Author Topic: PPP (Palmoplantar Pustulosis)  (Read 445756 times)

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Offline skinny-cj

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1240 on: Thursday December 19, 2013, 11:32:16 PM »
Hi everyone, I've read every single post on this thread and been wanting to reply for a few weeks but have been feeling down and abit depressed, i still am at my wits end really but trying to pick myself up and bounce back.
I've had PPP since end 2007 it went into remission in 2011 and  came back this June after nearly 2 years... Since June its been full on so much so i havn't been able to walk more than a few yards and mainly on tip toes, i seemed to develop PA in hands and feet, very swollen which causes pain. I've had this before and it went when it went into remission.

After reading here i asked my GP to prescribe me doxycyline in the hope it will put mine into remission like Janes... I've been given 100mg one a day for 14 days for my chronic sinus infection,  the GP wouldn't prescribe Doxycycline for PPP,i saw the dermatologist yesterday who offered me Methotrexate  but explained that i have dental infection and will be having treatment to remove my anagram/mercury fillings removed soon so asked if he could let me have another course of Doxy which he has given me a whopping!  3 month course, he seemed aware that dental probs infections can be the cause in some cases. My new dentist thinks i may have toxic poisoning from  anagram/mercury fillings, crowns and even root fillings,  So we shall see... i'm allegic to metals like cheap earings, I'm back tomorow to discuss treatment plans. Rather than faff about refilling with more dodgy metals or ceramics i'd rather just have them all out and a set of safe choppers  :-X

skinny x (Oh i can't believe i choose sinny as a name specially with PPP lol :-D





Offline CalamityJane

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1241 on: Monday December 23, 2013, 04:06:59 AM »
Hi skinny-cj, and welcome to Skin Cell,

Firstly, if you managed to read every post you should receive an award! No mean feat (no pun intended).  :praise:

Do you remember what put it into remission in 2007? The PA in the mix complicates things.  The Doxy does help with inflammation, but one 100mg tab per day seems to be a somewhat snall dose (to me). I believe I was taking 100mg tab twice a day and took double that for 2 days.

I've heard of dental fillings etc causing toxicity, but have not experienced myself. My filling have been mostly replaced with the more "beautiful" white fillings.  You don't say how old you are, but be very sure before you get them all taken out. Dentures are not all they are cracked up to be, IMO. You are in England (ex-pat myself), so you will get good dental care at no cost or little cost is my understanding. I'm glad the Derm gave you 3 months of Doxy (look the dosage up on the web then confirm with your Derm the number of pills per day _at_ 100mg. The correct amount is crucial  but you must get medical confirmation of that.

I would think there is blood test for toxic poisoning? Regardless, if you haven't had blood work done, please request it. Another thought is to see a Rheumatologist. They are brilliant (or the one I was referred to is).

You seem to be doing well with the management of this insane disease, and congrats I say, big time! You are doing everything you can do right now, and believe me I feel for you as your feet sound so sore. Do you have  steroid ointment prescribed like Dermovate or the like? That is very helpful, especially when applied with wet wraps. Our wet wrap specialist is Barbara_Ann.

Your mind after reading the thread I'm sure is just as well-equipped, if not better equipped than mine! I have been lucky with my remission, but still thankful for pain free feet.

Jane
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Offline DoriLynn

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1242 on: Wednesday May 21, 2014, 12:43:54 AM »
I have been able to keep my PPP under control and the way I do it is quite simple and may work for some others.  First I noticed that once the white pustule is broken, the fluid that was eating at my skin, the immune cells that were attacking it, can be drained, therefore starting the healing process of the skin.  It takes a while to make the skin soft again, bit it can work.  While it is healing, it dries up and needs lots of nonalcoholic skin lotion put on the feet every morning.  I find that JASON Rosewater pure natural hand and body lotion works well for me.  Keep popping the pustules as soon as they show up and eventually the PPP will subside. Be sure to use a sterilized straight pin  to gently make a small opening in the pustule.
Hope this helps some of you.  It isn't a cure, but it can be controlled until we find the cure.
Dori

Offline Swannie

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1243 on: Friday May 23, 2014, 07:02:14 PM »
Hey everybody! It's been a long time! My PPP has been gone for a while now. I finally got a Doctor's diagnosis and I DO have celiac disease. I am also intolerant to several other foods. Corn kills me! Soy too. And I have discovered that if I eat too many potatoes, my PPP flares. I can eat one occasionally, but too many and I'm in trouble.

