5 weeks of relief!

[dpalmer]

5 weeks and counting!  Every day I wake up and check my "areas" for signs of a new "bump".  NOTHING so far!

I began using a concentrated form of Noni Juice called "NitroFX".  
I take 2-3 droppers full, 2-3 times a day.

When I began taking the Nitro, I had a "severe bump" in the beginning stages under my right arm.  2 days later it had reduced to a fraction of the size and never surfaced.  Within 4 days it was gone.  Since then, 5 weeks now, I have had not ONE incident of anything new, or any of my old "bumps" resurfacing.

I am VERY excited to think I may never have to deal with my HS again.  And at the least......I can finally "breathe" between flare ups!

I'll keep you posted!

Regards,
Denise

[Celery Peach]

  Hi dpalmer

I'm so pleased that you have found something that works for you.

I also have HS   I have done lots of research and am involved in many HS groups and havnt heard of any known cure so far. Can I ask you which stage your HS is and how the NitroFX works ? Please excuse my sceptacism, but I'd like to see the medical research.

[dpalmer]

Hello,
I'm not sure I would say, at all, that I've "found a cure".  I know that I have experienced relief.

I have suffered with HS for 9 years.  First 2-3 yrs in my groin area solely.  The last 6 years in my armpits and under my breasts.

I've been on anti-biotics for months on end, I've had surgery, and I've tried anything and everything regarding diet, clothing, soaps, deoderants, etc., etc., etc.

I would generally have 1-2 "bumps" consistently that were at best, bothersome, at worst, "full-blown".  I would ALWAYS have 1-2 severe cases during my menstrual cycles.

As for how the NitroFX works.  First understand that NitroFX is a "concentrated" form of Noni Juice. Noni Juice is derived from the Morinda Citrofolia plant.  
Morinda citrifolia grows in many different parts of the world in mainly tropical
environments and produces a strong-tasting fruit that has innumerable health
benefits. It is the most widely used botanical herb in Polynesia.  You can learn more about the plant and research at:
http://incc.org/cgi-bin/mhtm/incc/research_links.htm

The active ingredient is Nitric Oxide; a biological gas that acts as a signaling molecule to help regulate many functions of the body.
You can learn alot more about Nitric Oxide at these reference links:

www.wxumac.demon.co.uk/;
www.nsf.gov/od/lpa/news/press/00/pr0047.htm;
www.ucl.ac.uk/medicine/clinical-parmaco/research/;
www.research.ucla.edu/chal/25.htm;
www.nobel.se/medicine/educational/poster/1998/;
www.ucihealth.com/news/releases/1222298bp.htm; www.ucihealth.com/News/Releases/nitricOxideAndBloodPressure.htm;
www.umaine.edu/research/UMTBreath.htm

It was introduced to me as a solution to help me manage my blood sugar and overall immune system.  I didn't initially even THINK about my HS and NitroFX.  It has helped my blood sugar, making it more stable.  It has helped me sleep restfully and I dream now for the first time in years.  It has completely eliminated my sinus/allergy symptoms AND, I have more energy than I have in years.  It's not a "nervous" energy either...it's just an "I don't need a nap, or chocolate" in the middle of the day type energy.

But, the one thing I didn't even intend to take it for, my HS, is BY FAR, the best benefit of them all!

So, that's some additional information and resources.
I hope this helps.

Regards,
Denise

[Nick]

Denise,

As I understand it the use of Nitric Oxide as a therapy in itself has been nominated for a number of conditions although I have not managed to find any clinical trials that indicate a positive response in HS sufferers.

I noticed that you quoted NitroFX, (and it's only fair to advise members that you have a business that markets that product).
On examining the details for the product I noticed that it incorporates Nitric Oxide, fine I don't have a problem with that, but can you explain to me please the differences between NitroFX and regular, common or garden Nitroglycerine which can be bought off the shelf at any high street pharmacy and for a fraction of the price.

