researching Pleva

[Bev]

Hi Tinker
Welcome to Skincell

[peterb]

 :hi:Tinker

A big welcome to the forum.

Peter and Rosie.

 

[sdok]

I'm not sure if there is any connection to a tic bite or not.  Things that I've been reading indicate that PLEVA may be an immune thing, like allergies and psoraisis.  Has your doc checked you for LYME's disease after the tic bite (Was it a deer tic?)  I believe that there is a simple blood test to detect it.

[peterb]

 :hi:gracie4prez

A warm belated welcome to Skincell.

Peter and Rosie.

 

[gracie4prez]

I underwent PUVA treatment for my Pleva and it worked wonders.  At first, my skin seemed to get more "enflamed" -- the treatment made my normal skin quite pink and my Pleva spots were bright red (and seemed to expand), but after more sessions it is completely cleared.  I know some people have not had the same results but for me, after trying doses of Tetracycline, Erythromycin, Zithromax and Acyclovir, PUVA was the only thing that actually helped.  If your insurance doesn't cover all of the costs of the treatment it can be expensive (I had about 25 treatments at $20 apiece) and a little time-consuming, but it's definitely worth a try if you can handle it.

Good luck!
Gracie

[maffei1]

Lori, I found a bit of information regarding the treatment of Pleva using UVA.

Don't know if you have come across this previously ? ? ?

<quote from a study>

Sir, do you a citation for this study? I am currently trying UVA treatment for PLEVA, and, the more I can know, the better!

Thanks so much.
Timothy

[peterb]

Hi Timothy

Welcome to the forum.

[maffei1]

I'm not sure if there is any connection to a tic bite or not.  Things that I've been reading indicate that PLEVA may be an immune thing, like allergies and psoraisis.  Has your doc checked you for LYME's disease after the tic bite (Was it a deer tic?)  I believe that there is a simple blood test to detect it.

I've had PLEVA for ~6 months now and still have it.

Just before lesions began to break out, I noticed something that seemed to resemble a bug bite of sorts on the inside of my left arm - perhaps a spider bite - near my armpit area. No other lesion of my body has ever looked like this. The "bite" looked pretty serious and it took weeks to heal. I never felt a bite so I don't even know if that's what it was. If it was a bite, I don't know if it has any connection to my PLEVA. But, perhaps.

[J]

Hi Lori,

I read another message from you in which you said your daughter had the chronic version - pityriasis lichenoides chronica (PLC).  Now I saw it says PLEVA.  I know they are related, but which one does she have?  My daughter got PLC when she was 2 and has had it for nearly five years.  She does get that hypopigmentation - when the spots fade.  The pigment does even out after a few weeks or months.  It is alot more conspicuous when she has a bit of a tan.  I am looking for more info on PLC, so let me know if this is what your daughter has. 

Take care,

Jahan

[mee!]

there is cure for pleva! it's an anti-biotic called apo-erythro or eythromycin. i also had pleva and the anti-biotic is really effective. ask your dermatologist about it.

[peterb]

there is cure for pleva! it's an anti-biotic called apo-erythro or eythromycin. i also had pleva and the anti-biotic is really effective. ask your dermatologist about it.

Hi mee

Welcome to the forum.  The anti's you mention have been well documented for PLEVA along with Systemics for severe cases. I thought although these helped they weren't a cure.  PLEVA is one of those conditions that can effect someone for months or several years, then all of a sudden go.

[Chrystal]

Hey,
I'm new to this site, but I have had pleva since I was 10 and I am now 23.  I've took medicine and tried creams, but nothing has seemed to help me   I think that if they could get a bunch of people who have pleva together to discuss their lifestyles and stuff, that maybe there could be a cure figured out or a cause.  I would enjoy exchaning emails with ya!
THanks,
Chrystal

[davidt]

Just before lesions began to break out, I noticed something that seemed to resemble a bug bite of sorts on the inside of my left arm - perhaps a spider bite - near my armpit area. No other lesion of my body has ever looked like this. The "bite" looked pretty serious and it took weeks to heal. I never felt a bite so I don't even know if that's what it was. If it was a bite, I don't know if it has any connection to my PLEVA. But, perhaps.