Anyway, there has been more and more evidence proving that psoriasis IS one of the over 300 symptoms of celiac. I'm not saying that celiac is the ONLY cause, but even if you have no digestive symptoms, (many people don't - it's called "silent celiac"), it might not be a bad idea to get tested. Some folks, especially adults, get other symptoms that don't seem related. Insomnia, joint pain, heartburn, thyroid problems, brain fog, migraines, the list goes on and on. And the thingis, if you DO have silent celiac, you are risking some pretty terrible consequences. There are certain cancers associated with it. There is a rash called DH that makes ANY psoriasis seem like a walk in the park. It can lead to lupus, rheumatoid arthritis, terrible vitamin deficiencies and all the ills associated with them, neuralogical problems, and lots of other nasty things.

The good news is that once on the gluten-free diet, healing begins and the risks decrease. And if celiac IS the cause of your PPP, you will heal!


Offline stikyworld

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1244 on: Tuesday December 29, 2015, 05:30:52 PM »
Hello everyone,

I am 37 years old and I am from Czech Republic. My whole problem began in the summer 07/2015. I found a small pustules on my hand. I thought it was from that as the weather is warm. This year the weather was extremely warm in summer. Pustules did not disappear. They began to appear on my feet, too. I was at the first skin doctor 07/2015. He said that it is a same eczema. Gave mi Belosalic Gel and Diprosone cream (it is corticoid). It did not help. Second visit to the doctor meant only other ointments 09/2015. Gave mi Triamcinolone and Belogent (it is corticoid). No help for me. Pustules grew on both hands and on feet. In the beginning it did not look like PPP, my skin was not red. Another visit to the doctor 11/2015was already on diagnosis PPP. He gave me Daivobet (it is steroid derivate vitamin D). No improvement for me. At the moment I stopped taking Daviobet and I looking for new solution. I found this forum and I hope that you will find a lot of information. Disease is little known in skin doctor. I do not think that Daivobet is good for treatment PPP. Do you have some good experience with Daivobet or same corticoid cream?
I think that helps me salicylic acid.
Thank you all for any good advice.I started this that I stopped smoking, stopped drinking alcohol.
I am sorry for my bad English.

Offline CalamityJane

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1245 on: Wednesday December 30, 2015, 03:52:01 AM »
Hello stikyworld and welcome to SkinCell.

I think your English is good - well done! I can't even say hello in your language!

I am sorry you having trouble but PPP usually causes trouble it seems.

The steroid cream is routinely given for PPP, and it increases it's absorption if you apply the cream and then cover it with plastic cooking wrap, and tape that down so it doesn't move.

My foot became so bad it got infected with something called Cellulitis. To fix that, I had to go on antibiotics, and was prescribed Doxycycline, 250 mg. Two tablets twice a day for 2 days, and then one tablet twice a day for 13 days. After day 4,  I noticed a big difference. This antibiotic put it into remission. That was 2007 I believe and I've been about 98% clear since then. Any outbreak is treated immediately with an antibiotic. My doctor was amazed and gave me another prescription in case it came back!

If you can, I suggest you try to get a different dermatologist, or try to obtain some antibiotics from a GP. There are many other things that help - you have tried a number of them. They help and soothe - and any help is always welcome with this nasty disease. Medical treatment can be difficult in some countries.

Please let us know how you proceed and the result you have. Again welcome to this forum.

Jane

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Offline stikyworld

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1246 on: Saturday January 02, 2016, 08:24:24 PM »
Thank you very much Jane.

I want to try Doxy. I ask the doctor about Doxy.
Please tell me, how many people of this forum used Doxy with positive reaction?
Please tell me, how you examination found Cellulitis?
I think that my reason for PPP are some kind of bacteria or parasite.
I want to ask my doctor about testing for the presence of parasites or bacteria. My grandmather has a big dog, my sister has a cat. I do not know what is the cause of. Nobody knows about it.
Thank you very much.

Offline CalamityJane

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1247 on: Monday January 04, 2016, 03:38:45 AM »
Thank you very much Jane.