[Celery Peach]

  dpalmer

Thanks for being so patient with me   I truly am pleased that it has helped your HS  

I checked the links, and none of them relate to HS,  and all I can find about Noni juice is pretty dodgy. I just like people to see the full picture.

http://www.helsinki-hs.net/news.asp?id=20010417IE7

I also found this from DietFraud.com
------------------------------------------------------

 
   They can't claim health benefits - but they do anyway


"Cure All" Beverage Marketed without FDA Approval
California Attorney General Dan Lungren announces multi-state settlement with Morninda, Inc. Under the terms of the agreement, Morinda will:

No longer make drug claims, or claims that the product can cure, treat, or prevent any disease until "Tahitian Noni" is approved and cleared for those uses by the U.S. Food and Drug Adminstration.
Not make any other claims, whether health claims or others, regarding the benefits of "Tahitian Noni" unless such claims are true and the company can substantiate the claim by reliable scientific evidence.
Not use testimonials which imply that the advertised claimed results are the typical or ordinary experience of consumers in actual conditions of use, unless Morinda possesses and relies upon adequate substantiation that the results are typical or ordinary.

New England Skeptic's Society views on Noni
Tahitian Noni Juice is just the latest in a long history of snake oil remedies. This movement, like those before it, has all of the features of a quack remedy with a contemporary flavor. I will review the characteristic features of the marketing of such quack remedies and indicate for each characteristic how the Noni-juice phenomenon fits the mold exactly.

Temporary Ban on Sales of NONI Fruit Juice from Tahiti
In its decision (E 27/216/98) of 28.11.1998, the National Food Administration has banned the importation, exportation, trade stocking, offering and all other supplying, of the fruit juice marketed under the name of NONI until such time as the brochure which must be supplied in conjunction with sales, and other information, has been corrected in accordance with the Food Act and the regulations legislated on the basis of this Act.

Spam Victim Collects Damages
in Out-of-court Settlement against Morinda - If Noni juice internet promoters are really ******* ( Ed Bot! ) you off, then you can collect $200.

Testimonials

Secret World of Noni
Toronto Star feature article - (August 6, 1999). Phil sykes, the general manager of Morinda Canada, believes drinking Noni relieves the pain he still suffers in an ankle he broke three years ago, makes his fingernails and hair grow faster, and allows him to sleep better.

So, why did the government of Canada only move to change the labeling on Tahitian Noni that is shipped into Canada? So far there have been no charges made against anyone who sells the stuff in Canada for saying it can be used to treat specific diseases.

This article gives boost to noni juice, and fails to provide the reader with any internet links to sites that challenge noni.

A Nurse's Testimonial Page
Morinda Inc. and its distributors make no curative claims about Tahitian Noni Juice. But, as an Independent Morinda Distributor, Jeanette Komsi would like to share just a few of the testimonials provided by people just like you. It is extremely exciting to see people get outstanding results, especially when other health products haven't helped.

One Noni Salesman's Testimonial List

Christian Brothers - We Stand on the Word of God
If you want an excuse to control the internet, this site is one good reason.

Companies

Morinda

The U.S. Women's Soccer Team to Attend their Convention

Polynesian Natural Health Products of Tahiti
"Thousands of people testify to the health-promoting and restorative qualities of noni juice and have found dozens of ways to use it." - Funny - they are headquartered in California and Utah.


Noni Juice Bulletin Board

Big Island Noni
Noni has been shown to improve bug bites, skin disorders, joint and circulation problems, arthritis, and canker sores. In 1992, the American Association for Cancer Research found that Noni juice stimulated the immune system and thereby retarded cancerous tumor growth. ( OK - so who are these researchers anyway and were these cancer tumors in a test tube?)


Maui Noni
Is it a miracle? NONI has been used to treat Diabetes, Heart Trouble, Asthma, Cataracts, Colds, High Blood Pressure, Kidney Disorders, Digestive Problems,Comas,Colds, Breast Cancer, Depression,digestive, Migraine, Sleep, Stroke, Tumor, Infections, Gastric Ulcers, PMS, Prostate Cancer, Bone & Joint Problems, Cancer, Fevers, Arthritis, Menstrual Cramps, Chest Infections, Sinus, Skin Problems, Internal Disorders..and the list goes on and on: TRULY an amazing product.

It's beginning to sound a little like a replacement for spinal manipulation, eh? A cure for all diseases? Why are native islanders stricken with many of those diseases. You would think that they would be one of the healthiest people in the world.
----------------------------------------------------

And heres a link to a discussion about it here on the forum

http://www.skincell.org/yabbse/index.php?board=4;action=display;threadid=2063
 

[dpalmer]

I was warned!  I was hesitant to even share my experience.  I asked the advice of one of my friends who is a frequent bbs user.  She told me to "be careful", alot of folks on those boards don't want help.  I thought that was strange and opted to share anyway.  Well....it appears she was right on the mark!

