Author Topic: Linear IGA Bullous Dermatosis  (Read 576717 times)

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Offline amdismal

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Re: Linear IGA Bullous Dermatosis
« Reply #2100 on: Friday July 07, 2017, 04:58:35 AM »
I am disappointed to see (after spending days of reading through this whole thread) that no one has responded here in over 3 years. Is there anyone still out there?
I still get notifications, it seems :)

There is a Facebook group that is fairly active - search on there for linear IGA and you should find it. Facebook groups are closed, so non members can't see what you post; I think this helps, but it does make it less obvious from a Google search of the disease.

Offline DavidDampier

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Re: (Linear IGA Disease)Doctors&specialists do not know everything
« Reply #2101 on: Thursday November 12, 2020, 01:31:12 PM »
Bunnie,
I am so sorry for your ordeal but happy to hear you have your vision back.

I too have Linear IgA and have mentioned to the others on this site to make sure you get a yearly eye exam with a good opthamologist who knows about Linear IgA or at least what to look for.  It can wreak havoc in your eyes which you obviously can attest to.

Thanks for sharing your story and reminding others of how it can be in the eye.  My doctor informed me of this about six months after being diagnosed so I have been getting my eyes checked yearly.

Nicole





Background
Linear immunoglobulin A (IgA) dermatosis (LAD) is an autoimmune subepidermal vesiculobullous disease that may be idiopathic or drug-induced. Children and adults are affected, with disease of the former historically referred to as chronic bullous dermatosis of childhood. The clinical presentation is heterogeneous and appears similar to other blistering diseases, such as bullous pemphigoid and dermatitis herpetiformis

Offline DavidDampier

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Re: (Linear IGA Disease)Doctors&specialists do not know everything
« Reply #2102 on: Thursday November 12, 2020, 01:36:46 PM »
Bunnie,
I am so sorry for your ordeal but happy to hear you have your vision back.

I too have Linear IgA and have mentioned to the others on this site to make sure you get a yearly eye exam with a good opthamologist who knows about Linear IgA or at least what to look for.  It can wreak havoc in your eyes which you obviously can attest to.

Thanks for sharing your story and reminding others of how it can be in the eye.  My doctor informed me of this about six months after being diagnosed so I have been getting my eyes checked yearly.

Nicole

Background
Linear immunoglobulin A (IgA) dermatosis (LAD) is an autoimmune subepidermal vesiculobullous disease that may be idiopathic or drug-induced. Children and adults are affected, with disease of the former historically referred to as chronic bullous dermatosis of childhood. The clinical presentation is heterogeneous and appears similar to other blistering diseases, such as bullous pemphigoid and dermatitis herpetiformis