Hi all, just received some info from the NPF, in part:
Breaking news: The House votes to appropriate $1.5 million for a psoriasis patient registry. Thousands of psoriasis advocates celebrate nationwide.
On Friday, after months of effort by the National Psoriasis Foundation and its network of 55,000 advocates, the U.S. House of Representatives appropriated $1.5 million to begin the first psoriasis patient registry at the Centers for Disease Control and Prevention (CDC).
This is great news for those in the USA.
The email addy is: National Psoriasis Foundation <
advocacy@psoriasis.org> and there should be a link headed patient registry, or similar.
Jane