I am new here too! (PLEVA)

[Doggburner]

Hello,

I was browsing for information from for my skin disorder and came upon this forum. Okay, let me get things starting and introduce myself.

I am 25 years of age and I am from the Philippines. Yesterday afternoon, I went to my Dermatologist and she said I have PLEVA. Currently, I am undergoing some treatment by applying some lotion/cream on my body and taking some capsules/pills for this.

I recently found out that this PLEVA has no known origin currently. What hurts most is there is no permanent cure as of the moment for this and I am really praying to God that he guides the doctors/scientists/experts to find some solution from this since I don't want any other person added to the list of PLEVA encounters. It pains me to have this since we are not that rich. I even dreamt of being a model but I guess since I am having PLEVA, its will just be a dream.

I've seen a lot of posts here that really encourages people/persons to feel good and I hope it would affect me as well.

Regards and still praying to be cured. 

[bunnie]

Hello  Doggburner! Welcome to skincell! lots of people on here who have this condition, and loads of information and support too!
Best wishes,
 Bunnie

[totalfolly]

Hiya, Doggburner, and welcome to SkinCell!

totalfolly

[L.]

 Hello Doggburner 

 I would love to visit your country one day 
 
 Welcome to skincell.
 Skincell is very international and I think you will like here.

 L.

[Uncle Matt]

Hey there Doggburner!!

Welcome to Skincell

I hope the medication helps with the PLEVA.

Matt

[Doggburner]

It's Christmas now and still I am not cured out of PLEVA.

Merry Christmas everyone!

[bunnie]

Hello again dogburner .
I am leaving a link to a page here on skincell where I try to explain what autoimmunity is. This is what you have , an autoimmune condition. There is no cure for these conditions unfortunately, those of us who have autoimmune conditions (of which there many, and you can have more than one) are genetically predisposed to having an autoimmune disease. It is a part of your make-up. Each different condition does of course have certain characteristics, for eg, how it manifests in your body, in this case your skin, and again, how it manifests in the skin. Also if there are likely to be periods of remission, or whether or not the condition is particular to young adults etc.
If you read that page, and click onto and read the other links, you may then understand what is happening regarding your autoimmune condition. I hope it helps, if you do not understand anything please ask.
http://www.skincell.org/community/index.php/topic,11344.msg287293.html#msg287293
regards bunnie

[Doggburner]

Thanks for the information Bunnie! It did really help alot.

I know this is a stupid question but do you guys know if smoking does or does not affect the speed of being cured out of PLEVA?

Should I quit smoking now?

I know I should but I just want to know that it came from you guys.

[bunnie]

Smoking is not good for your skin period! Smoking slows down recovery in every situation, take after surgery for instance. It certainly affects your breathing!! I was a very heavy smoker until 1999. Smoking was not the cause of my illness, but it made it much worse, and much longer to recover. Needless to say I stopped!
 

the speed of being cured out of PLEVA?

There is no cure for these conditions, but I do not think there is any evidence as yet that smoking has any direct affect on autoimmune disease itself , but may have in the manifestation of it in your skin, namely in your case, Pleva.
Please understand too that none of us are doctors on here.
Bunnie

[Doggburner]

Thanks Bunnie! I'll stop ASAP!

[Doggburner]

I just want to ask..

I know I have PLEVA and WHAT IF I had sex..will my partner get it as well?

[bunnie]

NO!!!
None of these type of diseases are hereditary or contagious in any way at all. Even hereditary disease is not contagious. Please, please, don't concern yourself with that. What you have is a faulty gene which has a predisposition, or more simply put, "is prone" to having an abnormal immune reaction of self to self; = autoimmunity. The prefix auto=Greek for self.  The fault is the predisposition itself.
There is a report by a certain *doctor* who believes that the condition is caused through the ingestion of various metal salts in foods. None of it proven, and none of it accepted by medical science research. If it were, then everybody with pleva would be on this treatment, from whom, I hasten to add, he will be making money out of these gullible people. A quote from a research report, which I posted and have taken from another post of mine.... I chose this one from many others, because it gives the facts very plainly. It is talking of Urticaria here, but the reference  is the same to anything that has a genetic predisposition fault.Please note that which is highlighted in bold.