I want to try Doxy. I ask the doctor about Doxy.
Please tell me, how many people of this forum used Doxy with positive reaction?
Please tell me, how you examination found Cellulitis?
I think that my reason for PPP are some kind of bacteria or parasite.
I want to ask my doctor about testing for the presence of parasites or bacteria. My grandmather has a big dog, my sister has a cat. I do not know what is the cause of. Nobody knows about it.
Thank you very much.

You can ask your doctor for Doxycycline and tell him it has been successful on this forum. Not always tho'. The other drug that has been successful is Keflex (Penicillin family). I am allergic to all Penicillins, so was prescribed Doxycycline for the Cellulitis.

On this forum there were probably about 6 who had success w/Doxy, and a few less than that with Keflex.

Here is a link for that: http://www.healthline.com/health/cellulitis#CausesandRiskFactors2

It says on that link the following in part:

........skin conditions that cause breaks in the skin, such as eczema and athlete’s foot



PPP is also one of those conditions. The sole of my foot would split open, and that's how I contracted Cellulitis. You might not have that - but depending on how willing your doctor's are to try things, it might help. The Doxy was prescribed for me due to the Cellulitis, not for the PPP. It just happened to work and the doctor was quite shocked at the time. The doctor was a GP, not a dermatologist.

I don't know about dogs and cats causing PPP. It is an autoimmune disease. By that I mean that you have not caused this to happen to you.

I hope this helps. My PPP has been in remission now since Jan. 2006 I believe. I felt like I was walking on air when it healed, the relief was so great.

Jane.
« Last Edit: Monday January 04, 2016, 03:42:14 AM by CalamityJane »
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Offline stikyworld

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1248 on: Friday February 19, 2016, 06:41:03 PM »
Dear friends, I want to write my eperience. In december my skin was verry bad.  I think that about 26th december I ate more chocolate. Next days was terrible. Hands and foot was pustuls. I then restricted the food and drinks. I drank a lot of urologic  tea. About five a day. And after three four days my hands and foot was better. I don't drink milk. I don't eat no dairy products (butter, yogurt, chocolate). I feel better. I had a taste of the milk in January. I drank a glass of milk. And in a few days I have pustule appeared again. I visited my skin doctor and I talked him about Doxy. He said me that   there is no reason for a Doxy. I was disappointed that I did not get that. I visited my practical doctor and I spoke about Doxy with him. He understood me and prescribed Doxy (DoxyBene) 2 packs of 10 tablets 100mg. When I was taking Doxy so I didn't have pustules. In februrary I look at it, I slowly begin to do pustuls. I need Doxy :-)
My question is:  How long I can take Doxy?
Thank you for All

Offline CalamityJane

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1249 on: Saturday February 20, 2016, 06:23:14 PM »
Dear friends, I want to write my eperience. In december my skin was verry bad.  I think that about 26th december I ate more chocolate. Next days was terrible. Hands and foot was pustuls. I then restricted the food and drinks. I drank a lot of urologic  tea. About five a day. And after three four days my hands and foot was better. I don't drink milk. I don't eat no dairy products (butter, yogurt, chocolate). I feel better. I had a taste of the milk in January. I drank a glass of milk. And in a few days I have pustule appeared again. I visited my skin doctor and I talked him about Doxy. He said me that   there is no reason for a Doxy. I was disappointed that I did not get that. I visited my practical doctor and I spoke about Doxy with him. He understood me and prescribed Doxy (DoxyBene) 2 packs of 10 tablets 100mg. When I was taking Doxy so I didn't have pustules. In februrary I look at it, I slowly begin to do pustuls. I need Doxy :-)
My question is:  How long I can take Doxy?
Thank you for All

Hello Stikyworld, thank you for your update.Doxyicline where I live is a 2-week, twice a day tablet. When your skin is clear there's no point in taking Doxy. For me I saw a difference in about day 4 or so of taking the tablet. At the end of the two weeks, my foot was clear. Depending on why people are taking it, they could be on it for some time I would think. But that is just a guess, so always check with your doctor. I hope he has seen your skin when you do have pustules.

Jane
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Offline stikyworld

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1250 on: Wednesday April 27, 2016, 07:59:19 PM »
Has anyone of you experience with Leflunomide (Arava)? I found interesting post on website.
http://archderm.jamanetwork.com/mobile/article.aspx?articleid=712241#dce80013f2

Offline CalamityJane

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1251 on: Saturday April 30, 2016, 04:55:31 AM »
Has anyone of you experience with Leflunomide (Arava)? I found interesting post on website.
http://archderm.jamanetwork.com/mobile/article.aspx?articleid=712241#dce80013f2

Hi, I've never heard of that........but I will look it up and get back to you on the forum. How are you doing now?

