Author Topic: desperate for some soothing solutions  (Read 3989 times)

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Offline alwaysitching

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desperate for some soothing solutions
« on: Thursday January 21, 2010, 02:23:48 AM »
I'm new here, but I am NOT new to eczema.  I have had it all my life (44 years) I have seen it come and go in waves, at times bad, at other times manageable.  Most of the time in the past, I have been able to tie my outbreaks pretty directly to contact allergy issues or stress.  However, I am currently in a flare cycle that I can not seem to tie to any specific trigger.  I have dry, flaky rash on my entire forehead, alternatively oozy and flaky rash on my eyelids, burning/itchy red rash on my cheeks, the creases at the sides of my nose, and around the base of my ears, behind them and on the lobes. My lips are chapped almost constantly. My shoulders, top of my back, and just above my hairline are so itchy at night that I often find myself waking up from the scratching in my sleep, and then the itchiness it's-self keeps me from getting back to sleep.  My forearms are broken out in a way different than what I usually think of as eczema, but the dermatologist that I saw before I left Portland, OR, last summer, was very dismissive that it might be something else going on, she just said eczema manifests it's self in many different ways.  I am suspicious that I also have some yeast involved here, and also wonder if my forehead might be psoriasis, rather than eczema, has anyone ever heard of someone having BOTH?!?! 

I am considering doing a colon cleanse and getting on to supplements, I feel that all the creams and lotions just mask the issues, and only provide temporary, if any relief.  I would like to get to the bottom of what is causing it for me.  I know that there are different triggers for every individual, and what works for one person might not work for me, but it seems to follow that providing my body with a chance to be as healthy as possible, and supplementing in a way that supports skin health would be good steps in the right direction.  I'm considering using the supplements from MerryClinic.  I'de like to hear from people, as to whether anyone has tried them, and what their experience has been with them.  We lived in Thailand for several years, and I know that there is a lot of validity in Chinese medicine practice and it is a much more whole-istic approach, taking the entire body into account, not just the skin, or even just the particular part of the skin that is currently effected, as medical dr's and specialists tend to do. 

I wonder if anyone else has found relief from doing colon cleanses, and supplementing.  I'm not saying I won't continue to use lotions, but I'm finding that the last rx cream (elidel) is not really making that much difference any more.  I wouldn't mind going back to momestasone (sp?) that I used to use on a scrip from my GP Dr. years ago - but I have not heard anyone else talking about this one on here, so, maybe it is not being used any more.  The other 'ointment' that is so popular, I dont' remember the name, it starts with a p.  I can't use it, because of my allergy to petroleum products.  I'm at my whits end, and really need to find some solutions soon.

Oh, also, we have no insurance, and I have had pretty bad experiences with the last two Derm.'s I have gone to, so I'm gun shy about trying to go to another one, I don't want to be talked down to, and treated like an idiot.  I need a Dr. who will treat me as a team member and help to educate me about my condition, and work together with me to get to the bottom of what is causing this, and get it to settle down. 

So, My questions:  Does anyone know a GOOD dermatologist within an hour or two of Huntsville, AL?
Does anyone have any experience with colon cleansing helping out with eczema?  What about MerryClinic supplements?  What about Momestasone Furoate?  Has anyone used that cream, why is it not talked about much any more? 

Also, is there something that will immediately take the burning itching out (besides cortisone) when it awakens me at night? And something that will take the red angry looking patches off my face so I can go out in public without feeling like everyone is staring at me. 

Right now my flares are coming about every 6-8 days, with only about a day or two of 'normal' skin inbetween flares.  I can't live the rest of my life like this, and if it continues to get worse it just might drive me over the brink.

Oh - also wondering if the blood test type of allergy testing is that accurate.  I had my allergies tested about 25 years ago, and my upper arms, where they had put the bubbles under my skin, itched intensely for MONTHS after that.  And also, if getting desensitized to my food allergies and my contact allergies would likely help - has anyone had good experience with being desensitized?

Sorry so many questions.  I'm really at my whits end and I'm needing to find a path to trod down, with the hopes of finding a solution soon.  I'm going nuts.


Offline Tsubaki

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Re: desperate for some soothing solutions
« Reply #1 on: Friday January 22, 2010, 08:31:59 AM »
Hey alwaysitching,  o/

I've heard from people that colon cleansing (hydrotherapy?) brings them so much relief and health benefits on several things. One of them is eczema, other more common ones are things like headaches and such. Since it's cleaning out all your toxins in your digestive system, it should be good on your general health.

I've also heard a salt bath helps the itching, but I'm not sure if this works for everyone. I've also heard that coconut oil can help soothe the dryness of the skin. You can buy this at organic shops and such, I think.

Others have said that a sea and surf holiday helps their eczema (swimming in the sea) - it helped mine.

