JUST WANTED TO SAY

[littlelady]

TO EVERYONE!!!!

[LIGA girl]

Nice one littlelady! this is my favorite Easter pic, my friend emails it to me every year ever since I sent it to her a few years ago .... (in fact I think I posted it here last year too)

[bunnie]

happy Easter everyone !
and best wishes, Bunnie

[Uncle Matt]

Happy Easter everyone!!!

Love the pictures, Ladies!! 

Matt.

[littlelady]

Hello Liga girl
Thanks I thought it was so cute. I think I found it on photobucket.  I didn't know you posted it last year if I had of known I would have posted a different one...Ops   Sorry I hope that's alright...

Thanks Matt

Hi Bunnie
Hope your doing o.k. Haven't been on here in a while.....Dealing with some health issues other then my skin
  I haven't been feeling to good.

[bunnie]

Haven't been on here in a while.....Dealing with some health issues other then my skin
  I haven't been feeling to good.

Oh my dear! I hope you are on the mend now. I haven't been to good myself. it's seems my social life revolves around hospital appointments, just one thing after another!
Good to hear from you again, and hope today is much brighter for you.
 Regards Bunnie

[LIGA girl]

Hi littlelady

I hope you are feeling better soon, too 

[littlelady]

Hello
Thanks you too.
I have been really off balance everyday now for about a month and a half. They have run all kinds of test and haven't found anything to help. The neurologist I'm seeing said that my brain was not where it should be that is was further back in my skull he said it look like I was born that way. I have never heard of something like this when I do go back to see him I'm going to ask more questions about it. He told me that it was nothing to worry about. Has anyone heard this before? I'm having off balance problems,tingling in my legs and aching also. Sensitive to the touch, eye jerking,ears are popping and ringing, and many more problems. The next test he is going to do is called a nerve conduction maybe that will show whats going on.   
I was sure that it was something to do with my inner ear but the mri showed nothing and the vertigo test they did came back normal. I'm so tired of doctors and test. I hope they find out what it is soon it is driving me crazy. I'm so over it. At least I have to say that my skin is still clear except for my hands but I have it under control.....Thanks everybody for you concern....I will try to drop in every now and again to let everybody know whats going on....I hope you get better to bunnie...glad to know here from both of  you as well....Take care   

[LIGA girl]

hi littlelady

that sounds awful, I hope they can do something to help you, how can the doc possibly say it's nothing to worry about? It would be difficult to function normally with that ...

Hope things change for the better for you

LG   

[bunnie]

Ji littlelady, Do please keep us updated as to how you are with this, I do hope all your tests come back negative, so worrying for you. I'm sure they will get to the bottom of it, it seems to be a process of illimination doesn't it? My Very best wishes littlelady.
regards Bunnie

[Bamawing]

Oh goodness, Littlelady, that sounds awful!! *very, very gentle * I hope they figure it out soon.

[littlelady]

Hi everybody
I'm still no closer to finding out whats wrong they did another test yesterday was called a
nerve conduction test and I think it was called a cranium ultrasound of the spine. Will not know the results until I see the doctor which is about 3 weeks.....What is really worrying  me is about the brain....Has anyone heard of the brain being further back in the skull? I can't find anything on the web about it.  I also was giving some patches to use for the off balance and dizziness which was called the transderm-scop patch and they made me worse. You place one behind your ear every 72 hrs. I did that but I had a real back re-action to it I was at wal-mart and my eyes was doing all kind of things I started seeing half of people and waves and blurred vision which that is a side effect but the other things that was going on really scared me so when it finally stop in about 10 mins I came home called the nurse she didn't know anything she said she would talk to the doctor and call me back. Well time went by and heard nothing until the phone rang about 7:00 pm and it was my allergist I told him what it was doing and he said take it off now and if your eyes doesn't go back to normal in about 3 hrs call a eye doctor. I was so scared that this
medicine has damaged my eyes and now what. But my eyes are better but not all the way back to normal. I will never use those again. I'm glad I have this forum where I can talk about it and I really appreciate all the support. Thanks everybody
Oh one more thing that patch contained some really back stuff which was called scopolamine and it is a anticholinergic so anyone thinking about using this medicine be careful. I will keep in touch....Thanks again everybody

[bunnie]

hi littlelady, scopoline is usually used as an anti-sickness drug in one of these patches.
Is your brain pressing against the cranium littlelady? creating a pressure point or something?
Bunnie

