Author Topic: why I'm here  (Read 30714 times)

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Offline Moeim2

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why I'm here
« on: Wednesday December 05, 2007, 07:22:43 AM »
hello everyone,

I am here because my best friend's daughter suffers from a rare condition called ectodermaldysplasia.  Her name is Kendall and she is 18 yrs old.  these are her symptoms:  alopecia, low body weight, legally blind, legally deaf, skin cancer, tumors, and a smelly, yeasty crust all over her body.

I don't suffer from any skin conditions, nor do my kids.   That doesn't change the fact that I am very aware of the struggles experienced by those who do.  I've watched Kendall suffer for over 5 yrs and it's a very traumatic experience.

5 yrs ago, I was approached by a mutual friend who said her friend's daughter Kendall had a series of rare birth defects.  I met Kendall and her mother Marissa and since then we have become best friends.

When I met them, I was studying aromatherapy and the effects of essential oil products on health conditions.  I was asked to see if I could formulate a product to help Kendall get rid of the yeasty crust she was dealing with.  Yeast smells bad and she was miserable and embarrassed.   Traditional medicine could not get rid of it.  Marissa was told to use Crisco and a Brillo Pad to scrape the yeasty crust off Kendall when she was a baby. Of course I can't cure anything but figured I could at least try to formulate a cream to address the yeast stuff.  I did a lot of research and decided to use a base oil of Calendula which is from marigolds and has properties that soothe yeast and skin conditions.  I added essential oils like Tea Tree and Lavender among others, and made a cream which I gave to Kendall to try.

Two weeks later, I received a call from Marissa that the crusty yeast stuff fell off in the shower and revealed healthy skin..  As long as Kendall used the cream the yeast growth was controlled...not cured...just controlled. 

2 yrs go, Kendall got skin cancer and her specialists at UC Med Center prohibited her using the cream because they didn't want any other product to interfere with the traditional medications and chemo she needed.  the yeast came back.  Now, 2 yrs later, she is in remission and her doctors have allowed her to use the cream I make under their supervision.  It is working just as effectively as before.

I joined this forum so that I could inform myself about skin conditions so that I can explore other natural treatments that may possibly improve some skin conditions.  I figure if this cream can dissolve yeast that traditional prescriptions couldn't, then maybe it would work for ezcema, psoriasis and other external conditions as well!

I've had positive feedback from one sufferer of Ezcema on her face. Within three days of using the cream the ezcema was disappearing.

To explore this possibility further, I will send a free 2 oz. sample of this cream to anyone here who wants to try it.  If it works, then please send me a testimonial and if if doesn't, please let me know.

I'm not an opportunist nor a quack.  I just want to help people if I can.  Of course, if 100 people want a free sample, then it will cost me a lot, but since I make the product from scratch I can afford to give samples away...for now.  If it works for you, I will make it available for $20 for a 4 oz jar which is a lot cheaper than many co-pays for a prescription would be.  It is very gentle, and can be used anywhere on the body. 

If you want info on the ingredients and usage, email me at email address removed. See member profile. and I will answer any questions you have.  Another point to consider is that I make a line of skin care products that are very gentle and should not damage delicate skin.  Let's face it, if your skin is already compromised you probably should not use commercial products to cleanse and moisturize your face.  they contain a lot of questionable ingredients that may irritate your skin.  I do not use any synthetic products in my formulas. 

I know that members of this forum have probably been given false promises about products that claim to cure skin conditions.  I'm not doing that.  No cures here...just soothing.  I don't know what I can say or do to fix those bad experiences, but I truly want to expose this product to people who may benefit from it and know that I've accomplished something positive..  If I did suffer like you all do, I wouldn't hesitate to take advantage of a product that may or may not make a difference in the struggles that you deal with every day.


thank you for your time,
maureen


« Last Edit: Wednesday December 05, 2007, 07:34:13 AM by Matt C »

Offline Blue Bird

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Re: why I'm here
« Reply #1 on: Thursday December 06, 2007, 02:49:49 AM »
 Greetings and welcome to SkinCell, Moeim2,

What a beautiful story about the healing power of natural herbs, essential oils,
and everything else that you put into the cream that healed the girl who was suffering.
I have never heard of her condition and it is amazing that one person could be suffering from so many different things all at once. My, my, mercy, me.
 
 You have done so much good for the girl, Kendall, whom you mentioned.It does seem that some of us could probably benefit in some way from what you have been able to
study and understand in a practical application.
 
 Bless your heart for all you do. Your email address was removed because it helps you to not get spammed from spambots, computers that search for email addresses.
 
 But, it is in your profile, for anyone who wants to take you up on your offer.
 
Thank you for this post, it was a breath of fresh air to see such good being done
for others with the use of traditional herbs and natural remedies.
 
 I may take you up on your offer. You come across as a naturally gifted healer.
 
With hopes for your good health, good fortune and happiness
When we understand that there is no up without a down,no over without an under, no good without a bad, no light without dark, no hot without cold, no yes without a no, we understand wholeness, and we cease to be disturbed, distressed, or perplexed by the illusion of anything less than wholeness.

Offline anthropositor

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Re: why I'm here
« Reply #2 on: Thursday December 06, 2007, 07:56:20 PM »
I am troubled about whoever told Marissa to use Crisco and a Brillo pad.  Brillo pads are spun steel with strong grease cutting detergent impregnation.  On several counts, they are not appropriate to use on skin undergoing any serious challenges.  If it was a physician who gave this thoughtless advice, he needs to be called to task for it.

