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Author Topic: Hello all - new here  (Read 267 times)
casper18
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« on: Friday May 29, 2009, 12:29:43 PM »

I may have jumped the gun in another section...sorry!!



I was diagnosed with JRA when I was 10. In June/July 2006 I noticed very tiny (pin sized) whiteish "blisters or pimples" on my left palm. Nothing big, not noticeable by anyone - even myself unless my hand was practically in my face. They would pop - I still thought nothing of it.
By November it was a little worse - so I went to a derm who told me i'd need a skin graft? I left and never went back. This past summer 2008 - I noticed it was getting worse. I would soak in Sea Salt and it would dry it up but by the end of the summer I realized I needed to see a derm again. She has done everything for me...biopsies, ointments (dovenox, clobatesol, vectical), steorid shots in the hands, oral steroids (which is a definite temporary fix! My biospy came back and she said it was some under the hand excema. But by the end of Sept - it progressed onto my feet. There are some days I don't even want to walk it hurts so bad. I now have it on both hands and both feet...my feet being the worst. I asked for a second opinion and the second derm said it is not eczema but rather psoarsis. So for the past 7 weeks in the morning I put Vectcal on hands and feet - and at night they get clobatasol followed by Coal Tar and cotton gloves and socks. Although I have to say I now can go maybe 8/9 bad days followed by one or 2 days where I look "normal" - its still not good b/c when its bad its bad. I have one pair of shoes i can wear to work - and when I'm home its socks and slippers. If i go out Uggs are my best bet, even though they hurt. I also limp alot - which causes both ankles to swell (esp. my left one where I had a nodule removed when I was 16 due to my JRA).

I get the white "blister/pimples" - and sometimes they annoy me so yes I pick at them - and the inside gushes out...on my feet they are deeper and will leave deep holes until the next day...if I leave them alone they seem to "dry out" and turn like a dark redish color.

My ring finger nail is "pitting" I assume....but just on the one side - I think its growing in ok now.

Two weekends ago I went to an Infectious Disease doctor - who said it def. looks like psorasis, and believes its related to my Rheumatoid Arthritis...but had to do TONS of blood work to rule out every type of disease and virus (which has me more scared than anything) first.


I'm so embarassed - there will be no summer for me if I can't control this -I don't like shaking peoples hands at work.


Reading all of your stories is helping me realize I'm not alone. My friends have accepted me and tell me to stop being so silly that I'm the only one who notices...HOwever, this is the first summer where it is so bad - that everyone will notice it. I love winter b/c I wear long sleeves and just kind of pull them over my hands and obv. my feet are covered!

Now I'm sitting and waiting still for my blood work results - called yesterday was told "i have to come in to talk about the findings" the girl on the phone was not allowed to give me any results.
I've been a nervous wreck for 2 weeks - can't sleep - pains in my stomach, my heart aches...They tested for every disease/virus known to man - trying to rule things out...If it was that life threatening/serious - wouldn't they urge I come in ASAP? b/c she was throwing out dates next weekend for me to come in etc...she didn't make it like I had to come in today...Please help b4 i drive myself nuts!
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totalfolly
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« Reply #1 on: Friday May 29, 2009, 02:23:40 PM »

Hiya, casper18, and welcome to SkinCell!

Try not to worry too much (easy for me to say, I know).  I don't know of any doctors who will give results over the phone these days, but it does make for some anxious times.

totalfolly
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casper18
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« Reply #2 on: Friday May 29, 2009, 03:53:33 PM »

thanks totalfolly

i'm hoping its just b/c the med. assistants cant help with anything
and its nothing serious

if it was really serious - in anyones experienece - don't you think they'd try to rush me in?
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Uncle Matt
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« Reply #3 on: Monday June 01, 2009, 02:11:46 AM »

Hey Casper!

Hope you are OK!

A lot of what you're saying is sounding familiar to me, but there are also bits that don't.

If there is a lot of itching, try a dab of apple cider vinegar.

It may help, it may sting a bit, or it may do nothing at all. It helps me a lot if my feet start tingling. I just dab some on with some kitchen towel, and all the itching disappears for a few hours.

Matt
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The early bird gets the worm, but the second mouse gets the cheese in the trap
Eagles may soar, but weasels don't get sucked into jet engines
The Doppler Effect - Why bad ideas seem good when they are coming towards you at high speed. Don't rush things!!!
Wooley
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« Reply #4 on: Wednesday June 03, 2009, 03:30:02 PM »

Hi Casper  Hi there

Welcome to the forum and I am sorry to hear how your psoriasis makes you feel - I can relate even if mine is mild but I always worry what other people think of my patches.

I know this will sound odd but I quite envy your tests for everything - I'd much rather know what I am dealing with than not. I suspect that it is standard practice to get you in to talk about results though. Try not to worry too much or your skin will only flare more.

Take care and best of luck.

Wooley
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