PPP (Palmoplantar Pustulosis)

[CalamityJane]

Hi to all the PPP people on this forum.

I am starting this new PPP thread and hope that the current SC members using the "Let Me Introduce Myself" thread will come on over, so we can get PPP all in one thread. It's easier to have a discussion if the posts are all on one thread.

This is a new beginning for us all, and I am pleased we have this opportunity.

Jane

[barbaraann_38]

Hello Jane!

This is a great idea!! Took me a while to find it.. it's late, and I'm tired LOL.

I once again can't tell you how much this site, (especially you Jane  ), and everyone else  have helped me!!

I'll do my best to remain here and reply when I'm not DANCING AROUND THE HOUSE PAIN FREE!!!!

My feet haven't felt this good in such a long time!!  I'll be forever grateful to you all!!!

Hope we can lead Marty and Sally this way and continue our postings.. and if all goes well.. others will come

Good night all,
Barb

[martyr]

Hello everyone....found the thread....you are right...I was jumping all over the place, trying to figure out where to go.
This will work out good.. I am so glad you dancing Barbarann....
Hopefully soon I will be getting there also.  Have been wrapping my feet more.  They stay so much better when moist.  When I don't have them wrapped, they are a dark red...  Weird that they can change within minutes. I had mentioned my daughter having problems also.  She has it on her hands, body, but not her feet. Hopefully I can talk her into going to someone.
Does anyone know if they do a test or just by looking at feet if they can tell if you have cellulitis?
Just wondering. One nite I am using the steriod cream and wrap, next nite antibiotic cream..Both nites with Aquafor. That help alot from drying up.
Have been reading alot about antibacterial soaps... Gluten. My sister has sent me alot of websites.
I told her alot depends on the person.  Some things work for some and not others.
I wish there was a cure for everyone... Will be watching this thread.. I am making a appt. mon to go to the reg. doctor.. will see if she will give me some doxy.
Take care everyone
Marty

[sallyann]

Ok, I too have found the new thread.  I was just reading Marty's post in let me introduce myself and was wondering how to reply.  Now I see Marty is here also.  Good to know.  I think Barb, Marty and myself are from the midwest usa.  I thought I saw a few more midwestern also with PPP.  I don't really understand what happend in the old thread.  I read through some of it and did see some of the same questions were are now raising.

I'll try to keep my post to the new thread.

Marty, how old is your daughter?  20's 30's.  Seems like a lot of us are woman.  Maybe hormones have there place in our PPP.  See my last post about Migraines and hormones. I never thought to connect the ppp and my migraines / hormones.

Take care, looking forward to more discussions.

Sally

[CalamityJane]

Hi girls -- you all found the thread, super!!

Re Cellulitis, that's strep or staph entering through splits, wounds etc. Mine was early Cellulitis and I had a blood test for that, and the Doxycycline.

If the docs knew how miserable PPP is there wouldn't be so much squawking about a script for Doxy.

Marty as long as you are getting a good result from your regime, stick to it. I know the "change in minutes" feeling. Seemed I could check my foot and is was OK, look again 30 minutes later or so, and there's a whole new crop of pustules. Terribly frustrating.

I'm not aware of a relationship between PPP/Migraines/Hormones.

Many of the members here are USA, or UK. I think I'm the lone PPP person in Canada at the mo! There was a girl from Alberta I think. She didn't stay very long, she read about the success with Keflex, got a script from a doctor (worked in a doctor's office - that's handy), and away she went into remission.

I don't really understand what happend in the old thread

The other thread was started in 2003 and is very very long and cumbersome. A fresh start is a good thing!

Boy, I'm sooooo stuffed up...........must go, thank you all for posting and Barb, you keep on dancing girl!

Jane

[barbaraann_38]

Hello ladies!! 

Here we are!! We've all found this new thread.  Ya think we're getting better in here?  Jane, you seem to be the pro, you are doing a wonderful job of guiding us

Okay, I'll have to admit, I'm not exactly dancing around here, I've got two left feet... would probably fall and break my neck... I'll avoid dancing, just smile from ear to ear.

I've waited way to late tonight to come here, and I'm falling asleep at the keyboard.  I will post more tomorrow.

Goodnight everyone 

[CalamityJane]

Hi Barb -- I think y'all are doing really well! Congrats.....

Jane, you seem to be the pro, you are doing a wonderful job of guiding us

Aww, thank you for that Barb, I'm just telling my story, which was a fluke for sure, and hoping it will help others....and it's already helped you! I'm as delighted as I know you are!

All I wish for everybody is that skin that doesn't hurt. (I was lucky, mine never, ever itched)!

 
sleep well........Jane

[Wooley]

Hi everyone. Just so you know this thread is now "sticky" so it will always be near the top of the list. This should make it easy to find.

 

Wooley

[barbaraann_38]

HI Wooley,

I haven't got the faintest idea what "sticky" means, but when I went to the home page under skin complaints and disorders just now I did  notice this thread was right at the top.  Thank you so much for what you did.  This should make it easier for others to find as well.

When I first started here I didn't have clue as to what I was doing... or how to get around. I still stumble a bit...when Jane told me where this new thread was I did have to go back and read her e-mail twice.  It shouldn't have been hard to understand, I just didn't realize I needed to scroll down so far.

Once again, thanks Wooley, I appreciate it, and I know others will as well!

