blood clots

[mnm mom]

   
Well Hello All,
Sorry it has been some time, but on Saturday April 11th I got up late and sat down to eat breakfast with my youngest. When I had what we thought at the time was a heart attack. Sudden crushing chest pain, could not breath, could not move and started to pass out. Well to make a long story short, I have blood clots in my lungs, and one of them moved that Saturday morning. Since then I have been in CCU. I have too many blood clots to count all in my lungs. They are testing all the other places they come from every day to find where they started from, but with no luck. The Dr's. ( I have 7 ) I see everyday keep saying the same thing. You are in the best place for you right now and we will figure this out before we send you home. Since I have gotten here I have had four clots move, let me tell you this it is no fun. People come out of nowhere, they hook me up to way too many machines ( not that I don't have enough now ).
My nurse just came in and told me to stop, it is too much work for my heart and lungs right now. Well she and all her machines say I can type for a few more minutes.
So for the last three months I have been telling everyone I can not catch my breath and I have pain in my chest. Well now we know why.
The Dr's. hope this will get better over the next year
When I do go home I will have to have a live in home health aid for awhile while I get better. I am not aloud to drive, well I am not aloud to do anything, I will have a nurse come to the house to start 3 X a day and then work my way down to none, but the Dr's. can not tell me when that will be. The nurse will do all my blood work ( I now have it taken every 8 hours) and she will overall check me out. So this is why I have not written.
You know what really is no fair, I have three IV drips, but they still have to stick me everytime they need blood. I look like a junkie Not funny.
The nurse just came back in and gave me a Nitro OUCH!!! and two more pills, and took blood.
Well she says I have to go. I will write when I can.
mnm mom

[Wooley]

mnm mom that sounds really terrifying, I hope that they can help you stop this happening.

Whatever happens, take all of the help that is offered.

 

Wooley

[Bamawing]

[mnm mom]

Well Hello All,
They took my computer away in the hospital. The Drs. said it was too much work for my heart. My pulse rate would go up pretty fast when I used it so they sent it home ith my husband. Well after a few too many bumps in the road I am now home for the time being and I can use my computer again. Yea!!!
I have O2 all the time and I am not to do much of anything. I am so bored.
Thats good right.
Well this week my heart acted up, It would not beat right, It would go to fast and then too slow and then it would skip a beat.
Let me tell you, it is no fun. I now have a new fashion bag, it carries the computer that watches my heart. so I am all wired up and somewhere in computer space someone is watching what my heart does.
Anything is better than the hospital. I am so glad to be out of there.
So after all that ranting this is what I have to do: Nothing just rest
It's spring, I have my garden that needs work, My lawn is a mess. Oh how I hate being sick
Well I will write again, my hearyt thing is beeping,
Just shoot me now,
mnm mom

[CalamityJane]

Glad you are at home, but understand your awful frustration and boredom.

I feel for you, take good care mnm. This too shall pass..........

 

Jane

[GMAW]

Hope you get better soon Take care of yourself 

[Bamawing]

I'm glad you're home. at least you have your own comfy sofa and no nurses to come in and poke you.

Keep an ear on your beepy thing, but write when you can. I'm thinking of you...

[sweet_shaz]

Get well soon mnm mom. 

[mnm mom]

Thank you all for your words of kindness,
My day is not starting well, I do not cut and paste well so just read my rant and that will tell you how things are going
 
mnm mom

[mnm mom]

 
Well today I saw the lung Dr. and for the 1st time I saw the scans of my lungs. Now all this time everyone has been telling me well you have blood clots in your lungs and they will take time to desolved and all. But to see the pictures, There are no words for how I felt when I looked at them. there is no real outline of my lungs you can see. you just see a small peice here and there. The Dr. said, Now this is the parts of your lungs that are working, I just stared at the pictures not hearing him just wondering how I am still alive. Well thank goodness that I brought a friend with me because she did listen to him.
1st he said I am very lucky that I am alive 
2nd I will be on O2 for at least the next 6 weeks.
3rd I am aloud to go out two times a week other than dr. appts. dinner, icecream that sort of stuff. no shopping. And NO walking when I do not have to.
I can only do one thing a day, no more going to two Dr. appts in one day.
4th And this is the worst part,
The damage to my lungs will heal somewhat but it will never be 100% again and this will also damage my heart.

To say the least today has not been a good day.

But I will look at it this way, I am alive ( I should be dead ) So life is good!!!!!!!!!!!!!!!!!!!



mnm now does her happy dance with my O2 of course
Good night,
mnm mom

[mnm mom]

 
Okay i am not having fun at all. I now have the joy of my heart going crazy trying to work with my lungs not working with all the clots in them. My heart will start to go faster and faster till it not really working ( not moving any blood ) that's when I pass out. If it happens two more times the Dr's. want to put in a defibrillator. They said that they will take it out when everything is all cleared up. I am not happy.
mnm mom

[pppidaho]

So sorry to hear of all you have been going through. I think I understand the frustration you must be feeling. I do identify with the heart issues, I hate it when mine goes all thumpty-whackity on me. Please just hang in there, hopefully better days are ahead for you.

