UGH HS is being strange to me ......

[Christie40]

OK OK so i had three of these little buggers between my thighs. ((could think of something else there that would be oh much pleasant)) lol but anyway... I had gone to the doctor and he had put me on antibiotics so i could go on my trips.... that was over a month ago... he gave me a refill on them so i filled them again but waited to see how the first dose worked and if they came back i would start the refill meds then.

Well the tenderness disappeared but the lumps stayed. And they seemed to be shrinking. they didnt totally go away so i started taking the antibiotics but only took one dose a day so they would last longer. Stupid probably but that is what i did. Anyway they didnt get any bigger and the tenderness was totally gone and it seemed they were going away. and then yesterday WHAMO one of them hurt so bad. I tried to look at it and the little bit of pressure that i put on the one cyst made it burst...OOOOOO great I thought now all the pain from this one will go away... Just have to let it drain and it will go away... but darn it Now i hurts worse than it did before it burst.?  I am not used to this happening to me with my HS.... Is this normal ? don not understand why if the darn thing bursts the pain should be gone but it isnt..... maybe i am being stupid about this whole thing. but just need to get it off my chest...((((((actually need to get it out of my pubic area....... yup yup that is what i really need to do))) lol....

I think i am just babbling trying to get things off my mind about this HS stuff. Everyone needs to tell me something to.... what I really need to stop doing is looking at the pictures. OMG when i look at some of the HS pictures i sit here and cry worrying that mine will get that bad and I will just go nuts. The pictures of it bother me so much. Although it is something i needed to do at first. But now that i know what it looks like I need to stop... so everyone tell me to STOP?? please..........

[Margarita4u]

OK number one STOP!!! 

Number 2  I'm so sorry you are having such a time darlin! 

You know what I'm going to say right?!?!?  LOL!  Take the meds exactly in the dosage that the doctor told you to, stopping only if you suffer any of the warning side effects listed on the labels that say "stop taking if..."

Do you know what anti's you were on?  How many were you supposed to take a day?  The fact that they were drying up is a really good sign!!!  It means that you will react favorably to them if need be if you find out what dosage works for you so I would get back on following the Doc's directions to a T as soon as possible and then keep a log of exactly what reactions you had, what was good, what was bad, what helped, what didn't and report it to him.  Confess about the wrong dosage and everything.  If you can get the dosage right you could have a weapon in your aresenol for bad attacks.  My derm found I react to Doxycycline so she just gave me 2 months and then no more, now we know we can use that if we need to and it's a relief to me.

[Christie40]

Thanks for that STOP i really needed to hear that. and i am not looking ... lol at least not today...

So anyway for the cyst that i have now that is growing up to be a big boy .... Today I had decided to go and get it lanced. I have a football game i want to go to on friday and i do not want to have to deal with this darn thing on my pubic area. But I ended up not going. I think I will go tomorrow, if it does not open up tonight. It is sore as heck but is not as bothersomeas some of the others that I have gotten.

A question .... If you have gone and gotten some of them lanced when have you finally decided to get them lanced? I mean how much pain do you go through before you finally decide this is enough. Sometimes i feel that I am being a baby and going and having them lanced. That maybe I should just wait till they burst open instead of taking the quicker way out.  I hear about how painful they are and some of you living with the pain. I know that with my cysts the only time they truely hurt is when they are filling up and they are getting tender. I do not believe that i am in the last stage of this skin disease mine weep and seep for a bit but then they go down and eventually disappear. Although I have noticed as time goes on that they are getting that reddish purplish tint to them and it takes forever for that to go away after the infection is gone. I do not know i guess i am just filled with questions. and perhaps trying in my own way to convince myself that i do not have HS. ((even though i know i do))

Reading through all the posts is helping but it is also so confusing I really wish there was just a forum for HS and for all the others.

((((crying)))) damn i just wish i didnt have to deal with this.... sigh.... damn depression is getting to me about this. sigh..

[Margarita4u]

Oh darlin!! 

Geesh my heart just goes out to you and now I'm crying too!!!    But at least you're not alone!