You say you are not an opportunist or a quack.  That is a hard thing to pin down.  You are interested in aromatherapy which seems to have some elements of quackery some of the time, but which may also have considerable merit.

I sometimes declare that I am an opportunist in spite of the pejorative elements the word contains.  A few days ago I had the opportunity to buy a lot of fresh cranberries for twenty five cents a bag (roughly 1/10 retail).  I like fresh raw cranberries.  I bought twenty pounds.  I am dehydrating what I cannot eat fresh.  It is not easy for me to eat more than about a half pound or so of cranberries a day.  So I will wind up with a few gallon jugs of dried cranberries, which will keep for months.  That is opportunism, taking advantage of an unusual price level. 

What I am NOT is a predatory opportunist.  In reading your very first post, the appearances that would ordinarily raise my hackles and set me to growling and lurching on the end of my chain. aren't getting that response.  I am only salivating a little and sniffing the air carefully.

I do approve of the careful use of common sense and reason particularly in the care of conditions which are not currently being successfully treated by mainstream medicine.  My only real association with aroma therapy is that I have an extremely acute sense of smell which I use all the time to enhance my well being.

I strongly disapprove of chemical air "fresheners" and don't much like artificial flavors and food colorants either.  But I am not unreceptive to using the real extracts of herbs, fruits and seeds in reasonable, rational ways to enhance health and wellbeing.  You could easily be doing that.

The ingredients you mentioned in your cream sound reasonable enough, even though there is little information on the proportions you have used.  A year or two ago I could have tested it for you on my skin, which had some intractable problems which went on for some years.  But in more recent times, I have been unable to find a single lesion anywhere on my skin to experiment on.  I am currently experimenting with one of my eyes and a few of my teeth.  With the eye, I have the opportunity to avoid or delay for a number of years, a cataract operation.  That is opportunism which I engage in with relish.

I could certainly test the use of your cream on my completely healthy skin, but why bother.  You need a few folks that have current problems that are not being well met by mainstream allopathic medicine.  Then, if your unguent has some merit, any improvements that occur will lend weight to your belief in it.

If you look at some of the threads I have started here on Skin Cell Forum, and the writings on my blog Eureka Ideas Unlimited
eurekaideasunlimited.blogspot.com
you may get some ideas which will help you determine the usefulness of your product prior to actually marketing it, even at cost.


 
"The person who says it cannot be done should not interrupt the person doing it." Chinese Proverb.

"What all men speak well of, look critically into; what all men condemn examine first before you decide"-- Confucius

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Offline Moeim2

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Re: why I'm here
« Reply #3 on: Friday December 07, 2007, 02:46:12 AM »
Hi Matt,

I assume I'm talking to Matt and everyone else here :'(  I am glad I didn't "raise your hackles" and that you've allowed me to join your forum.  As far as the use of aromatherapy, there are different types.  My interest lies in essential oils and natural vegetable bases, not synthetic fragrances...yuck.    Yeah, it's a buzz word, but most everyone understands what it means.

I'll probably never be able to make a pineapple-mango blend, because I won't use synthetic fragrances, but there are plenty of other options that are actually distilled from plants, flowers and other botanicals so that's a non-issue.  I will admit tho', that I make a yummy lip balm which contains artificial flavorings of Bubble Gum, Candy Cane, or Vanilla.  customers love that stuff... Of course, I can also make one with Peppermint or Spearmint Essential Oils that is natural and because I control what I make... I can do that too!  I enjoyed your distinction between "predatory" opportunist vs. opportunist because yeah...that describes me.  The non-predatory version of course!  If the cream is effective for some of your members, then I've accomplished something good, and because I make everything from raw materials I can control the cost and will make a little something for me too!  But taking advantage of people who are dealing with these skin conditions is not my motive. 

Here is what I see.  I see commercial enterprises offering a 1 oz jar of wrinkle cream for $100.00.  I see pharmaceutical companies charging outrageous fees to insurance companies for products people need on a regular basis just to function daily.  I see people on limited incomes...often because their conditions prevent them from working and can't get prescriptions for what they need.  If they are on Medicare or Medi-Cal they have limited access to the products they need, or can't get approved for them at all.

That's why natural remedies can often be beneficial.  I would presume that most people understand that prior to the 20th Century, there were no pharmaceutical conglomerates and people had to rely on natural sources for relief from most conditions.  So, why not consider those options today? Most people expect a pill to fix everything and sometimes it can't.  Or maybe it can but the side effects are really SCARY! I just love those commercials where a person who has allergies is running thru a field picking daisies and then at the end of the commercial... a voice says "this might cause a heart attack, or liver damage, or shortness of breath...contact your doctor if you exhibit any of these symptoms" etc.  Wow, that really makes me want some!

It is BS that Kendal's doctor suggested that ridiculous idea to them.  But her condition is extremely rare and back in the 1980's I suspect they didn't know what to do with her.  Kind of like using leeches to draw blood out of someone who is sick.... pure ignorance.  I'm just glad I live in a time where we have some options regarding our health and people aren't so gullible!  I'm not a doctor, and have no medical degree.  I just enjoy making blends that sometimes work.

I stand by my offer.  I will provide a free sample of this cream to anyone who wants to try it.  Email me at my profile.

Blessings,
Maureen Perez





Offline itchychick

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Re: why I'm here
« Reply #4 on: Friday December 07, 2007, 03:03:24 AM »
Hi Maureen,

Matt is one of our moderators here at SkinCell, while Anthro is a vigilant member.  There is no need to feel upset or embarrassed by Anthro's post.... you would know if he was really angry!  You must understand that our members and the moderating team are very cautious of people trying to sell "cures" on this site.  Many people suffer immensely and are desperately looking for relief.  As you have pointed out, this can leave the door open for unethical people to take advantage of them.