[mnm mom]

 
Well I just got out of the hospital again. I was brought there from the Dr's. office because I could not breath.
i was there June 5-15
The Dr's. had me on steroids as you know well I had just gotten my self off them and then my asthma got so bad the Dr sent me back to the hospital.
To make a very long post a bit shorter, the people that call themselves Dr's. think that I am a drug seeking woman who has nothing wrong with me ( except the blood clots and asthma and stress fractures throughout my Whole rib cage)
But I was only there for the drugs.
I have had a very bad 10 days. I will write more later.
Thank you for letting me rant
mnm

[CalamityJane]

Awwww, mnm, 

Jane

[mnm mom]

Sorry it has been so long since I wrote anything.
Well this is how things are right now. My last cat-scan shows that the blood clots are gone. this is very good. I am to stay on blood thinners for the rest of my life because the Drs. do not know where the blood clots came from.
The damage that the blood clots did is now really starting to show, in respeck that my heart and lungs have to work with what I have now. Which the Dr. believes that I have lost half of my lung function to the clots. My heart has to work harder to get the blood thur my damaged lungs so that will damage my heart.
What that means is that doing anything makes my heart go very fast and sends my blood pressure way up. So as soon as I get all the okays I will start cardiac rehab. But for now the only thing i am aloud to do is take off my O2 when I sit and relax.
 
So all and all things are getting better.
I do not have to wear a heart monitor anymore, this is good. But we will keep a eye on it just the same. I have a nurse come to the house 2X a week to check my heart, lungs, oxygen levels in my blood and she checks my clotting time for my blood. We are still are tyring to get my blood s' clotting time just right but it will take time. At least that is what I have been told.
I also found out that my bones are in good shape, the Drs. thought the pain I now have is due to broken ribs, well we ruled that out with a bone scan. I have very good bones for someone my age. So this is good too.
Now they tell me that the pain in my chest is due to breathing wrong for so long, I now have inflammation of the connective tissue of my rib cage. The Dr. said it is like having a road rash in my chest. All I know is it hurts, bad. But the Dr. said it will go away. But it will take time to heal.
mnm mom

[Bamawing]

Sounds like things are finally starting to look up a little. Hope the trend continues!

[juliasmith]

thanx for sharing it with us

[mnm mom]

Hello All, and Sorry for not writing for so very long,
And sorry if this note does not make much sence but I can't sleep again because of lungs. I lay down I can't breath, i try to sleep in my chair and my legs fill with fluid so bad they hurt and wake me up.
Well I am now getting the full affects of the blood clots that were in my lungs. I now have conjestive heart failure. I never new there were two types but I know now. Mine main problem is in my lungs not my heart. My heart is very strong and in good shape for now, the trouble is in my lungs were the clots did all the damage. The main problem is that the blood from my heart can't get thru my lungs,so the heart has to work very hard to get the blood thru and this is causing too many troubles to count.
My heart races way too fast but my blood pressure is too low. The fluid my heart can't get thru my lungs are collecting in my tissues. I have retained anywhere from 30-10 lbs of water, boy does that hurt all over, so the Drs. put me on water pills. They cerate there own problems. I have been to the ER two times just because the water pills.
Because of the rapid weight gain I have strech marks everywhere that itch all the time.
And the one funny thing about this whole thing, I am not hungry at all. It is work to eat. If I eat anything it makes my heart beat even faster, and I feel sick. So I don't eat much at one time I eat six small meals. And they don't even add up to much.
And then there is the blood thinner, we still can't get it right, and now I have to drive to the lab 2X a week to have it checked. I liked it better when I was not aloud to drive or go anywhere alone. Driving is work to me still, and it is no fun at all. All I wanted was to be able to drive again, and now I would rather not 
But I am alive sothat is good, and my husband watches over me like a hawk. Like right now he wants to know why I am not sleeping, and Stop playing with the computer.
By for now he is still standing there waiting for me to go back to bed.
mnm mom

[mnm mom]

Well things are getting better every week. I am not carring any extra water so that is good. I just have to watch out not to get dehydrated. Eating is still work, So I just don't want to eat or drink. I see the lung Dr. this week, I hope to start rehab soon. I found out that I can not go into water that is cold. We went on vacation and the pool was not heated, well going into the water up to my waist set off my heart. So I stayed in the kiddy pool the rest of the week.
But we did have fun.
I still carry my O2 all the time, but only use it when I need it.
mnm mom

[mnm mom]

Hello All,
If you have read my other threads you know I am doing better everyday. I was tested by my lung Dr. to see how I am doing and I did well on 5 out of 7 tests. the 2 I failed we knew I would it is just how bad i would fail that we wanted to know. When I walk my blood O2 drops down pretty fast, but we knew that was going to be the case. And my lungs can not exchange the air I breath in very well. So I now have started rehab, it was put o hold till I get my ovaries fixed, but when I am recovered from that I will start again. For now I just push myself aliitle more everyday.
Life is good, i have a few bumps in the road, but I am alive and I am not complaining.
mnm mom