Jane
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Offline stikyworld

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1252 on: Monday May 02, 2016, 11:06:55 AM »
Hello, thank you. I am so, so. Doxy helps me. When I use Doxy, I don't have pustules. But I have red skin on the hands and feet. I ordered the doctor for examination my immunity.

Offline CalamityJane

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1253 on: Sunday May 08, 2016, 04:24:14 AM »
Hello, thank you. I am so, so. Doxy helps me. When I use Doxy, I don't have pustules. But I have red skin on the hands and feet. I ordered the doctor for examination my immunity.

Hello again, I'm glad to hear that Doxy helps. That you don't have any pustules is the medicine working! I also have red skin on my hands and feet, but I will take that any day over split skin and pustules! You might find that in time some of the redness will go away. When my hands and feet are hot, the redder they look!

I have read the article regarding the Arava, and it seems to have had successes. For me, those drugs were not for me, side effects can be worse that the PPP. That's my personal choice, and as it turns out, I didn't have to. The first case referred to in your link is something I've never seen or heard of and not seen on this forum. The second case is very familiar to me.

If the Doxy is clearing your skin, why would you consider taking an biologic? I'm assuming that the class of drugs it is in?

Sounds to me like you are improving, so fingers crossed!

Jane
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Offline sumitchhabra

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Re: PPP (Palmoplantar Pustulosis)
« Reply #1254 on: Thursday September 05, 2019, 04:32:04 PM »
Caresse - I'm so glad you finally got your MRI's sorted out!  Hopefully they will have some answers for you!  And Yay that your hands are better too... too bad on the foot, but hopefully it will go the same way too! ;)

I'm feeling much better now... I think it must have just been a virus that has been going around because everyone I know seems to have had it in the last couple of weeks - LOL - so I'm glad it's not the Doxy!  I have to say I am sooo impressed with the results I've had on it so far!  I only have TWO (!!!!!!!!!!!!!!!!!) pustules on my foot, when a week and a half ago there were at least 40 painful inflamed things.  And they seem to go as quickly as they show up - yeehaw!!  So, I'm keeping my fingers crossed that I at least get a bit of remission out of it, and I'm glad I've finally found something that works so if I get a really bad break out I can try that again!  I have had a couple of pustules show up on my hands though, but they are tiny and they seem to come and go fairly quickly too - yay! :D I will post photos of my foot when the experiment is over - LOL!

Also, I just wanted to mention a couple of other things that I've been doing in conjunction with the Doxy that may have been of help too...

Firstly, I gave up drinking Diet Coke (I was drinking at least 2 Litres a day). 

Secondly, I started using a soap called "Pinetarsol" which is used for Chicken Pox, Dermatitis and the like.  I don't know if you can get it over there in the states (that's it's Australian name anyway), but it is Pine Tar as opposed to the Coal Tar (which I have found does absolutely nothing for me).  Anyways, I started using this soap on my foot when it was really infected last week at the same time I started the Doxy, and I can say that the itchiness/burning was relieved pretty much instantly.  It stinks like Pine-O-Cleen - LOL - but I'm happy with it.

I stopped using the coal tar lotion that my doctor had prescribed because it seemed to just make it worse.  Instead I'm just using a small amount of a steroid called "Diprosone", and Vaseline over the top of that.  I've found even in the last couple of days that I've cut the coal tar out and started using the Vaseline, it has improved heaps!

I also started taking a Zinc supplement as I remember when I had acne in my early twenties, that seemed to help and I figured it couldn't do any harm!

So, all in all I'm doing well.  I just can't thank you all enough for sharing your stories so that I could find out about this treatment.  Otherwise I would still be hobbling around this week I'm sure.  I'm also going to send photos and a letter to my Dermo so that he can see the results as well and maybe keep it in mind as a possible treatment for other sufferers.  I know all the Dr's will say that it was just a coincidence, but I think it's a mighty huge coincidence if that's the case - LOL!  My foot hasn't looked this good in at least 6 months. Online dietician India