[littlelady]

Hello everybody
Thanks again everybody that was concerned about me.  I have been to a chiropractor which has helped me a lot my spine was really messed up my off balance is gone so far,eye twitching gone,tingling in legs gone,bad headaches gone so I think they found part of my problem but my chiropractor thinks I might have Fibromyalgia so he refereed  me to a orthopaedic because I thought it was arthritis but the x-rays of my hips did not show anything that looked like arthritis that he could tell. Now my problems are leg and hip stiffness, hurts really bad when pressed on parts of my body,aching,can hardly walk sometimes,wake up tired in the morning can't sleep because of pain,teeth grinding,and just feel really tired because I can't get any sleep because of the pain. It just seems like one thing after another. My hips are hurting so bad while I'm sitting in my chair and nothing over the counter will help. I had to take some pain medication I had left when I was getting really bad headaches and I had to take two of them and they finally knocked me out and I got some sleep after 5 days of straight pain. I go see the orthopaedic in about 2 weeks which is a long time to suffer so I'm going to ask my chiropractor if he can give me something for the pain until I see the orthopaedic. I think they can give medication can't they? I hope so. Anyway at least they found part of my problem.  Well, I just wanted to let everyone know that I'm doing better.My hips are killing me so I'm going to go for now. Will keep everybody posted. Take care everybody.......Trina   

[Bamawing]

I think some of them can prescribe meds. It depends if they're an MD or an OD... at least in the US.

Fibromyalgia is nothing to sneeze at. I hope you get feeling better pronto!

[LIGA girl]

Littlelady, I have a friend who has described exactly the same symptoms as you, she also said she gets a lump in her throat too. She was told it was a chemical imbalance and that antidepressants worked to take away or at least improve many of her symptoms as her serotonin levels were low. She is off the antidepressants now I think and is greatly improved but she still has a few problems with sore joints and ringing in her ears. My neighbour also has fibromyalgia and she is on immunesuppressants for it, she seems to be able to live a pretty good life but says she has to rest every day for a time. I hope you get some relief soon   

[littlelady]

Hi everyone
Well, my skin on my hands break out all the time and then go away but that I can handle. I'm so down right now and really tired of all the pain sometime I wish the good lord would just take me on. I went to see the orthopaedic what a waste of time he was an idiot. First of all he didn't believe in chiropractors he was making fun of the hip x-rays that I brought in from them because they had marked on them. They marked on them to show me what was wrong that was a good reason just for me. So as he done his little exam of my legs pushed here and there and got me to hurting I was telling him about the fibromyalgia and he said he knew nothing about that and that really made him look stupid to me because I believe that there is such a disease and by the way he talk he didn't which made me very upset I was really thinking about telling him what I thought of him but I didn't. I know I will never go back to him again. To me he acting very unprofessional and I started to tell him that the chiropractor has done more for me then some doctors has and at least my chiropractor cares about my pain. Anyway that appointment really got me down. I have been trying to set up an appointment with a rheumatology but they called me back and said that I would have to get my regular doctor to recommend it and I would have to have all my records sent over to them so I'm going to go see my regular doctor and hopefully get some more medicine for the pain and see if he will recommend me to the rheumatology. I'm about out of lyrica it was just a sample from the other doctor it really helps with the pain. I have to come off of it slowly or I will have some bad side effects so tonight is going to be a no sleep night. Oh the orthopaedic said I had trochanteric bursitis of the hips but I don't believe him because he just made that diagnose from an x-ray which does not show
bursitis he should have wanted to do a mri or done scans to make sure but he didn't so I'm just not sure.  I have to see proof or at least rule out other possibilities. You know what I mean? He also told me to  work out more and do stretches and he wanted to give me cortisone shots and I didn't want them because the diagnoses was not made to my satisfaction. To work out in this pain was he nuts or what?
I can hardly move without the lyrica and he is telling me to work out more then what I was trying to do which was hardly nothing until I started taking lyrica. I was also stretching and it didn't help either the whole appointment to me was a joke. Thanks everybody for reading my novel and listening to my problems I really needed to talk to someone that understands pain and this forum is the one.  I will let  everyone know how I'm doing. This is to all my friends on the forum.....        

[Blue Bird]

Posted by: littlelady

I'm so down right now and really tired of all the pain sometime I wish the good lord would just take me on.