While the disease is obviously physiological in origin, psychological treatments such as stress management can sometimes lessen severity and occurrence. Additionally, methods similar to psychological pain management can be used to shift focus away from the uncomfortability and itchiness during an attack.
Many people suffering from chronic conditions like urticaria, use some form of alternative medicine. There are little to no data to support the effectiveness of most of these therapies. Urticaria is often intermittent and idiopathic and can be caused by stress which amplifies the placebo effect .As such, many alternative treatments may seem to work great when in reality it is only a combination of the placebo effect and a chance remission in the disease.. 
Diet changes are often tried by people with urticaria in attempts to stop what is presumed to be a food allergy. Also, people often try changing their laundry detergents, shampoos, soaps etc. While food and other allergies can cause hive outbreaks, it is important to note that cholinergic urticaria and other urticaria outbreaks often occur on their own with no connection to food or other allergy.   Like users of alternative treatments, the fact that urticaria is intermittent and idiopathic can fool people into thinking that it is caused by an allergy to food or product.

That in bold applies to all who have  a genetic predisposition, or an hereditary skin disease.
Bunnie

[Doggburner]

Thanks Bunnie. What you posted would definitely give an ego boost for those who have PLEVA. I was afraid to have sex with my girlfriend thinking she would also get PLEVA as well. I am so so so very very thankful about this!

[Doggburner]

Does anyone know about a cure against PLEVA? I am really having mixed emotions now. Are there people out there (scientist or dermatologists) that are finding a way to cure this PLEVA disease? Can't they see that this disease is increasing?

God, please hear my/our prayers! Please help find a cure for PLEVA! Pleaaaaaaaaaaaaaaaaaaaaaaaase!!!

[bunnie]

Hi Doggburner, if you read some of the autoimmune articles thread, you may understand why it is you have this, and what can be done about it. You see doggburner there are many diseases which come under autoimmunity, over 80 in fact, some of which are hereditary, for eg. psoriasis or diabetes. Many of them like yours and mine and others on here, affect the skin, and although they manifest in the skin differently, they all stem from the same underlying problem, and that is  faulty genes. Most autoimmune diseases in fact, result from the combined effects of several genes that must act in concert to determine disease susceptibility.
Mutations in genes, in turn, cause malfunctions in the interacting cells of the immune system, and in combination result in the abnormal immune response.  (autoimmune response)

Can't they see that this disease is increasing?

Very much so doggburner. Autoimmune disease is on the increase, but that could be because now it is known how to detect autoimmune conditions, whereas it was difficult to diagnose acurately a few years ago. Even now a GP will treat their patient for scabies or impetigo, when the patient has in fact got a rare autoimmune skin condition. The right tests and biopsies must be carried out you see. In order to understand autoimmunity, one must first understand immunity, which as you may know is a very complex subject, but scientists have made huge strides in the last 3 or 4 years, and have identified the genes in some diseases. If they find a way of repairing the mutated genes, then the cell malfunctioning will stop too, and then all autoimmune disease will have a cure. Until then....? All that can be done for autoimmune disease, is to regulate and control it. That for the present is the goal of treatment. I have done lots of posts on this subject, if you care to read them doggburner, because understanding "why" you have it is half the battle. It also becomes clear through that understanding what can possibly help the control, and what most definately can't! The research you see is not for each individual disease, (although of course research into the pathogenesis of each individual disease is current), but the real answer lies in the genetic predisposition to autoimmunity itself.
I have almost finished a long  typed study on this, presented in a way I hope is very easy to understand, which I hope to post soon. What it is really is my written account of my own journey in trying to understand this very complex subject.
These diseases are awful, they can wreck lives, it certainly totally wrecked mine in the physical sense, but hopefully because of our sufferring others may not, in the future. I pray for that too doggburner. Meanwhile, we need to keep   
kind regards bunnie.

[Doggburner]

Thanks for the explanation Bunnie. I am thankful for what you posted. I guess its inevitable for newbies (like me) of this kind of diseases to BREAK OUT once in awhile.

I am seeing a new dermatologist and I am taking steriods now (from Tetracycline). I hope it does make a change. *sob*

[Doggburner]

I still have it.. 

[bunnie]

Hi doggburner,  sorry to hear that, but try not to be disheartened. Take a look on the plc thread, others on there with pleva. here's the link....
http://www.skincell.org/community/index.php/topic,11344.400.html
I think this is the last page but you can read back to page one. Hope you find a bit more info there.
regards Bunnie

[Doggburner]

It's been a few months since I last visited and posted in here. Still has no sign of any good development. I guess I am one of those unlucky person who has PLEVA. As of now, I think I have a thousand scars all over my body (except for my face and my genitals). Oh well, still waiting for the day that someone calls out everyone who has PLEVA and start saying goodnews like "We have discovered the cure for PLEVA!". Hey, it isn't bad to be hopeful isn't it?

[Doggburner]

It has been two years since I posted my first thread here. A story to tell, I was cleared of PLEVA for two weeks ago and was happy about it. Sadly, it came back after I tried drinking a bottle of beer. Crap! I guess no more beers or anything alike for me now.