Barb

[bunnie]

Hi everyone! As you all know, I do not have ppp. However, we all do have the same underlying problem and that is Autoimmune disease.  The disease we each have (there are over 80) is just the pathogenic result of that abnormal immune response to *self*, occuring in each of us.
PPP, (a phenotype =subclass) also has an hereditary gene involved. I just wish to leave this link to a post from the other ppp thread, here rather than repeat myself (yet again!) concerning the understanding of this. So glad you have started a new thread Jane!
Marty, let me know if you wish to understand about the gluten, but Please PM me if you do.  http://www.skincell.org/community/index.php/topic,4832.msg291119.html#msg291119
bunnie

[sallyann]

Hi All-Thanks Jane for the new thread.  I'm still here.  I am taking blood test tomorrow for liver functions. It's been awhile since I have had them done so I don't see the harm. I am thinking about popping in to see my GP at the same time I get my blood work done and ask him about the doxy.  I saw my GP before I went to the derm early Feb.08, He put me on an anti biotic and said he had no idea what I had on my hands and referred me to a derm.  The derm does not want me back for another 4 to 6 weeks.  I am wonder how long it took to see results for Jane and Barb.  Did you have results within 4 or 6 weeks?

Boy, I can relate to the every changing hands.  They do seem to look different every time I look at them. My feet too!

Daylights saving starts this weekend.  Think Spring!

Looking forward to reading your posts.  Good night.

[barbaraann_38]

Good Morning 

Sally, once I started taking the doxy, it was a Thursday.  I went to see my derm on Monday.  Within those 4 days there was an incredible change in my feet.  I brought pics for the doc to see what they had looked like before and even he was amazed!!  Right now it's been only about three weeks... later tonight I'll send you a pic of what they look like, and a pic from before.. you won't believe it!!

I so hope you can get a script for doxy from your gp and just try it...  What can it hurt??

Have to run... back to work today!!

Later,
Barb

[CalamityJane]

Hi Sally, Barb:

I believe I saw improvement after about 4 days or so w/the Doxy. At the end of the two weeks, the foot was clear except for some redness.

I really hope you will be able to give it a try. The relief is incredible!

Jane

[sallyann]

Hi-

I just got back from my GP and he did give me script for Doxy. I like seeing him, he's really cute    He asked me what dosage the other's were taking and I guess I never checked.  He gave me a 30 day supply with one refill.  Just one 100 mg tablet a day.  Does that sound correct?  If not, I could call him and have him change the dosage.  What a sweet heart he is. All the blood test came back with good results.

I'll cross my fingers and hope this helps. I'll keep you posted on the results. Thanks for everything!

Sally

[bunnie]

Well done Sallyann, I do sincerely hope you get some lasting relief from it.
Bunnie

[CalamityJane]

Hi all:

WAY TO GO Sally!! Good news indeed. So pleased you are happy w/him. It makes such a difference to have a derm/doc we can relate to.

My Doxy doseage last year was 2 100 tabs twice a day, for 2 days, then one 100mg twice a day.

That initial doseage though was because of the Cellulitis. The normal doseage I've always taken is one 100mg tab. twice a day, for 14 days.  He has given you lots (bless his heart), but for safety, I would call and ask him if you can increase the doseage to that level. Barb also takes this same doseage. No doubt she will be around and can confirm this for you! Can you check that they are 100mg? (Orange coloured here, could be blue capsules also).

This is super news Sally. You must be thrilled and hopeful. I have crossed fingers that you will get the result we've all had on this forum. That's very few people I know, but I think it has been 100% success rate. Some member's got it back again after a few months. The thing is though, that if you find something that will clear it, you have at least some time to live properly, and the longer it is gone, the longer it might stay gone.

0h yea............

Jane

[barbaraann_38]

Good Morning!!!

Sally I am so happy you've been given a chance to try the doxy YIPPEE SKIPPEE!!!! I so hope it helps you as it has Jane and I!! (and yes it's always nice to visit  a cute doc )

The dosage I was initially given was two 100mg tablets every twelve hours.  Basically I took one at 7am and one at 7pm.  That was the first two weeks.  The second two week dose (which I'm still taking) is two 50mg capsules every twelve hours.  My doc told me to try this, if it's not working as well he would up it to 100mg again.  Thus far it seems to be working fine!!!

I believe I saw improvement after about 4 days or so w/the Doxy. At the end of the two weeks, the foot was clear except for some redness

  That's exactly how mine have responded to the doxy Jane.  The itching, peeling, cracking, bleeding, oozing and pain have all but disappeared.  There is still some redness, and I've noticed some very odd little red lines horizontally on my foot just above the arch..where the main break out was.  They almost look like long "stress" cracks... if that makes sense. 

I'm posting some pics here..  If nothing else, It may give you some hope Sally... The first pic is one taken the first day I started taking the doxy... as you can see I was really having trouble walking!!

I have to get going ladies, have a great day!!
Barb

[barbaraann_38]

WAIT...

The pics didn't work!!  The one that did post is of my foot today.  I'll try one more time to post the before and after pic

Barb

[barbaraann_38]

AAAHHHHHHHH.....

LMAO, okay, the pics must be to big to allow more than one per post??? 

Now that you have seen both pics of what my right foot looks like today, I'm going to let you see what it looked like before...

Your computer and picture posting illiterate friend,
Barb

[martyr]

Hello everyone.
Haven't been on lately..alot going on.  Just catching up on everyone.  Going to write down what everyone is taking on the doxy. It has been cold and it seems that my feet and hands like that.
My daughter is in her 30's. My first breakout was a little before her age now.
My first breakout was going thru a divorce. No stress there..haha.. I will PM you Bunnie on the Gluten.
It was a thought on my part...and I had talked to a friend.  There is a store here that has a gluten free area.
I need to start a diary of what I eat....because I have noticed after somethings...I seem to break out more.
Thanks for pictures barbarann.....I feel like I am looking at my own.....I know I have said it before, but I am so glad to find this site. Take care everyone.
Marty