Quite a few of us are interested in non-pharmaceutical approaches to controlling our skin conditions, but some are controlling their illnesses with medication and may not have a choice in the matter. That is why this thread was moved to Natural Remedies - like-minded members will find suggestions here.

I look forward to hearing about the results of your "testing"!

Offline Moeim2

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Re: why I'm here
« Reply #5 on: Saturday December 08, 2007, 04:05:02 PM »
Hi Itchychick,

Thanks for your post.  I'm wasn't embarrassed about anthro's post.  He brought up very valid points.  I know there are a lot of unethical people roaming these sites.  What I'm offering is not a cure tho'.  Can't use the "C" Word, ever.  My post was meant to communicate to all of you where my thoughts are on natural treatments and hopefully get an idea of who I am and how I think. 

Chronic skin conditions have medical causes and topical application of most products, in my opinion, don't make the condition go away permanently.  When you stop taking the treatment it will usually come back.  I'm sure there are exceptions to that, of course.  I know pills are required for many conditions, but sometimes a natural treatment can work along with traditional medicine, and sometimes not. 

I am very glad my post is on natural remedies because that's where it belongs.  I don't want to intrude on the communications between sufferers of these conditions and their posts of support to each other.  Since I don't deal personally with a condition such as these, I can't commiserate with any of you like you can with each other.

But if I think of something that might be worth trying, I might pop in now and then and suggest things they can do on their own to possibly get some relief.  But here, on this sub topic board, I will be a lot more visible.

Blessings,
maureen
« Last Edit: Sunday December 09, 2007, 12:24:13 AM by itchychick »

Offline Blue Bird

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Re: why I'm here
« Reply #6 on: Monday December 10, 2007, 12:23:54 AM »
Moeim2> Do you have a store or something that you sell your wares through?
How else do you peddle your lip balms and home made ointments?
 
 My skin condition is pretty good, save for that one piece of aggravated
skin on the side of my chin. It's not as bad as it used to be, and I do see a time
when it will be gone. We all have to have hope.
 
 Could you mention what the basic ingredients that you use in your free samples,that you mentioned? From what I can gather it is:
Quote
I did a lot of research and decided to use a base oil of Calendula which is from marigolds and has properties that soothe yeast and skin conditions.  I added essential oils like Tea Tree and Lavender among others, and made a cream which I gave to Kendall to try.
  I am going to look for calendula, I have Tea Tree Oil, I have to buy some lavender oil, is there anything else I should be on the lookout for to include in my own experimentation, based on what you are suggesting?
  How does it turn into a cream, since you are using oils? Do you put it in zinc oxide,
or some other "creamy" type of ointment?

I am sorry, but on review, I don't think that I will be requesting a sample. it's not a good idea to give out your home address to complete strangers on the net.
 


 I hope you can truly help us understand what you used in order to help us help ourselves. Being that you don't  have any skin conditions, or maybe you have dry skin occasionally, or whatever, I am just wondering  if you really want to help us or to try to get us to buy stuff that may or may not work.

We don't usually sell stuff to each other on here, we share what we have that works, explain what we use, and offer sympathy to people who are suffering. Nothing is as important as giving good advice and compassion to each other on here, really.

 I am in complete agreement with Anthropositor. You can't pull one over on him, and we both are somewhat skeptical, but you come in peace and seem positive.
 
 So, what else do you use, if you really want to help us help ourselves, besides the ingredients that you already mentioned? We can try to do this ourselves.
 
 I also am horrified that the girl you mentioned helping would have anyone go at her skin with a brillo pad. Since she is severely affected with a lot of unbelievably unbearable conditions, I can only imagine the horror that poor girl was going through when someone tried to scrape that yeast off her skin with the brillo pad.  :o
 
 It's a good thing that your friend knew them somehow and recommended that you
help them out, you did a good thing and you know it.
 
 Well, I'll be on the lookout for Calendula. Thank you so much for mentioning it.
Here is what I found on a quick search:

      Calendula
The flower petals of the calendula plant ( Calendula officinalis ), or marigold, have been used for medicinal purposes since at least the 12th century. Calendula is native to Mediterranean countries but is now grown as an ornamental plant throughout the world. It is important to note, however, that not all household plants called marigold are members of the calendula family.

Calendula contains high amounts of flavonoids, plant-based antioxidants that protect the body against cell-damaging free radicals. Researchers are not sure what active ingredients in calendula are responsible for its healing properties, but it appears to have anti-inflammatory, antiviral, and antibacterial effects.

Traditionally, calendula has been used to treat stomach upset and ulcers, as well relieve menstrual cramps, but there is no scientific evidence that calendula is effective in these cases. Today, topical applications of calendula are more common, especially in Germany. Calendula has been shown to speed healing of wounds (possibly because it increase blood flow to the affected area), and the dried petals of the calendula plant are used in tinctures, ointments, and washes for the healing of burns, bruises, and cuts, as well as the minor infections they cause.



Plant Description
Calendula is an annual plant that thrives in almost any soil but can typically be found in Europe, Western Asia, and the United States. It belongs to the same family as daisies, chrysanthemums, and ragweed. Its branching stems grow to a height of 30 - 60 cm, and it blooms from early spring until frost. The orange-yellow petals of the flowerheads are used medicinally.



