Author Topic: Grover's disease  (Read 750172 times)

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Offline TomA

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Re: Grover's disease
« Reply #1920 on: Wednesday May 24, 2017, 09:37:25 PM »
As you can see from my previous posts, for the past several years I've settled on Triamcinolone cream and them blast the spots with a hair dryer on high, which takes the sting away immediately​. I've not found anything else that works as well.

Offline Olive

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Re: Grover's disease
« Reply #1921 on: Friday May 26, 2017, 02:32:29 AM »
Hello! I'm a 60 yo female with Grovers's disease. I have had this condition for years. Recently, the itching and painful skin lead me into the derm office one again. I was just prescribed sodium sulfacetamide 10%/sulfur 5% cleanser. The doc also wanted to start me on a low dose long term antibiotic. I've been down that long road before and didn't want to go there again. I did request spironolactone as I have had success with this hormone blocker before. So far, not much improvement as my conditions waxes and wanes. I have very painful areas under my bra line and crazy itching on my back. This flare has my scalp and itching and bumpy. I also have a history of Hashimotos throiditis, but not hypothyroid at this time according to my last labs. Every year I mix and match my hydrocortisone and fungal cream with limited success. As summer is approaching in Texas, I am hoping for some new suggestions to avoid the painful bumps under my bra line. I love being outside but am having a harder time with the heat aggravating my condition. I'm irritable and once again looking for a soultion for coping with this horrible skin disease. Is Grovers disease considered an autoimmune disorder? My derm acted like it isn't a big deal, but I feel other wise. Yesterday I had intense itching that doesn't respond to OTC antihistamines. Derm doc didn't offer any thing else for the itching other that the wash. Anyone have any suggestions for the itching other that the moisturizing lotions?? Thank you for listening and letting me share my story.

Offline Elisa

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Re: Grover's disease
« Reply #1922 on: Friday May 26, 2017, 07:05:42 AM »
Hello Olive,

I suggest you read through the zillions of pages on this thread.  You'll find on these pages some temporary solutions to Grovers, albeit quite different solutions....nobody really knows.

Everyday I plaster my bra line in cream (sort of shea butter but made with plants) - there's a lot of reference to it on here.

We are all coping with our Grovers, irrespective of the stage it is at and you will too.  You will learn how to live with it, to the extent that it doesn't intrude that much into your life (well, of course it does, but I'm being positive....).

All the best,
Elisa

Offline golfboy307

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Re: Grover's disease
« Reply #1923 on: Tuesday June 13, 2017, 06:48:28 PM »
Olive,

I agree with Elisa, there is a lot of info back in these pages.  One of the approaches that worked for several people (but not all) was eliminating mercury.  There is a dermatologist in NYC named Dr. Paul Danzig that is convinced Grover's is caused by, or exacerbated by mercury in the body.  He encourages people to have their amalgram fillings out and eliminate seafood, followed by a course of chelation (to remove mercury from the body).  He claims a 90% success rate.  I followed his plan, but didn't do much chelation.  I have to say over the course of two years, my Grover's has subsided by about 80-90%.  I still get a small number of spots on my stomach, but not torso wide like I used to.  Am I cured?  No, but it made it much better.  And like you it does get worse in hot weather. 

Like TomA, triamcinolone is my favorite topical.

Hope that gives you something to consider.

Offline Journeyman

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Re: Grover's disease
« Reply #1924 on: Monday July 24, 2017, 07:59:22 AM »
As we've agreed, Grover's is very diverse.  I'm much drawn to the notion that mine is triggered by low levels of Vitamin D, as it seems to come on with winter, and also seems to respond a little to Vit D supplementation.  I don't seem to have a problem with sun, warm weather, seawater, etc.

Just something you might care to try, if you haven't.

Good luck!

Offline Iain

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Re: Grover's disease
« Reply #1925 on: Sunday August 06, 2017, 02:02:20 PM »
I have suffered from Grovers for almost a year now diagnosed by biopsy. It seems to affect the upper back mostly with some on the chest and and slightly the neck. Symptoms were worse in winter.
I found two ways to control it, and now from my research I believe I have found the way to resolve it.