Hi maffei,
I too, had what I was describing as a "spider bite" prior to the onset of PLEVA.  Several raised (not red) bumps in a circle on my upper left arm!  The total size of this legion was about the size of a quarter and it remained for almost 8 weeeks.  It was beginning to bother me.  I had assumed that a spider or something else may hay bitten me as I slept...  Then a few months later the PLEVA first appeared.  Id say that it stayed for  about 2-3 weeks, an I ve had it, on and off several times since then.  I am rather fair skinned and find that when Im in Florida or the Carribbean, The strong Sun seems to aggrivate it.
I had researched this disease on the Net, and concluded it was PLEVA.  I finally went to see a doc yesterday who confirmed that it  is "pityriasis".  He really seemed to know less about it than I did after a few hours on the net.  He prescribed Cephalexin-500  (keflex)  which is used to kill skin infections, but i doubt it will work.  If this is indeed a virus, It will remain within the body only manifesting itself when the body is stressed.  I may ask him for a prescription for zorax after this stuff is used up...

[Sha]

davidt,

Welcome to Skincell!

I had Pityriasis Rosea a long time ago.  I described it to another member earlier in this thread.  If, you have any questions for me feel free to ask.  Did you see a Derm yesterday?  Did the Dr prescribe a topical cream for you?

Sha

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[sheep_steve]

Hey Everyone

Well I had pleva, then got rid of it for two years. It is back now but is leaving again. What works for me to get it gone quickly? TANNING SALONS. It is a different light than the light treatment, i tried that. BUt it works well. Also, sports or extreem sweating irritate it. Anything that maintains your sweat pressed against your skin will further irritate the condition. I believe a tanning salon provides UVA and light treatment UVB, or the other way around. But tanning is more powerful and it is sure to help dispatch the condition in time.

[tipzoid]

HEY ALL! I was diagnosed with pleva last october. I was panicking left and right when I couldnt' stop it. It eventually stopped spreading since December and now it is back. I think it is linked with sweating or heat. This past week has been extremely hot and I'm getting new spots (first time in several months) It seems a lot of people have had success with sunlight but it's bad for you. =(  I hope someone comes up with a cure soon before my entire body is filled with spots.

[sjackson]

Hi I am new to the forum.  We were just told that my 10 year old son has pleva.  This site has been the most helpful of all the ones that I have read.  He is doing the the UVB light and eurithromycin. My son is having a hard time with this medicine it makes him sick.   Based on some things I have read here we started using the Caladryl.  My question is when many of you say you have had it for years do you get it intermittent or is it for periods of 2-3 three months at a time.  Our first outbreak was bad and we were told scabies and chicken pox.  This time is seems to be calmer maybe due to the light box and the meds?

[EX-itchell]

To Pleva sufferers

Look at the PLC link, as the disease is a form of plc.  I agree with tizoid that sweat shouldn't stay on the body, that just makes things worse.  So wear only pure cotton, which is the only fabric I found that would let me skin breathe.  Thinking about it the sports material that wicks away sweat may well work too.

Tanning helps some people, but it made me hurt. 

To keep cool use ice packs on the hot and itchy areas which is necessary to prevent scratching, and further break outs.

For me the disease started when I was very stressed, and maybe was linked to autoimmune problem, or / and liver being sluggish.  I cured it naturally with a vegetarian only diet, excluding all stimulants, alcohol, fizzy drinks, gluten and most lactose.

I wish you every luck,

EX-itchell

[psu921]

I have had Pleva for over 1 year now and it is not been easy.  My sores have been very small to boil like.  I am on my 3rd antibiotic Erythromycin and 2nd dermatologist and thought I was making progress, but it seems I am getting more sores then before.  For those of you who have tried zorax or generic called  acyclovir, what are the side affects?  How long have you had to take it?  How many milligrams are required?  It seems that many on this forum have had luck with this drug and I would like to give it ago before I try UVA treatment which for me will be very expensive if I have to do it 2 to 3 times a week.  It seems my arms and upper legs have taken the brunt of this disease, but my torso is starting to get sores as well.  I would like to stop it before my whole body is covered.  My sores get so big that they are painful or itch, so this has not been fun as most of you can attest too.

[ashley's mom]

My 13 year old daughter has been diagnosed with Pleva.  After 6 months of steroid creams, prednisone, and minycin, I am now ready to try UVB and anything homeopathic.  I bought Goji juice, and a few supplements at a natural foods store.  anyone have any success with that route?