Parts Used
The dried petals of the calendula plant are used for medicinal purposes.



Medicinal Uses and Indications
Except in extremely dilute homeopathic preparations, calendula is not generally taken orally.

Burns, cuts, and bruises

Calendula tinctures, ointments, and washes are commonly used to speed the healing of burns, bruises, and cuts, as well as the minor infections they cause. Calendula cream is also used to treat hemorrhoids. Animal studies show that calendula does appear to speed wound healing, possibly by increasing blood flow to the wounded area and by helping the body produce collagen proteins, which are used to heal skin and connective tissue. Although no scientific studies in humans support these uses, applying calendula topically is considered safe.

Professional homeopaths often recommend ointments containing calendula to heal first-degree burns and sunburns.

Ear infection (otitis media)

Ear drops containing calendula are sometimes used to treat ear infections in children. A few scientific studies have shown no side effects, although the studies are not of sufficient quality to determine whether calendula is truly effective.



Available Forms
Fresh or dried calendula petals are available in tinctures, liquid extracts, infusions, ointments, and creams.

Calendula products should always be protected from light and moisture, and should not be used after 3 years of storage.



How to Take It
Pediatric

Use only topical and homeopathic preparations for children.

Calendula can be used externally in creams and ointments in dosages of 2 - 5 g calendula per 100 g cream or ointment.

For homeopathic dosages, consult a licensed homeopath.

Adult

Infusion: 1 tsp (5 - 10 g) dried florets in 8 oz (250 mL) water; steep 10 - 15 minutes; drink two to three cups per day
Fluid extract (1:1 in 40% alcohol): 0.5 - 1.0 mL three times per day
Tincture (1:5 in 90% alcohol): 5 - 10 drops (1 - 2 mL) three times per day
Ointment: 2 - 5% calendula; apply 3 - 4 times per day as needed


Precautions
The use of herbs is a time-honored approach to strengthening the body and treating disease. Herbs, however, can trigger side effects and can interact with other herbs, supplements, or medications. For these reasons, herbs should be taken with care, under the supervision of a health care provider.

Calendula is generally considered safe for topical application. It should not be applied to an open wound without a doctor's supervision. People who are sensitive to plants in the daisy or aster family, including chrysanthemums and ragweed, may also have an allergic reaction to calendula (usually a skin rash).

Calendula is also known to affect the menstrual cycle and should not be used during pregnancy and breastfeeding. Theoretically, calendula may affect conception when taken by a man or woman, so couples trying to get pregnant should not use calendula.



Possible Interactions
There are no known scientific reports of interactions between calendula and conventional or herbal medications. Theoretically, calendula may interact with sedative and antihypertensive (blood pressure) drugs, so talk to your doctor before combing these drugs with calendula.



Supporting Research
Basch E, Bent S, Foppa I, et al. Marigold (Calendula officinalis ):An evidence-based systematic review by the Natural Standard Research Collaboration. J Herb Pharmacother . 2006;6(3-4):135-59.

Blumenthal M, ed. The Complete German Commission E Monographs. Therapeutic Guide to Herbal Medicines . Boston: Integrative Medicine Communications; 1998: 100.

Brinker F. Herb Contraindications and Drug Interactions . 2nd ed. Sandy, Ore: Eclectic Medical; 1998:46.

Cummings S, Ullman D. Everybody's Guide to Homeopathic Medicines . 3rd ed. New York, NY: Penguin Putnam; 1997: 295.

Duran V, Matic M, Jovanovc M, et al. Results of the clinical examination of an ointment with marigold ( Calendula officinalis ) extract in the treatment of venous leg ulcers. Int J Tissue React. 2005;27(3):101-6.

Foster S, Tyler V. Tyler's Honest Herbal: A Sensible Guide to the Use of Herbs and Related Remedies . 3rd ed. New York: Pharmaceutical Products Press; 1999: 85-86.

Gruenwald J, Brendler T, Christof J. PDR for Herbal Medicines . Montvale, NJ: Medical Economics Company; 1998: 704-706.

Kalvatchev Z, Walder R, Garzaro D. Anti-HIV activity of extracts from Calendula officinalis flowers. Biomed Pharmacotherapy . 1997;51(4):176-180.

Sarrell EM, Cohen HA, Kahan E. Naturopathic treatment for ear pain in children. Pediatrics . 2003 May;111(5 Pt 1):e574-9.

Sarrell EM, Mandelberg A, Cohen HA. Efficacy of naturopathic extracts in the management of ear pain associated with acute otitis media. Arch Pediatr Adolesc Med . 2001;155(7):796-799.

Schulz V, Hansel R, Tyler V. Rational Phytotherapy : A Physician's Guide to Herbal Medicine. 3rd ed. Berlin: Springer; 1998: 259.

Ullman D. The Consumer's Guide to Homeopathy . New York, NY: Penguin Putnam; 1995:254-255;334.




 
When we understand that there is no up without a down,no over without an under, no good without a bad, no light without dark, no hot without cold, no yes without a no, we understand wholeness, and we cease to be disturbed, distressed, or perplexed by the illusion of anything less than wholeness.

Offline Moeim2

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Re: why I'm here
« Reply #7 on: Wednesday December 12, 2007, 07:22:41 PM »
Hi Blue Sky,

I understand your concern about giving out your personal address.  The Calendula Cream is not offered on the site, because I want to see if it's effective first for other skin conditions besides the yeast buildup that Kendall suffers from.  That is why I'm offering free samples to your members.  I will include the ingredients here, for your information and others, but don't be offended when I say that I am trying to create a business that will allow me to be home with my family rather than working a job that I'm unhappy with, while doing what I enjoy and helping others in the process.  That is why I made sure the prices for all of my products are affordable because I understand that many effective skin care products are priced out of reach for me as well as others.  I believe in my products and know they are effective because I use them on myself, family and friends with excellent results.

