Author Topic: Grover's disease  (Read 829025 times)

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Offline ckg1989

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Re: Grover's disease
« Reply #1940 on: Monday January 29, 2018, 10:32:59 PM »
I am a 46.5 year old female who lives in AZ. I have had Grover's since October 2016. Severe case, started on both arms, went to chest, back, thighs, legs.. I had it neck to ankle for 10 out of 12 months. For the 2 months I had it only on my chest and hips.

I cured myself, after a very long 14 months with a severe case. I started taking high quality Vit D for hair loss, 4500IU per day, some days I take an extra 1500IU just because. It was a tip I received from my cousin, her daughter has severe alopecia the doctor used it to get it under control. I don't have alopecia, but wanted to give it a try. After 2 weeks almost half of my rash was gone, after 30 days the rash was gone. It has been 80ish days, no rash at all. First time in 16 months. No doctor, no article I have read said to try Vit D; they all said B6/B12. I never thought I would be thankful for hair loss, but now I am!!

FYI My blood work in 2016 showed my Vit D was in the normal range, low end, but normal. If you are in the normal range take it any way and get your Vit K checked to ensure that level is good bc if your Vit K is not working correctly your body will not absorb the Vit D.

Low Vit D drives auto immune issues. When I looked at the list of what Vit D deficiency can do to a woman's body, sure men too, I about fell over. I wondered WHY this is not a standard practice for someone who develops Grover's. I tried soo much crap, it really infuriates me that it was this simple. My rash was horrid.

I do not know how to get this information out there, I am going to post it where ever I can.
« Last Edit: Monday January 29, 2018, 10:39:07 PM by ckg1989 »

Offline golfboy307

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Re: Grover's disease
« Reply #1941 on: Wednesday January 31, 2018, 09:11:39 PM »
To the poster above who swims a lot, both pool water and ocean water are triggers for my Grover's.  My disease is mainly in remission, thanks to several years of reducing the mercury load in my body.  (See above posts).  But it still can flare.  Everyone has slightly different triggers.  Mine are heat, pool and ocean water.  My skin is remarkably clear in the winter.  This is after three years of a pretty severe outbreak.  Like you, my best defense is Triamcinolone cream.

To the other poster's question:  Grover's is generally considered a benign (if annoying) medical condition.

To CKG:  congrats on the Vitamin D treatment.  It does work very well in a few cases.  Many of us tried it to no avail.  Glad it helped.

Up to 80% of most Grover's cases resolve on their own in the first 6-12 months.  For the rest of us, it becomes a lifelong condition to manage.   

Best wishes to all still on the Forum!  JD and Danny great to hear from you

Offline Naneki06

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Re: Grover's disease
« Reply #1942 on: Friday February 09, 2018, 08:05:23 PM »
I just found out today I have Grover's Disease :'(.  It started in December.  My skin has been flawless for 58 years and now this.  My back is covered.  My doctor is giving me a cream, but is there anything else I can do (i.e., diet, supplements, etc.) to help this go way faster.  Most of the post I see are coming from men, any women have this problem.  Thanks!

Offline Elisa

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Grover's disease
« Reply #1943 on: Saturday February 10, 2018, 08:37:24 AM »
Hello,

I am a woman who had/has Grovers.  It lasted for about a year and a half.  My posts on this thread go way back.....
Today I still have a few spots on my chest that appear from time to time and then go again.  A new dermatologist recommended
this cream and it seems to be pretty effective: Eucerin (the German laboratory based in Hamburg) "Complete repair UREA PLUS".
In the past when my Grovers was truly very serious, I used a plant cream that no longer exists but which helped enormously. 
Although I have very little Grovers these days this new cream is worth trying I think.

All the best, I hope your case will be like mine, a transient one.
Elisa

N.B.  I have been a vegetarian all my life (no meat no fish) and I have always been extremely sportive. I am blonde with blue eyes and spent too much time in the sun (unprotected) when I was a child in the sixties.

Offline TomA

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Re: Grover's disease
« Reply #1944 on: Saturday February 10, 2018, 04:09:05 PM »
A number of women have shared on this chain, indeed it was started by a woman. There first few months are the worst and this disease is usually a temporary condition lasting 6-12 months. I've had to use a typical steroid, Triamcinolone, to get relief but you have to use it very sparingly. I've also found, ironically, that a hairdryer on high takes the string out for a while. That enabled me to start being able to sleep at night. Currently, I'm just using Cortisone 10 and Gold Bond Excema Relief lotion to cool down my skin. Hopefully, you have the temporary Grover's and it will pass on a few months.

Offline ckg1989

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Re: Grover's disease
« Reply #1945 on: Wednesday February 14, 2018, 03:59:46 AM »
Thank you, golfboy307! It has been a long road. I had no idea Vit D was even a treatment for it, I wish I had known a lot sooner!

Offline clemente

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Re: Grover's disease
« Reply #1946 on: Sunday April 01, 2018, 04:22:04 AM »
(Male, 58) I was diagnosed with Grover's August 14th, 2017 after several months of seeing little red patches pop up on my shoulder. Two biopsies were taken. One with Grover's the other was diagnosed as Chronic Folliculitis. Seems they are the same. I've read through much of this forum. I feel terrible for everyone who is suffering much more than I am and I pray for your healing and that mine does not get worse.

I have also had several instances of BCC in the past. I really hadn't experienced the horrid itching until I had a whole pompano fish at a Thai restaurant. I think I had some type of allergic reaction that caused something strange to happen and my Grover's went ballistic spreading to my chest and itching really bad.

Someone on this forum said a zinc based ointment worked well for relief. I happened to have a bottle of zinc assay in the cabinet so I put it on my outbreak full strength. It stings like crazy but after a bit I have complete relief and control. Each red spot seems like it is drying up and if I scratch it, it will bust open and ooze a little liquid. Yuck. I hope that doesn't cause it to spread. I've also tried clove oil and DMSO. Seems to bring the worst out to the top of the skin OR speeds up the cycle.

What I've learned from this forum is that there are many different things tried but not one specific thing that fixes. Lots of reading so I won't continue blabbering away.

I'm really liking what I just read today about overall body acidity, yeast or fungus, and nutrient deficiency. Seems like there might be something significant there in that line of thinking.

My goal is to study and choose a protocol, stick to it and see if it works. I'm thinking this is an autoimmune response. Love and healing to all. Praise be to God.

Offline golfboy307

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Re: Grover's disease
« Reply #1947 on: Wednesday April 11, 2018, 07:46:41 PM »
Clemente,

I would also add that if you had a severe reaction after eating fish, don't ignore the mercury angle.  Reducing/eliminating mercury has helped a lot of us on this forum.  As you mentioned, any other methods that contribute to overall skin health will help as well.