Hi Everyone,
I just thought I'd let you know about my new website that I've set up about Ichthyosis (the skin disorder I have). If you have a spare few minutes or whatever would you mind taking a look and let me know what you think. Feel free to sign the guestbook too if you want to, it's not just solely for people affected by Ichthyosis, all feedback will be much appreciated. Spread the word too if you can, thanks. I've set up a new myspace and facebook pages for Friends of Ichthyosis too, so feel free to add them to your friends list/or send a friend request if you want to as well. My ultimate goal is to raise awareness of the condition and the charities I'm involved with - The Ichthyosis Support Group in the UK and DebRA - and news and updates about fundraising events, general information about the condition etc and much more will be posted on the website and on the myspace page. Here are the links:
www. freewebs. com/friends-of-ichthyosis
www. myspace. com/friendsofichthyosisuk
http://www.facebook.com/group.php?gid=35403538502Many thanks for your time
Kind regards
Melanie