I make the cream base myself.  I don't use any commercial bases in any of my products. My client base is extremely small because it's very expensive to market and compete with the large companies, but I hope one day that will change.  I make everything in my home under sterile conditions and don't have a warehouse, manufacturing facility or staff.  I have a website called IsisDivining.com where I offer other skincare products but since I don't have thousands of dollars to spend on advertising, I'm not easily found.  I didn't post my website initially because my intentions were only to focus on getting feedback on the Kendall Komfort Kreme and not drive traffic to my site.  But since you've asked and since I'm willing to publish the ingredients here, per your request, I don't feel it's wrong to put it out there as well.

Here are the ingredients.  Calendula Oil I macerate myself, Beeswax, Emulsifying wax, Chamomile Infusion, Lavender Water, St. Johns Wort Oil, Co2 Blend(contains calendula, sea buckthorne berry and rosehip seed extracts), Lecithin, Plaintain Oil, Essential Oils of Lavender, Myrrh, and Tea Tea, Cosmetic Grade Borax for binding, and Potassium Sorbate which acts as a preservative.  It's used on dried fruit to prevent fungus so is edible and I have never encountered any product warning regarding it's use.  It is a natural alternative to Germaben based preservatives which contain formaldahyde (I know it's not spelled right)...similar to what morticians use to preserve dead bodies and which many commercial cosmetic companies prefer using in their products.  Big Yuck, there!

I hope I have addressed your questions adequately.

Blessings,
Maureen

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Re: why I'm here
« Reply #8 on: Wednesday December 12, 2007, 11:26:50 PM »
Hello Moeim2.
Quote
Chronic skin conditions have medical causes and topical application of most products, in my opinion, don't make the condition go away permanently.  When you stop taking the treatment it will usually come back.
The reason why that occurs is because NOTHING can remove an autoimmune response, (abnormal immune response) which most serious skin conditions are the result or manifestation of this response. People who suffer with autoimmune disease are born with the genetic predisposition to autoimmune diseases, (we can have more than one.) All that can be done is to suppress the immune system with immunomodulating drugs, which thereby suppress the production of the abnormal antibody (autoantibody) which is produced within this abnormal response. In idiopathic cases it occurs of and by self, caused by a malfunctioning of certain cells in the immune system. It can be triggered in some cases by allergies to certain enviromental factors, remove the allergy factor, and the response will not occur again, but the predisposition  is always there. Topical treatments help relieve the particular skin disease manifested, these include mainly steroids, the only cream I have known myself in the past 15 years to have any affect at all.
Ectodermal Dysplasia, is not a single disorder, but is in fact a group of conditions, of which almost 150 have been identified. Some of these include forms of hair loss, alopecia, dental abnormalities, malformed fingernails, eczema, sweat problems, heat intolerance, cleft palate, cleft lip,the eyes, to name but a few.
The Ectodermal Dysplasias are heritable conditions, (passed down through the parents in Chromosomes/DNA ) in which there are abnormalities of two or more ectodermal structures  such as the hair (tends to be very thin and sparse),teeth (absent, pointed or conical), nails, sweat glands (little or no sweating.)  Each combination of features represents another type of ED Syndrome and has a specific name.Please note this link.....
http://health.nytimes.com/health/guides/disease/ectodermal-dysplasia/overview.html
It is after reading quite a bit on these conditions, hardly surprising that this young lady has yeast formations and sometimes bad smelling discharges. No treatment is required for these abnormalities, but fungal infections can affect anyone, and as there is heat intolerance and the inability to produce sweat, then naturally these persons will be more vunerable I would think.
I personally do not believe in aromatherapy, nor these home made remedies. They are in my opinion  potentially dangerous, especially if anyone is allergic to allergens. They may have been used since the 12 century but we have moved on from then. As for aromatherapy, well I don't see it being any use whatsoever in an accident situation or severe trauma. I'd be screaming for the Pethidine myself!
There is no offence whatsoever intended in the following, but In particular you say...
Quote
I am here because my best friend's daughter suffers from a rare condition called ectodermaldysplasia.

Then (with all due respect) you go on to tell us about your home made cream, which after offerring a free sample you then say,
Quote
If it works for you, I will make it available for $20 for a 4 oz jar.

So the reason you are here is not for best friends daughter, (there is nothing unfortunately can be done for this lady so why would you mention her at all?)  but to advertise your cream in my opinion.
« Last Edit: Wednesday December 12, 2007, 11:41:48 PM by bunnie »

Offline Moeim2

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Re: why I'm here
« Reply #9 on: Thursday December 13, 2007, 08:51:37 PM »
Hello Bunnie,

Thank you for your comments.  Everyone has a right to their own opinion about natural remedies.  Mine is that they can compliment traditional medicine in some cases, and sometimes they work well alone.  Regarding your comment that Kendall's crusty yeast on her extremities and head doesn't require treatment is not true.  She has the rarest form of ED and because excessive yeast buildup can compromise her autoimmune system she takes a daily dose of Fluconozole.  If she didn't she could die.  Secondly, your other comment that no one can help her is also not true.  You say that I'm not really here about her.  Just to sell cream.  If you read my initial post, you would see that it is because the cream helped her yeast condition and that is why I offered samples of it to members here.  This is a forum devoted to skin conditions and I thought that if anyone had a similar symptom to hers that maybe the cream would help.  Or perhaps it would help other skin conditions as well. 

