seems to behave!!) I also found that when I am having a flare, I apply steroid cream and wrap it in cling for about 2-4 hours a day for 2-3 days and that seems to put a leash on it. Be careful not to over do on the steroids as many of you have found out the hard way that too much can make it even worse! Less is more I think!!

Good luck to all of you and Welcome again!   wlginri

[erol1234]

well i have been using methotraxate for araound a year and it fixed psoriasis good but i dont want to get addicted to a pill for whole of my life so psoriasis should be cured in a more natural way like herbal stuff or therapy maybe. i had tried these 40 million times or sth like that but nothing was as curefull as methotraxate.

[Barbara 714]

 Oh good god, am I glad I found this forum.   For two years I have had this crud on feet and hands; one foot worse than the other. I mainly only do the light therapy. I also know it is a auto immune disorder and will try some of Paul's Garden of Life products.  I read about slippery elm bark and have taken this. Now I have a friend in Auyverdic medicine and she suggests neem and turmeric which is on the way to my mail  box at this moment. These are to cool down the hot system.  I do get depressed and cry because as you all know it is an every day thing and I use to walk 5 miles a day and now I  just moisturize, use the stone to rub off the dead skin. Also the first three diagnoses were wrong, wrong, wrong. You really do have to look out for yourself.  Mostly my blisters are gone now and I am just dealing with the red skin and dry flakes and cracks. Good god the cracks just happen instantly and my skin is so soft. The dr. gave me some stuff that seems to get rid of the dry scales. I read we need to go to the dead sea and soak in salk water and let the little fishes eat off the dead skin. Well, anyway, good luck to all of you. It sucks a lot.

[electric_ian]

Hi Barbara and welcome to skincell
Ian

[Gobe]

 

Welcome to Skincell Barbara!