 Darling Littlelady, often life gets me down, too, and I sometimes have those thoughts, too. I understand, dear. I hope we both will feel better as time goes on. 

 I am dissappointed that your doctor felt he had to made fun of your chiropractor, that's not right.
 
 I am amazed that he does not know much about fibromyalgia. Can you possibly see another doctor? Sometimes it's best to start fresh with a new doc. The one you have has set his mind on what he thinks about you and your health problems and he is not going to change his mind.
It is a type of stubborn doctor "pride" and it is getting in the way. 
Even doctors admit that they sometimes make mistakes. This doctor
you've been seeing is typical of those doctors that aren't that good with their patients or with diagnosis. You deserve better.

 Please get a different doctor, hon. I am starting to get angry with your doctor. I am on your side and I think the best thing is to put this doctor behind you and move on, for your sake.
 
 I hope for your good fortune, good health and happiness.

[bunnie]

Hi littlelady, I'm sorry you are having this trouble with doctors etc, it really is exascerbating your situation. Could you possibly rethink this doctors diagnosis, or at least go to another good orthopaedic specialist/surgeon? 
If he agrees with this last one who says you have trochanteric bursitis of the hips, then maybe he could prove his diagnosis to you. If he made the diagnosis from the x-ray he should have shown you there and then on the x-ray what he was referring to.
Maybe you couldn't see it littlelady without being shown, because the Bursa is a fluid filled sac which has become inflammed. I am ,from all you have said about this, inclined to agree withg this doctor to be honest.  That doesn't mean you need ever go back to him, another physician may have a better approach, but have the same diagnosis. I have been through that myself with my eyes, it was the way the diagnosis was presented to me that I didn't like and therefore believed him to be wrong. He wasn't as it turned out, but the other specialist was so much nicer in his manner and explanation, I felt assured and safe with his diagnosis and subsequent surgical procedure, and treatment.
The major bursae (plural for Bursa) are located adjacent to the tendons near the large joints, such as the shoulders, elbows, hips, and knees. It can even get infected. This is a good link on the condition , just click on each page there are 3. http://www.medicinenet.com/hip_bursitis/article.htm
The pain with bursitis is very severe and will radiate down your thigh, and it is difficult to lie on that side without pain. I have a similar problem myself actually, nowhere near as  as bad as yours of course. The fluid can be drained off I think, and I can see why he recommended the shots, because they reduce this inflammation and they do work!!
I do know what this last chap means about working through the pain. I had severe back pain once, literally unable to turn over in bed, but I forced myself to literallty crawl around and slowly (very slowly) I was able to move better. It was absolute agony I might tell you, but it worked. However, if this doctor wanted you to increase your movements he should have set up appointments with the physiotherapist at the hospital.
I hope this helps littlelady, and hope you get to see someone with a better bedside manner, even if the diagnosis does turn out to be the same.
My very best wishes Bunnie
Ps forgot to add that bursitis often occurs as a result, initially, through injury.

[Bamawing]

I am generally suspicious of chiropracters myself... (messing with my back can make my sinuses drain? yeah...) but even skeptical little me can recognize that if you have a tingling in your legs, that's probably nerves, and then it just makes good sense to pay attention to the nervous system and the bones surrounding it!

I hope you get a new doctor pronto.

[littlelady]

Hi bunnie
When I first told the orthopaedic that one of the doctors said I might have fibromyalgia he said he didn't know anything about that and after he gave me the diagnosis that I had the trochanteric bursitis of the hips
I ask him if he might know why I was aching all over he said that it was probably my fibromyalgia so he just  contradicted his self but I understand what your saying I'm not saying I don't believe his diagnosis I'm just saying I wanted a little more proof like a mri or a bone scan to make sure and to  rule out all other possibilities.  I know there is no test to prove that I have fibromyalgia but I want them to make sure that it is nothing else so in order to do that they have to rule out all other possibilities like arthritis ect. I think I read on web md that a x-ray would not show up bursitis of the hips and I read also that it says to rest the area not over work it. I also read on web md that if you over work it it might cause you to have surgery. I will find it and post it for you to read. I'm trying to get in to see a rheumatology but they told me I would have to be referred by my regular doctor I have an appointment to see him Monday and hopefully I will be seeing a rheumatology very soon. Thanks for link and I think I might have both bursitis and fibromyalgia but as I said before want to make sure. Thanks for the best wishes.     