Marissa, Kendall's mother asked me to suggest to you that rather than quote an article from the NY Times, perhaps you should actually go to the Ectodermaldysplasia Foundation website and get more accurate information before dismissing her daughter as unable to be helped.  After all, she and Kendall have been living with this disease for 18 yrs.  Also, don't be surprised if Marissa joins us on this forum on behalf of her daughter.  Since her daughter has had amputation of part of one hand and her thumb fused and another finger amputated down to the knuckle, due to the skin cancer tumors, she is unable to use a keyboard to speak for herself.

I see members on this sub section referring other members to links for Manuka Honey, Emu Oil and other remedies that have either helped them or someone they know.  Do you think that when they go to that site to order it, the product will be free?  Will they get free samples to see for themselves if it works for them?  I doubt it. So, why question my motives here when I'm offering free samples to members and heaven forbid... actually put a price on it, if it works?  I suspect that if Emu Oil or Manuka Honey or any other natural remedy does work for any of you, you will probably buy more!

Kendall is being treated by University of California Medical Center specialists who have encouraged her to use natural remedies together with their traditional treatments.  They have also acknowledged that the cream I made for her has worked well to compliment their own regimen set in place for her.  These are teaching doctors at a teaching hospital and are experts in the field of dermatology and cancer.  These aren't quacks in the Bahamas...or wherever.

Do you pay for your prescription drugs?  I presume you do.  We all do.  Depending on the type of insurance we have or don't have, those co-pays or drugs can cost a lot more than 20 bucks for some of us, right?  Medical studies done in Australia have found that Tea Tree Oil is as effective as benzoyl peroxide without the side effects of flaking, dry skin in the treatment of Acne.  Would you rather spend $$ on the drug or a 10.00 bottle of Tea Tree?  Which would you rather use? 

I understand concerns you all have about being taken advantage of.  I respect those concerns.  And a side comment regarding Blue Sky's concern about sic. "giving out her address to strangers on the internet"... don't you think they already have it?  How does junk mail appear in our mailboxes anyway?  Every time we order something over the phone or the internet or subscribe to a magazine, our address is necessary or we won't get our order...

And Bunnie, if you don't believe in effectiveness of natural remedies, why are you posting your comments here?  I was under the impression that this sub section is for those of us who do, and that is why your forum put my post here.  And this is where it belongs.  There are plenty of places on this forum where you can exchange information on the traditional treatments that you prefer to use, which is your personal choice. 

I was open and forthcoming about why I'm here when I asked to join this forum.  I didn't come sneaking in pretending to have a skin condition to take advantage of all of you.  I really do want to help whoever I can and myself, in the process, and negative posts come with the territory.  I guess that if Marissa would have joined this forum before I did and raved about the cream and sent you all a link to my website, that would have been ok?  But.. .the cream isn't on my website... since I planned on seeing if a FREE sample works for others first.  Go figure... 

Blessings,
maureen


bunnie

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Re: why I'm here
« Reply #10 on: Thursday December 13, 2007, 10:12:43 PM »
Hello Maureen,
Quote
Regarding your comment that Kendall's crusty yeast on her extremities and head doesn't require treatment is not true. 
  I never said that. I repeated the quote from the link which stated that there was no treatment required for the ED, and that according to those sites surgery etc is all that can be done to improve the situation.I got this info from....please note in bold.
http://www.nlm.nih.gov/medlineplus/ency/article/001469.htm
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There is no specific treatment for this disorder. Wearing a wig and dentures can improve the child's appearance. Artificial tears may be needed to replace normal tearing and prevent drying of the eyes. It may be helpful to spray the nostrils with saline nose spray often to remove debris and prevent infection.
http://www.nfed.org/FAQ.htm
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There is no cure for ED, but many treatments are available to address the symptoms.

I do need to apologise for omitting to make myself clear with regard the treatment. I meant the ED itself, and should have added that treatment is of course available for the symptoms which result from the condition. In my mind I thought I was stating the obvious, so of course it came across as being incorrect. I apologise I should have written that differently.
With regard fungal infections..Believe me I know plenty about fungal infections, I have been taking fluconozole almost every day for years!
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to suggest to you that rather than quote an article from the NY Times,
I have never even seen a copy of the New York Times in my life, let alone read it! I am British and live in England.
Quote
They have also acknowledged that the cream I made for her has worked well to compliment their own regimen set in place for her.  These are teaching doctors at a teaching hospital and are experts in the field of dermatology and cancer.  These aren't quacks in the Bahamas...or wherever.
I will refrain from passing an opinion on that, because I have not seen any reports published by this lady's doctors, confirming that your cream has worked in this case. Unless they do, it then can be interperated that they are agreeing to the use of this, because it neither is doing good or bad, or as a placebo. I have never heard of "quacks in the Bahamas" it could be ducks for all I know.
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Do you pay for your prescription drugs?  I presume you do.  We all do. (Here in the UK.if you are in receipt of benefits , or have life threatening condition, or a condition for life, all prescriptions are free)Depending on the type of insurance we have or don't have, those co-pays or drugs can cost a lot more than 20 bucks for some of us, right?
Here in the UK. All our medical treatment is free. Money, regarding treatment or surgery does not ever come into the equasion, therefore the specialists and doctors are not under pressure to make money in the same way as abroad.
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why are you posting your comments here?
We can post where we like, however my concerns are those which I made in my previous post.
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I was open and forthcoming about why I'm here
And indeed I respect that . Please note that I was very prominent, and written in  bold  saying....
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There is no offence whatsoever intended in the following,
and also said..... (with all due respect)
Again , my intentions were sincerely not to offend you, I sincerely apologise if I have.
Bunnie
« Last Edit: Thursday December 13, 2007, 10:15:39 PM by bunnie »