Good luck in finding something that helps! :)

Offline itchychick

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Re: desperate for some soothing solutions
« Reply #2 on: Sunday January 24, 2010, 07:21:54 PM »
Hi alwaysitching,

Personally, I put absolutely zero stock in the idea of colon cleansing.  It seems ridiculous to me.  Having said that, I have tried altering my diet to help relieve my eczema, but to little avail.  I think it's normal to go through cycles of bad and good periods, and one's overall health and stress definitely play a role, so obviously reducing things like stress and keeping yourself fit and healthy can only help. 

As far as allergies go, I think allergy testing is not as reliable as we'd like it to be.  I think you can have sensitivities to foods and environmental triggers that are not picked up with allergy tests.  You sound like you are pretty attuned to your triggers, so I would go with your instincts if you notice that certain things make you itchier.

As far as psoriasis and eczema, you can absolutely have both at the same time.  I know some of the members here do. 

For me, things like baths help relieve the itching, and coconut oil is a very soothing, mild moisturizer.  The thing that has kept my eczema under complete control this winter is a prescribed product called "Derma Smoothe"  It is an oil containing a mild steroid.  I put it on after every shower (whether I have an active outbreak or not), and then moisturize with regular moisturizing cream.  When I ran out a few weeks ago, I started getting the dry itchy patches again within a few days...

Good luck with your quest and finding a new derm!

Offline alwaysitching

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Re: desperate for some soothing solutions
« Reply #3 on: Wednesday February 03, 2010, 01:04:20 PM »
well, I have not done the colon cleanse yet, I probably still will at some point, just because my gut seems rather sluggish and seems it needs a kick in the pants.   But I seem to have found what a major trigger was for me.  I got up one morning to relatively clear skin, had breakfast and came back to the bathroom to find that I had red blotches everywhere.  For some reason, I realized at that moment that the Orange Juice that I LOVE for breakfast on the weekends might be aggravating things.  So I dropped it out of my diet. I'm less than two weeks into that (I usually only drank it on the weekends, so only one weekend, so far, without it) and my skin is like a baby's bottom!!!  I'm so excited!  I also took a Oatmeal bath in which I not only put it in the water, but also make a paste with it and smeared it on my worst affected areas.  And of course I've been lubricating and I also started using a new prescription cream.  So I don't know for sure which one it is, but I'm pretty suspicious that the citrus was a MAJOR trigger for me.  The cream did not enter into the picture until I was already on the healing path, so I think it has just sort of helped things along in the direction we were already headed.  Anyway.  I have found relief. THANK goodness.  I could NOT have faced a life where the rest of it was going to be like what it has been the last few months, and possibly gotten worse over time...  I can totally see why this condition can drive people NUTS!!!

Offline Bamawing

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Re: desperate for some soothing solutions
« Reply #4 on: Thursday February 04, 2010, 08:48:56 AM »
So glad you found relief!!!
I'm more confused than a mood ring on a paranoid bipolar schizophrenic chameleon in a bag of skittles!

Offline Dustbunny

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Re: desperate for some soothing solutions
« Reply #5 on: Sunday May 02, 2010, 07:53:03 AM »
I under went skin testing about the same time as you did, skin testing and food allergy testing is not the same.. with food testing I had to start off with taters only, lamb, and slowly bring food back.. as long as I didn't have an reaction, I was good.. a reaction, then I have a allergy to that food.
In the last 25 years, food allergy testing might have became better, I was told their is now a Blood test for food allergies (I don't' know much about it)

My Eczema has been flaring on me also pretty bad the last 6-9 months.. I am sure stress plays a roll in this, and so does heat for me, in fact it has become so bad, they (reg Dr) has me on 4 months of Prednisone 20 MG

I have an apt to see a dermatologist on June 23rd.  This will be a new Dr for me, the last one I saw was 5-6 years ago, and He was a butt, not only did he not listen to me, he pretty much didn't care at all.. I can't use a petroleum based ornaments or a 99.9% of lotions. and he gave me topicort Ornament!
needless to say I didn't go back, nor did he ask me to come back.
before that time in the 80s I had a wonderful dermatologist, love that man and he really cared about skin..

I can only hope that this new one is a good one!!

Good luck in fining a dermatologist in your area.. could  you call and ask if the Dr treats other cases of people with eczema?

Offline BritK

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Re: desperate for some soothing solutions
« Reply #6 on: Friday June 11, 2010, 12:16:29 AM »
I'm going for an allergy test in a couple of weeks- it's £45 at a health food store. I just need to know if there is anything that I'm eating that is causing it. I eat a very healhty diet- no e numbers, organic vegetables and fruits, no junk food etc, but maybe there is just one food item that is making this flare up that I don't know about.
I know that milk makes it worse ( became vegan a few months ago ), petting dogs and I suspect dust aggravates it.