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SkinCell Forum > General Category > Let me introduce myself ... > Topic: i have HS and i don't have a life at all...
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Author Topic: i have HS and i don't have a life at all...  (Read 928 times)
9055
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h s



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« on: Saturday September 30, 2006, 04:19:35 AM »
 ::)i am in great need of support. suffering in silence for 15 yrs finally got my diagoses last month from a good derm that was familiar with this disease
other derms would just look and not really know wat it was...
this disease affects everything i do. it has spread from boobs butt pitsand especially groin areas so embarrasing and i am so discusted by it i have volunteered to distribute brochures in clinics trying to get other people out there to finally seek help...i cant really wait for a cure
« Last Edit: Friday October 13, 2006, 02:44:00 AM by 9055 » Logged
GScar
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Skin Condition:
Hidradenitis Suppurativa



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« Reply #1 on: Saturday September 30, 2006, 04:39:06 AM »
Quote from: 9055 on Saturday September 30, 2006, 04:19:35 AM
  i feel i am going to be alone forever because a person with normal skin would be disgusted to even look at my body....

I feel like that sometimes too 9055. sure wish i had an answer for ya.
 Hugs
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Ryan
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« Reply #2 on: Saturday September 30, 2006, 01:32:47 PM »
Hi there Welcome To SkinCell Hi there
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People sleep peaceably in their beds at night only because rough men stand ready to do violence on their behalf
 
totalfolly
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« Reply #3 on: Sunday October 01, 2006, 10:30:33 PM »
Hiya, 9055, and welcome to SkinCell!

I can't answer your question as I don't have Hidradenitis Suppurativa but I can at least offer support.  Hugs

totalfolly
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"If you hear a voice within you say 'You cannot paint'
then by all means paint, and that voice will be silenced."
 -- Vincent vanGogh
bunnie
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« Reply #4 on: Monday October 02, 2006, 09:56:54 PM »
Hi 9055, So sorry you are feeling so down, we all understand how you are feeling, believe me, even though we don't all have the same condition.You will find lots of support on Skincell, so you have come to the right place. Best Wishes Bunnie
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Redsox
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Skin Condition:
HS and Psoriasis



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« Reply #5 on: Wednesday October 04, 2006, 01:14:10 PM »
Hi 9055

One thing about me is that I dont keep anything secret. All of my family and most of my friends and colleagues know that I have HS and when they ask what is is I print off the info from this site for them to read. I like to share my pain if you know what I mean. I always have someone to talk to about it and nobody gets disgusted (well at least not to my face  Wink) I do have a boyfriend and sometimes he gets nelgected when i'm not feeling all that well but he understands and takes care of me because he loves me. I too never thought I would find anyone because I thought I was a monster!!! But there are nice guys out there who will love you for you and not what your body looks like!!! Please dont hide yourself away because that is what makes us depressed. Like any other person you have to put yourself out there  because you cant win if you dont play!! I hope you are feeling better these days and you know where we are if you need to let off steam.

Luv
Redsox
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Daisey
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« Reply #6 on: Thursday October 05, 2006, 01:16:04 AM »
 Hi there Welcome to SkinCell!!

~ D
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Wooley
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« Reply #7 on: Saturday October 14, 2006, 08:06:23 PM »
Hi 9055  Hi there

Welcome to SkinCell. Sorry I am so late in welcoming you.

I hope you will find lots of help and support here.

Wooley
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