Yes, I made a mistake in providing "too much" information on my first post.  Nick immediately removed it.  My only intention with that was to provide the "details" of the product and the background.  I apologized and re-posted.

Yes, I made a mistake in not "disclaiming" front, back, side and inside-out, my experience.  But I DID NOT make any claims or sales pitches.

I NEVER claimed it to be a "cure".
I NEVER said it has been "studied" for HS specifically.

All I said was that I was originally introduced for an entirely different health issue and found that in addition to helping me in those areas, it had "seemed" to relieve my HS.  I even said it had only been 5 weeks and I would keep you posted.

I did not post the information here, or anywhere else, to generate sales.
I am doing just fine in the sales department.
I DID post the information in the hopes that someone, even one other person might find some relief from this awful disease.

I am not responsible for "misleading claims" made by an entirely different company and an entirely different product.  Noni Juice is NOT what helped my HS.  Noni Juice is sold by probably hundreds, if not thousands of companies worldwide.  

I am not a doctor.  I DO know enough though to know that Nitroglycerine is a chemical.  It too produces the Nitric Oxide which is the active ingredient that is good for our bodies.  But our product is COMPLETELY botanical.  In addition, Nitroglycerine is for VERY specific purposes and has very serious side effects.  NitroFX does not.

Beyond that, I feel it would be a complete waste of my time to explain anything further or provide any more information.  I didn't share what I did to be "interrogated" or told that I could not "peddle" my wares.

Either your interested, which you can contact me direct for information, or you're not.  Maybe it is all about keeping your disease and having something to talk about, and less about finding something that will actually give you some relief!  Imagine that!

Denise Palmer
enlivenpalmer@hotmail.com

[Celery Peach]

 

I'm sorry you feel that way Denise. I dont want a slanging match. I am fully aware of your first post, as I read it before it was removed. And yes, I feel in my opinion that it was a sales pitch, I checked the links.

You cant deny that it is a big coincidence that you are selling this product, and you did refer to it as a Noni Juice concentrate.

I was simply putting forward my research on Noni juice for people to decide for themselves.

I assure you I would love to have a cure for HS, I have a lot to talk about besides my illness, check any thread on this forum.

I wish you good health Denise, I mean it, if it has helped you then I am really pleased for you.

[Fishs]

 

 I agree with you totally  Celery ..

 This stuff crops up from time to time  Noni or Marinda , what ever you wish to call it ..

 I have replyed to and posted on the validity of it a few times here  and  as you will most llikley recall I was also asked to do an article of the stuff. I wish I could find the thread ..  I refused to do the article after months of research  during which  Not once checking appx 30 different brands of the stuff which made all sorts of claims could any company provide me  any scientific evidence  that   any of them were factual proof the stuff would be any good for anything .. I also had the product analysed  by the  TGA approved govt Lab in Sydney and the results confirmed  what I found ..

 It is no more than an over priced juice ..

 Celery . I won't be as subtle as you .. I Know there are millions of these marketing coys flogging this stuff   and you can find  many more tied up in the  promoting of Non and as with them all the user price is way over the top so that the punters end up paying for the down line bonuses etc .

 I don't often take anyone to task here as most will know ..

 However I feel Denise this is a pretty blatent  advertising thread  not in keeping with the conditions or spirit of the forum..

Sorry If I appear a bit harsh here  But thats the way I read Things ..

Fish

[Kronic]

sorry i am new here, what is HS ?  

[Monika]

 It is no more than an over priced juice ..

<cut>

 However I feel Denise this is a pretty blatent  advertising thread  not in keeping with the conditions or spirit of the forum..

Sorry If I appear a bit harsh here  But thats the way I read Things ..

I agree Fish   ... and the Noni sellers seem to be everywhere.  

[Celery Peach]

  Hi there Kronic

Firstly I'd like to say Welcome to Skincell  

A basic description of HS can be found here

http://www.skincell.org/hidradenitis_suppurativa.shtml

Celery  

[peterb]

  Kronic

A warm welcome to the Forum

[Fishs]

 

Hello There Kronic.

Welcome along to the forum..

Celery has given you the knowledge link for HS ..

She is the  expert on this one..

Fish

[Gobe]

hi:Welcome Kronic!

I agree with Fishs - what low levels some people will sink to and all so they can make a buck.  Ill gotten gains if you ask me.