Offline anthropositor

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Re: why I'm here
« Reply #11 on: Thursday December 13, 2007, 10:35:34 PM »
Maureen,
In spite of some speckles of spam, I'm tipping my hat to you.  You haven't been skulking around like some.  You have been pretty candid.  Also you didn't just disappear into the void, which is often what happens when someone gets into a joust with Bunny or myself.  Do you realize that she and I often have to fight each other just because there are so few willing to step up to the plate and debate the issues.

Fortunately, Bunny and I disagree so sharply on so many pivotal key issues, that we are not likely to ever run out of stuff to debate.  And we are both tough as elephant hide.  Exploring such issues with a bit of drama and zest, is to my mind, the central value of such a forum as this.  Even so, we really can't just continuously battle each other.  But I'm not going to jump you.  This isn't a tag team match.  It would be completely unfair.

I'm just going to sit at ringside and cheer for you, not because your position is entirely correct, but because after the knockdown you jumped up and made some jabs of your own.  I wouldn't want to scare off someone with huevos as big as melons.

If you should happen to score a knockout with the carnivorous Bunny (a longshot I fear), we can schedule the main event as soon as you heal up a bit.  Or if you do not have the patience to wait, just come on over to the edge of the ring and kick me in the teeth.  Then we can schedule the main event. 

...meanwhile, welcome to the Forum. :evil: 
"The person who says it cannot be done should not interrupt the person doing it." Chinese Proverb.

"What all men speak well of, look critically into; what all men condemn examine first before you decide"-- Confucius

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Offline Moeim2

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Re: why I'm here
« Reply #12 on: Thursday December 13, 2007, 11:17:22 PM »
Hi Bunnie,

Thank your for your response and clarification.  The link that appeared in your previous post when accessed, says New York Times Health Guide December 13, 2007, I believe.  Every time I double check that I lose this reply so sorry if I'm off.  I'm not very techy oriented. :-X

Maybe the other link you posted in the previous post was omitted somehow.  You are correct.  There is no cure for ED.  Only treatment.  I don't expect to change your or anyone else's opinion about natural remedies.  All I ask is that you maintain an open mind to the possibilities.  No judging from me, but I don't like feeling judged either.   I know it is a controversial topic for many.  Of course I understand we can post anywhere here, I have chosen to confine my comments for the most part in this section so I don't intrude on others posts to each other.  But like I said in a previous post here, I will put in my 2 cents worth here and there and offer suggestions that members might want to try that doesn't involve buying my products.  Honestly, I'm not that shallow.

Living in the UK puts a different perspective on medical care options, definitely.  I didn't realize you are there.  My apologies for not picking up on that.  Here in the USA medical care is limited, very expensive, and if a natural remedy can help someone, and it saves them the outrageous cost of prescriptions, they will often try it.  My mother-in-law suffers from high blood pressure and needs daily medication to control it.  She is on Medicare which is the US's version of free care.  She had to go a week without meds and got very sick because she maxed out on her allotment of meds.  Very sad and very scary... unfortunately very common here, too.

I wish our health care system was more like yours, but doesn't seem to be happening.  Here, some people have to choose between medication and food... it's terrible.

No one wants to offend anyone...I certainly don't.  I choose my words carefully because I know I am being judged by people here that are not as outspoken as you are.  I am very blunt as well when I talk about something, so please don't take offense from my comments either. 

I enjoy exchanging information with you and anyone else that participates and I don't shy away from conflict, ever!   I respect someone who steps up and engages me in a topic, even if we don't agree.

Blessings,
Maureen


bunnie

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Re: why I'm here
« Reply #13 on: Thursday December 13, 2007, 11:41:51 PM »
It seems Maureen then that we are alike in that respect. I know what sufferring is maureen, I do not make comments concerning illness without having experienced the very worst of situations. I was on my death bed twice,and spent months in hospital afterwards,  have spent many many years in and out of hospital for long periods of time, and my condition also totally blinded me. I too prefer people to do what you have done, (without being offensive to anyone) and step up to answer, rather than to ignore the points being raised. That is one of the prime ways in which we learn. I  was a nurse, with many years experience in the medical field, and I find natural remedies do not sit too comfortably with medical science.
But Anthro! why on earth would you refer to me as being carniverous!! What a dreadful word to describe a fellow human being! However, I continue to hope that you really do have some respect for me, as I have for you (without predudice, and despite our differences?) I don't however make unkind (and untrue) references about you Anthro,or anyone else, and I respectfully ask you not to do so concerning me, it really isn't necessary.
bunnie

Offline Moeim2

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Re: why I'm here
« Reply #14 on: Friday December 14, 2007, 12:27:36 AM »
Hiya Bunnie,

I hope you're not offended by Anthros's post.  He sounds like he has a wicked sense of humor 8)  But seems delightful and very protective of you all.  I'm sorry to hear about your experiences.  Life is not always fair.  I have been blessed with fairly good health, but there are so many aspects to life and something always seems to try our patience and our faith.  I am always kind of amazed to see that even people who seem to have lots of money, and material comforts can still live on the dark side of life.  It's very humbling to me and makes me grateful for what I have.  Puts life into perspective, doesn't it?

