ctancha
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Skin Condition: Disseminated Superficial Actinic Porokeratosis (DSAP)
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« on: Thursday April 07, 2005, 02:16:38 AM » |
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Hi all,
I posted a rather extensive message on DSAP. I am looking to hear about others' stories. This is a genetic disease that is mostly found in women. I think that it is autosomal dominant. I first found out that I had it when I was 21. I have asked dermatologists about it, but nothing has really worked. I think that the disease is not well understood. I am thinking that there may be ways that we can better deal with the condition, but have yet to see any results from non-specific DNA-damaging agents, such as 5'-fluoro-uracil, the gold standard for current treatment. (See my other post under DSAP).
It is too bad that we don't have any ways of treating this. The disease, when it is strictly caused by the sun (no genetic part), is detectable by certain changes in DNA structure, that are characterizable by DNA sequencing. These so-called UV damage hot spots are statistically different from those in DSAP, the genetic keratoses. I will continue my reading, but so far, nothing else is new...
Carlysle... (scientist in training)
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MarieC
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« Reply #1 on: Thursday April 07, 2005, 02:27:57 AM » |
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 ctancha! |
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"To live a sheltered life is to live no life at all." - me
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totalfolly
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Skin Condition: Rosacea, Eczema
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« Reply #2 on: Thursday April 07, 2005, 02:44:22 AM » |
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Hiya, Carlysle, and welcome to SkinCell!
totalfolly
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 "If you hear a voice within you say 'You cannot paint' then by all means paint, and that voice will be silenced." -- Vincent vanGogh  |
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Sha
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« Reply #3 on: Thursday April 07, 2005, 04:24:44 AM » |
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Carlysle, Welcome to Skincell!  I hope you find the information you are looking for. I know that having a condition that there is not alot of info on can be very frustrating.  Please keep us up to date on your conditon & your research. Best wishes, Sha |
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withu
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« Reply #4 on: Thursday April 07, 2005, 02:49:22 PM » |
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 Welome to Skincell Carlysle! 
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Gobe
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« Reply #5 on: Thursday April 07, 2005, 05:34:18 PM » |
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Welcome to Skicnell Carlysle!
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Wooley
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Skin Condition: Psoriasis & sensitive skin
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« Reply #6 on: Thursday April 07, 2005, 06:50:25 PM » |
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Welcome to SkinCell Carlysle
Wooley
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psirosisvirgin
SkinCell Grand
Nattering Nightengale
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Skin Condition: guttate Psoriasis
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« Reply #7 on: Thursday April 07, 2005, 08:28:39 PM » |
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Welcome to skin cell Carlysle |
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Sometimes the man at the top of the mountain......Has the smelliest shoes.....
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bigfishe
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Skin Condition: Son with eczema
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« Reply #8 on: Saturday April 09, 2005, 05:35:40 AM » |
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Welcome!!
Never heard of your disease but I will ask some of my professors (studying to be a nurse and am now obsessed with skin disorders).
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It is the mark of an educated mind to be able to entertain a thought without accepting it. -Aristotle
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MikeyJevs
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« Reply #9 on: Saturday April 09, 2005, 11:36:26 AM » |
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Hi Welcome to Skincell!
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slingshot
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« Reply #10 on: Sunday April 10, 2005, 05:33:27 AM » |
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hello welcome to the forum  |
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Val
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Mmmmm ! The Weird One I am !
Skin Condition: PPP
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« Reply #11 on: Monday April 11, 2005, 11:50:02 AM » |
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Carlysle, Welcome to our SkinCell cyber family. Hope you find the info you're looking for.  Val  |
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