[littlelady]

Hello bamawing
I didn't believe in chiropractors myself until the prove to me that they work. They have helped me a lot and has proved that too me but I also think that chiropractors are not for everybody because different people have different problems and that the chiropractors can't help every problem. I was seeing a neurologist and he done a lot of test on me and found nothing so I got recommended to go to a chiropractor from a friend and it worked almost all of my problems has gone but I think that the neurologist would have found it sooner of later but I just lucked you and found the problem before he did. I'm trying to get in to see a new doctor which is a rheumatology but I have to get a referral first. Thanks for your concern....Have a good one.
     

[littlelady]

Hey blue bird
I think you are absolutely right about the stubborn doctors pride and all I can say is he wasn't like that when I saw him 8 years ago that is a shame. I wished some doctors would care about there patients more then there pride and money. I started to ask him if he would treat his daughter or mother like he just treated me but I didn't I wish I had of in a way.  I'm a strong believer in what comes around gos around.
Your starting to get angry with my doctor well, now I know you know how I feel and I'm going to take your advise and move on to a rheumatology doctor hopefully he will treat me better. Thanks for your good fortune good health and happiness same to you as well. Have a good day.

[Blue Bird]

 Thank you, littlelady.
I saw this on the net and thought of you. Let me know what you think, and if you can use the info. I hope this helps sort things out.

Fibromyalgia is an often misunderstood and misdiagnosed condition. It causes chronic muscle pain, along with sleep and memory problems -- all of which can mimic other conditions. Use this WebMD Health Guide to better understand fibromyalgia symptoms, diagnosis, and treatment, and find relief from your pain.

http://www.webmd.com/fibromyalgia/guide/default.htm

Here are the categories on this site:
Fibromyalgia Guide Overview & Facts
Symptoms & Types
Diagnosis & Tests
Treatment & Care
Living & Managing
Support & Resources
Select a topic to explore more.

What Is Fibromyalgia? | Causes| Are You at Risk?

Symptoms

Diagnosis

Treatment | Care

Living and Coping | Personal Stories

Finding Help | Resources

Overview & Facts
What Is Fibromyalgia?
What Is Fibromyalgia?
Causes
Fibromyalgia Causes
Are You at Risk?
Fibromyalgia Risk Factors
Symptoms & Types
Symptoms
Signs and Symptoms of Fibromyalgia
When to Seek Medical Care for Fibromyalgia
Diagnosis & Tests
Diagnosis
Fibromyalgia Diagnosis
Treatment & Care
Treatment
Medications for Fibromyalgia
Alternative Treatments for Fibromyalgia
Care
10 Questions to Ask Your Doctor About Fibromyalgia
What Is in the Future for Fibromyalgia Therapy?
Living & Managing
Living and Coping
Living and Coping with Fibromyalgia
Personal Stories
Fibromyalgia Patient
Support & Resources
Finding Help
Fibromyalgia: Finding Help
Resources
Related Web Site: Fibromyalgia on MedicineNet
Related Web Site: Fibromyalgia on eMedicineHealth
Fibromyalgia: Resources

Fibromyalgia: What You Need to Know

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Littlelady- I am wondering how you're feeling today, and if you
have an appointment with a new doctor.

[littlelady]

Hello bluebird
I know the site web md very well. Very good site and I feel what I read on there is correct. I love it.Thanks for recommending it anyway. I have been checked for so many things my regular doctor done a complete blood count which from what I read has ruled out thyroid problems,lupus,liver disease,lyme disease, and heart disease I believe. There was a few more that I haven't checked out yet that can cause a lot of the same symptoms as fibromyalgia.  I'm feeling o.k today thanks for asking. The Lyrica helps me a lot. I also started taking MSM with glucosamine which has help with my hip swelling and pain but I can't take it everyday the glucosamine keeps me up at night. I have an appointment with a Rheumatologist  this coming Wednesday. I hope he can find out what is causing all my pain. I also have been checked for MS,diabetes,high blood pressure, and for a lot of other things that I can't think of the correct term for them all. I'm hoping this Rheumatologist will find out what it is or if in fact it is fibromyalgia I will be diagnosis by a specialist to make sure.  I will let everyone know what I find out. Wish me luck. You have a good weekend. Talk to you soon. Bye