Blessings,
maureen


Offline anthropositor

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Re: why I'm here
« Reply #15 on: Friday December 14, 2007, 01:06:11 AM »
Hi Bunny,
Are you  vegetarian?  You could have fooled me!  I thought it was a compliment.  Had I wanted to insult you, maybe herbivore would have been more likely to pop up.  It was a metaphor my dear, as was my reference to us both being as thick-skinned as a pachyderm. 

One sense of the word carnivorous, is not meek, not ready to bolt into the forest at the first sign of trouble.  And ready to defend your meal from the hyenas.  These are all good things.  You have lot's of moxey!

Virtually everything I said in that post was complimentary, including carnivorous.  I was cautioning someone who you had squared off against, that if she wasn't very careful not to think of you as a little bunny nibbling some lettuce in farmer McGregors garden, she was in for a surprise.  The message was that you were a formidable opponent.  Where is the disrespect?

"The person who says it cannot be done should not interrupt the person doing it." Chinese Proverb.

"What all men speak well of, look critically into; what all men condemn examine first before you decide"-- Confucius

Pray to the Gods, for the Gods are not unless you pray to them.--Don Marquis

Offline Blue Bird

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Re: why I'm here
« Reply #16 on: Friday December 14, 2007, 07:32:09 AM »
 Moeim2> I know you are attempting to help people with your creams and natural remedies.
Many people come on here and also attempt to help people with their creams and remedies.
Since you are starting a home based business, I hope it takes off and does well.

However, your argument over my reticence to give out my home address might
seem to make sense, but the analogy fails at being logical.

Quote
And a side comment regarding Blue Sky's concern about sic. "giving out her address to strangers on the internet"... don't you think they already have it?  How does junk mail appear in our mailboxes anyway?  Every time we order something over the phone or the internet or subscribe to a magazine, our address is necessary or we won't get our order...

  Do I think strangers on the internet already have my home address: No I don't.
 
How does junk mail appear in our mailboxes: It gets sold by magazine subscription companies, credit card companies, and others.
 
 I personally never order anything over the internet. I do not order anything over the phone, either. I am not alone in this. I do know many people who have had their identity stolen through simple internet ordering activities. That is not to say you would do that, but it is a precaution that some of us take. Sorry.
 
 Thank you for listing those ingredients in your cream, though. That was kind and thoughtful of you. I appreciate that. I don't have any yeast problems, but I am going to continue to purchase those materials and see if any of them work for the small issue
that I have been battling, successfully, I might add. Successful, because I have tried
to use things that might help, and some of them have. I will try this and see if it helps finish the problem I have had.
 
 I hope you do well, I believe you could advertise on the net and get a lot of responses.
It is never easy for an entrepreneur to market anything remotely pharmaceutical, due to stringent rules imposed by the FDA.
 
 Best wishes to you on your business endeavours
When we understand that there is no up without a down,no over without an under, no good without a bad, no light without dark, no hot without cold, no yes without a no, we understand wholeness, and we cease to be disturbed, distressed, or perplexed by the illusion of anything less than wholeness.

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Re: why I'm here
« Reply #17 on: Friday December 14, 2007, 09:57:35 AM »
Hi BlueSky,
I rarely buy anything over the internet either, and don't use my credit cards for the purpose.  But when I do fill out an internet form I usually make some minor spelling error in the address.  These errors often make it to my mailbox in the next couple of weeks, often from several companies with whom I have had no contact.  I can only conclude that an internet contact sold the address to others.  These strategic misspellings show up ten times more in the Email.  It is the reason I don't do any banking on the net.  But even so, there is no guarantee that someone won't hack directly into the bank computer even though I have not made any transactions on the net, and glean personal and perhaps sensitive information.  I don't know if there is a perfect solution.  I know a few people who have told me of identity theft problems.  It pays to be vigilant.
"The person who says it cannot be done should not interrupt the person doing it." Chinese Proverb.

"What all men speak well of, look critically into; what all men condemn examine first before you decide"-- Confucius

Pray to the Gods, for the Gods are not unless you pray to them.--Don Marquis

bunnie

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Re: why I'm here
« Reply #18 on: Friday December 14, 2007, 11:48:44 AM »
Dear Anthro,
Explaining that remark the way you have Anthro, then I forgive you. I see you in the same light, that is why I have respect for you, but I don't use words which may have another meaning, rightly or wrongly I am very direct. I think we British tend to be a bit more circumspect and proper, stuffy if you like! I still maintain that under the wolf's skin there is a cuddly lamb, am I right, or would you never admit it? :roll:
(I mean that very kindly!) Anway Anthro, as ever ..... :-*
Bunnie
PS.
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You have lot's of moxey!
What does that mean? I'm intrigued!

Maureen,
 
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He sounds like he has a wicked sense of humor   But seems delightful
He has, and he is!
Please don't worry Maureen Anthro and I often clash, maybe its because we both feel passionately about things, I don't know. I would certainly miss him if he weren't here, and one thing is certain, we never allow our differences to cause a rift between us, we almost always thrash it out, and that in my opinion is also a learning process.
Bunnie

Offline itchychick

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Re: why I'm here
« Reply #19 on: Friday December 14, 2007, 04:38:34 PM »
 :clap:  It's so nice when everybody is friends! :lol:

If I can step in for anthro, bunnie... moxey (or is it moxie?) is "spunk" or "backbone".