I hit on the way to control the itch quite quickly, which is to bath daily and using a back scrub belt dosed with head and shoulders shampoo as used to treat dandruff, by scrubbing the back for 5 minutes daly to remove the sebum oil from the skin.The active ingredient in the shampoo is pyrithione zinc.
I like others found daily doses of 800 to 1200 iu of vitamin d3 somewhat helped my tolerance of the itch.
These facts led me to conclude there was a similarity to dandruff. The active organism in dandruff is a naturally occurring yeast called malassezia globosa. There are a number of yeasts in that family which inhabit skin in warm blooded animals and cause skin irritation.

I am now treating my Grovers as if it was a yeast infection.
Malassezia yeasts thrive on sebum oil, which corresponds to the area of the irritation. Daily
Cleansing as described with head and shoulders shampoo, and maintaining higher skin acidity by using a 25percent vinagre topical wipe on my skin are now reducing and stopping the irritation and my skin is healing.
I read that oral dosing with either itraconazol or ketaconazol can kill the yeast irritation. I haven't tried these because the yeast is a naturally occurring organism on our skin it will return, so I prefer daily control. However they are an option you may discuss with your doctor.

I hope that others will follow my ideas and find them helpful. For me it has changed my life understanding what is the cause of this intolerable itch and now being able to control it, prevent the itching, and allowing my skin to heal.

Kind regards
Iain



Offline Paul W G

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Re: Grover's disease
« Reply #1926 on: Monday August 07, 2017, 06:37:58 PM »
Greetings from New Zealand and hello to you all. Thank you to all the past and present contributions to this forum. When you are suffering with acute GD and very little sleep for weeks this forum is fantastic. Having GD for two years now it turned acute about two months ago. After following all the advise from fellow members i came to the conclusion that i had mercury poisoning as i eat huge amounts of fish. Two weeks ago i eliminated all fish dairy alcohol. This made no difference to my GD. I booked in to see my Naturopath to see if he could do something for the Mercury. This man is 80 and in fantastic health. He had never heard of Grovers and did not even look at it. He looked in my eyes at my hands and said he doubted that i had mercury poisoning and said that my body was highly acidic and dehydrated. He believed i had a mineral deficency and my face showed high stress. He put me on two homeopathic products fro NEW ERA. A number 3 calc/sulph and a number 10 nat/phos supplements. I went home and looked up cronic acidity in your body and found that plain old baking soda in water is the cheapest cure. Well four days on and last nite i slept for 8 hours. The first time in two months. My body is covered in tiny scabs from sores that are drying out and healing. It is clear that everyone is different and GD comes out for different reasons but if any of this infomation can help anyone suffering then i will be very pleased. 

Regards

Paul

Offline djdmjd

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Re: Grover's disease
« Reply #1927 on: Thursday August 10, 2017, 04:15:35 PM »
Greetings from New Zealand and hello to you all. Thank you to all the past and present contributions to this forum. When you are suffering with acute GD and very little sleep for weeks this forum is fantastic. Having GD for two years now it turned acute about two months ago. After following all the advise from fellow members i came to the conclusion that i had mercury poisoning as i eat huge amounts of fish. Two weeks ago i eliminated all fish dairy alcohol. This made no difference to my GD. I booked in to see my Naturopath to see if he could do something for the Mercury. This man is 80 and in fantastic health. He had never heard of Grovers and did not even look at it. He looked in my eyes at my hands and said he doubted that i had mercury poisoning and said that my body was highly acidic and dehydrated. He believed i had a mineral deficency and my face showed high stress. He put me on two homeopathic products fro NEW ERA. A number 3 calc/sulph and a number 10 nat/phos supplements. I went home and looked up cronic acidity in your body and found that plain old baking soda in water is the cheapest cure. Well four days on and last nite i slept for 8 hours. The first time in two months. My body is covered in tiny scabs from sores that are drying out and healing. It is clear that everyone is different and GD comes out for different reasons but if any of this infomation can help anyone suffering then i will be very pleased. 

Regards

Paul
How much baking soda to how much water please?
DD