I am SO sorry you are having such a rough time

As far as the question regarding lancing, I have never had one lanced but I know there were times when I have wanted to chop my whole leg off or whole boob off if I thought that it would make the pain stop...I hope someone comes along soon with information for you on the lancing.  I would say if you can't function and it brings you relief do what you need to do hun.  My thoughts are with you.

[9055]

dont know wat to say i am glad to hear that u are in an early stage because there are alot of things u can still do. like u said ur pubic areas.
as for mine i cant remember when was the last time i was able to be intimate because i have been suffering for so long...

[mjhoedl]

Hi all - I'm new here.  Just wanted to let you know that I have had several of my cysts lanced.  I wait until I can't stand it any longer because I hate to have them lanced.  The ones that I have had lanced were generally in my groin and butt area.  I always tell the doc to give me a towel to put in my mouth because I know I'm going to scream but I always feel better when I leave.  Just last night I found a cyst in my armpit.  This is a first for me.  Kind of scary - seems like they may be spreading.  Damn disease.

[cemeterybride666]

hi christie,
margarita is right...and as far as lancing goes, been there done that. yes it does help i always go when i can't take anymore, almost today in fact. i gritted my way through it till it burst on its own. they hurt bad and do recur alot. mine had just ruptured 3 weeks ago and came right back. i know the pics are sad. i too cry ALOT because it tears up my self esteem. i am covered in scars and  tracks to where i never have and likely never will wear a pair of SHORTS. honestly NEVER. i am ashamed i am scarred between my legs in the dearest of places. Yes i have it under my arms and on my backside too. it had started when i was a child on my rear end. noone knew what it was maybe just acne  of the rump...yeah right. as i sit here i wish i had answers too but unfortunately i don't. i can say antis have not helped me and having them lanced was only temporary relief for they refill themselves again and again. i hope you find something that helps you and we are always here for you. i started black walnut today so i'll let you know if it helps at all. take care

[soccergrl]

Reading these posts makes me so sad  . My heart goes out to you guys in the later stages of HS. I try not to look at the pics anymore b/c they make me sad and fearful. How awful for you CB that you had HS as a child. I can't stand the thought of children suffering, and one of my own biggest fears is that I will pass this on to one of my children. I've found HS is a constant struggle to not let worries about the future destroy the present. A big hug to all you guys. My thoughts and prayers are with you.

[diemydarlingxo]

Soccrgrl- Let me tell you first hand, how bad it is to have this at such a young age.  I'm 18.  In this day and age where skirts and shorts are getting shorter and sleeves are being removed from shirts, it's almost impossible for me to find clothes that don't show these stupid marks.  I can't even dress somewhat fashionably, I don't go to clubs because I'm too ashamed of the fact that I have to wear granny clothes.  And I live in Florida, which doesn't make it even remotely comfortable to wear sweatpants and sweatshirts year round....

[soccergrl]

Diemydarlin, I am so sorry you have HS at such a young age  . Having lived in FL myself, I know how uncomfortable it is to wear anything besides shorts and tank tops during a good portion of the year. I'm sure the heat and humidity aggravate the HS, as well. As hard as it may be, try to keep your chin up, and we'll keep hoping they will find a cure soon. Until then, just know that you are not alone, and I will be praying for you .

[cemeterybride666]

i am so with you ladies on being fashion deprived...i do not EVER show my legs (ok except my spiderbite pics i know) yall be honored to see that hog leg of mine.
seriously though...i also stay covered all year round. i was in florida this week on the beach in long pants as always...we deprive ourselves of alot like swimming...i love it when i'm alone and noone can see me, anyone around guess who won't be getting wet ? i sit and wish i had the nerve to not care what my skin looks like, i think you ladies have been there too. i have not concored the not caring attitude yet, as i sit here at 34 i wish some more...

[9055]

i know the feeling i also would absolutely  love nothing more than to wear a swimsuit. i mean i am a very heavy person _at_ my size 20 jeans+46 ddd bra size i shouldnt be caught dead in a swimsuit lol
i wouldnt mind wearing one if i only had CLEAR SKIN... i dream that one day i will wake up and poof no hs. as i get older the more it has spread to the point that i will be alone for the rest of my life .
 ARH  I WISH THERE WERE A C U R E !!!

[CazAngel]

I can definately understand where you are coming from, hun.