off to hospital on the 1st, question for the ladies !!

[LIGA girl]

Even if they cant have empathy they should be able to listen and to believe, at the very least. My first derm also used to get cross with me because I wasnt getting better with his treatment, can you believe that? Also because there are so few with my disease and my case is the worst they have seen they were sceptical when I told them I was very tired and that I could no longer work. But then if I am having a really bad day I cancel my docs appts because I am just too tired to go, so they dont actually see me at my worst. I have explained all this to my GP and he is understanding (now), it was a struggle at first though.

Sorry to hijack your thread Rachel, but this stuff is sort of related   

[mnm mom]

Dear Rachel,
I am in my mid forty's and I am having the same thoughts. I will never have another child after this. But the trouble and pain I have is too much anymore. So I tell my self it's okay and thank God for the children I have. And yes I have tried everyother method to correct my problems and to tell you the truth the Drs. treatments were worst than the trouble I am having.
ALWAYS REMEMBER THAT drs. don't know everything and they will use us as Guinea pigs, so be careful at what you will let them try.
My sister-in-law had hers out when she was 30 due to on going trouble and she says it was the best thing she could have done. And yes she tried everything else before she had it done. And she still says that tyring everything before having it out was the wrong way to go, she wishes she had just had it out in the 1st place.
I hope your visit goes well.
Good luck
mnm mom

[rachel1]

hiya thanks for all the replies, liga girl dont worry about hijacking the thread like you say its all related. so i got back from the gynie about an hour ago
i got there they did the usual urine blods etc then i saw the doctor (to my suprize i got a lady because the man was off sick) she said so whats the problem i dont think she had read my notes or she would have known. so i told her i was still bleeding and in pain from having my last baby 7 months ago, she examined me and found a growth, she said not to worry but took a biopsy anyway to send off to the lab. then she put me on the pill and off she went
about half an hour later she came back with a scan apointment and said she will call me when the biopsy results come back.
she said a hystorectomy may not be nessasary but we will see what happens with the lab.
then she gave me stuff to read and sent me home




so ime going to sleep the anashetic off then ill be back on later to explain the rest
too tired just now

[Bamawing]

Have a good nap, Rachel. Best of luck with the biopsy.

[LIGA girl]

Yes best of luck with it Rachel,

I do agree with MNMMom too about not letting the docs experiment with you. I had a Mirena IUD put in as my treatment (it is not experimental) and it MAY have been responsible for my outbreak of linear iga 15 months later but it is impossible to prove. There is another thread on here started by Roni about the same device which she says caused her lots of problems, so be careful before agreeing to one if they suggest it.

[CalamityJane]

Good advice from LIGA rachel.

Wishing lots of luck w/the test results , and hoping you'll keep us up to date.

Jane

[mnm mom]

Hello rachel1,
I am glad to hear that you saw a woman. I hope it made you feel a little bit better about the whole thing.
And I hope you feel better when you wake up.
I will send you this because I have had a biopsy done in the office too.............
mnm mom

[rachel1]

thanks guys
i am feeling much better now i woke up this morning thinking it was friday and dave (partner) said no its sunday youve been in and out of it for days, oh well i must have needed it

my results shouldnt take too long to come back
i think i must live in that hospital between skin clinic endocrine clinic and gynie lol

[bunnie]

Hope the result is good Rachel.

i think i must live in that hospital between skin clinic endocrine clinic and gynie 

I know exactly how you feel Rachel, I was like that for 10 years! but it involved being admitted to different hospitals and different wards in my own hospital. awful!

[Bamawing]

I was getting a little worried there! Glad you're awake.

[Blue Bird]

 Rachel> I agree with your instinct to keep your uterus.
Not only for having having any future children, your uterus is also important to keep the structure of the internal organs in place in a young woman of your age, which is only 24. If the uterus is not diseased or damaged, I believe the latest medical reasoning is to keep the uterus intact, even if you do not have any more children.

 There are various new techniques for controlling excess bleeding. Ask your doctor to discuss all of those options with you so you can make an informed decision as to what method would be best for you.
 
I am concerned for your health, you are very important to your family. Once you know what the biopsy reveals, you and your doctor can discuss your options.
 
Best wishes for your good health, good fortune and happiness

[rachel1]

thanks guys,

no results yet but hopefully they will be soon

i had to stop the pill the doctor gave me because i was vomiting but they have given me another one now so that should be better.

[rachel1]

i ahve an ultrasound and an x ray today hopefully they will give me some awncers


ill let you know

[bunnie]

hope all goes well Rachel.
Bunnie

[rachel1]

thanks bunnie

it went fine turns out that when i had lilly my stitches wernt done (lilly was verry poorley and they needed to warm her up)

this caused an infection thats been gradually getting worse no wonder i have been in so much pain

it will be sorted now tho i hope

[LIGA girl]

It sounds awful Rachel, I hope it is sorted now ....

[bunnie]

Do you mean from an episiotomy ( incision of the perineum during childbirth) Rachel?
Did they not suture the incision??  Or did you not have soluble stitches and they never removed them?
In either case you have a claim there I would think. I think you have to claim before two years is up?? Lilly is only 7 months? Its quite shocking really if either is the case.
Bunnie

[rachel1]

bunny i didnt have an episiotomy it was because she came so quickly (40 mins in all) i wasnt ready and she tore me even tho she was small(32 weeks). they said in the delivery room that i needed stitches but because lilly was in trouble they sorted her out. About an hour later i got sent off for a shower and i came back in the room and said the amount i was bleeding wasnt normal (remmembering ive had babies before and you know yourself when something isnt right) they were more interested in the other mums that were laboring so i just didnt get the stitches

when i went to the post natal ward a midwife asked if she can check my stitches and i told her i didnt have any (now that makes sence) she said she must have got it rong she apologised and said she would look in my notes (mustnt have happened)

when lilly had to go  into neonatal at 3 days (we went home the day before) i was put back on the post natal ward because i was breast feeding her and again a midwife asked if she can check my stitches,again i said i didnt have them and she said she must have made a mistake and just checked my tummy.

at my 6 week check (14 weeks because she was prem) the doctor said she would refer me to the gynie because i was still bleeding but i had to try the pill injection first.

3 months later i was still bleeding only having 2 or 3 days clear so she refered me

now i am at the point where i think i am still in so much pain trying to care for all the kids maybee i should make a claim against them

my gynie told me yesturday she is going to photocopy my notes and i am to collect them tommorow so they cant be changed
she told me to claim aswell she said how would i feel if it happened to another woman and she lost her life over it?
awncer..... i would feel like a murderer

[rachel1]

Hello rachel1,
I am glad to hear that you saw a woman. I hope it made you feel a little bit better about the whole thing.
And I hope you feel better when you wake up.
I will send you this because I have had a biopsy done in the office too.............
mnm mom

lol i love that a biopsy in the office

[CalamityJane]

Holy smoke rachel1, what a horrific story.  I hope it gets sorted. I think you should sue them or something. That's outrageous!

Jane