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Author Topic: Schamberg's?  (Read 60896 times)
blondie85
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« Reply #160 on: Friday May 29, 2009, 07:39:40 PM »

My first patch of schambergs started about 2 years ago on my shin. since then i developed many red circular pinprick patches on my legs and thighs, some of which got bigger and bigger.

Same as you all i went to GP..no cure...referred to hospital...no cure... and just as i was abpout to firk out for a private consultation i decided to try something called ANEW LASER FOR LEGS by Avon. i didn't hld out much hope and thought i was doomed to support hosiery (not a good look for a 24 year old female in summer). I used the cream for 4 days and now all of my patches have faded to the colour of my skin!! i recommend this to anyone, i didnt change my diet, take vitamins or medication, just thought i'd give this cream meant for thread veins a go. it's taken the redness out entirely. i'm amazed, i've cured my Schambergs for £10.

please try this if you can get hold of it, i'll happily get my legs out this summer, its almost unoticeable, amazing   Grin Grin
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chefgirl
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« Reply #161 on: Tuesday June 16, 2009, 01:22:53 PM »

Which Avon Anew product was it exactly? There are 14 different Anew products. I'm very interested in trying it out.
Thanks
Chefgirl
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wanwilson
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« Reply #162 on: Friday July 03, 2009, 11:02:39 PM »

July 3, 2009.  I have had Schamberg's for 9 years.  I am now 39 years old - female.  It is the kind that can go away (other than the staining) and will break out if I stand for long periods or if I drink - much worse if I do both.  I try to enjoy the casual drink with my legs up which can be hard to do if you are down town with the girls Smiley  Anyway, it is a huge nuisance for me.  I've been on vacation in Mexico and try not to drink.  Very hard to do.
I've been to several dermatologists and they say "don't drink".  I also get it if I am on my feet for any length of time.  The capillaries leak which puts pressure on the muscles causing my legs to ache.  The spots are mostly on my lower legs and more prominant around the ankle area.  I wear support stockings and they help but the blood does pool down my ankles anyway.

I've read a lot and tried a lot - with no success.  Does anyone have any recommendations?

Cheers,
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Cristina messina
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Skin Condition:
Schamberg's - Purpura - Capilarities



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« Reply #163 on: Friday November 13, 2009, 12:56:51 PM »

Hi  all,

I have not posted anything for the last 3 years. I really thought that I was cured forever but it seems that is something that does come back.
I had it fro 3 years between 2003 and 2006 and it was pretty bad all my legs and arms were covered really like nothing I have seems before in any pictures.
The thing is that at the time I used light therapy (tanning beds) which did not worked as well as proper natural light from the SUN, Vita-K cream and obviously the SUN which I think it really helped.  Now there are back I have had it for a month now. I ran to the tanning shop and put Vita-K on it but is not working as fast as it did before it could be because my cream is quite old,  I had them since 2006.
I have been reading the forum and I tried to work out what s it that produces Schambers on me.  I have read that the birth control Pill has had some effect on people and I also thought that is what started it on me in 2003 but I have not taken the pill or any other hormone for 6 years so in my case I do not think it was the pill I can discard that on my case. So the other 3 things that I could thin k of  that were happening 6 years ago and now are:

1.   I had root canal treatment 6 years ago and about 2 months ago just before I had any bruises I went to the dentist because I broke a molar opening a nail varnish (I know really stupid) and the dentist put all sort of chemicals on my tooth.

2.      Also I took some pain killers, I have kept away from aspirin or paracetamol for 6 years and I avoided at all cost pain killers only in extreme cases like when I had kidney stones and doctor gave me some Tramadol  and it did not cause anything at all. Anyway I broke my tooth and was quite desperate so I took some Ibuprofen Plus for a few days…. So not sure what produce it again the dentist or the Ibuprofen

3.    The other thing that I was also happening at the time when I first had, was that I was extremely depress and stress at the time and now I am also going through a rough time…

So I guess it could be the dentist, the Ibuprofen or emotionally thoughts on this?

I think I will get some new vita-k cream the one I am using is 3 years old and keep going to the Tanning shop unfortunately thought I live in London and there will be not sun until April next year.

Any thought will be appreciated. Sad

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lynnea
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« Reply #164 on: Friday November 20, 2009, 02:08:08 AM »

Hello, I am a 16 year old teenage girl, I sure care a lot about how I look, to my wonderful surprise on June 25th 2009, I was diagnosed with Schamberg's Disease, it was probably the hardest thing for me to hear when my dermatologist told me there was no cure. I have had this since January 2009. Before I went to a dermatologist my lower legs were just covered, it was horrible. I showed him my legs and asked him if it was going to get any worse, he looked at them and said, " Doesn't look like it can " , to my surprise after a straight week of complete depression, my lower legs, upper legs, back and butt, had Schambergs. All it did was seem to get worse, I was like going crazy, it was summer, and I couldn't wear shorts. After about a month or two, I started to cope, at the end of summer I was dealing with it, and everything (besides my skin) was close to perfect. In September 09 I noticed it was fading, everything was working out for me, It was completely gone off my back, butt and upper legs, still on my lower legs, but it was fading! I was ecstatic. All of October I was schambergs free.Smiley Than at the end of October, things started getting bad, and nothing seemed to be going right, I was failing most of my classes, I got played by some guy, and my sister moved out. I was very unhappy, it's november now, and I am completely covered in Schambergs, upper and lower legs, butt, back, stomache, my arms are covered, even my shoulders have Schambergs, oh and, I GOT IT ON MY FACE. I have never even read about someone getting it on their face, But guess what, It happens... and it spreads quickly on your face. I am also crazy itchy, this is such an unfair disease and I never thought something like this would happen to me, but i guess it. I went to the doctor today to talk to him about it on my face, because I cant even cover it up with makeup. He gave me a prescription for prednisone. Apparently it's not good for you at all though, But i'm going to give it a try for 7 days, wish me luck, because i sure as hell don't want this to get worse on my face.
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roops22
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« Reply #165 on: Saturday December 19, 2009, 04:47:53 PM »

im pleased to say that mine are fading nicely and almost gone!  Grin
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dead_bird19
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schamberg's



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« Reply #166 on: Saturday December 26, 2009, 12:26:51 AM »

Hi everyone!

Haven't posted for a really long time. I just thought I should post some of my research I've been doing recently (last 4 months i have been obsessed with getting rid of this disease).

I haven't got any answers...just loads of questions and vague connections but I need to share because you never know if you're onto something.

Firstly I went to see a naturopath a little over a month ago.  She put me on a specific diet in which I can't eat sugar, wheat or drink coffee.  I'm not entirely sure if it's working...it's Summer at the moment and I did have my usual Summer flair up a few weeks ago but once I got over the disapointment I realised that the spots were only very tiny (only slightly bigger then a freckle)...an improvement to the usual size...but not enough.  I want to get rid of it entirely!

So while I'm still committed to my diet I've been looking into other things as well.  By other things I mean soap, dishwashing liquid, washing powder, shampoo, moisturiser, sunscreen, my clothes...almost anything that has contact with my skin.  I've found some interesting things. i strongly recommend that you check this site out

http://www.mionegroup.com/en/toxic;jsessionid=E40D141B37251CBFDFE3797D6B20A0E7

everything that is being used in your products is dangerous!!! I've thrown all my products away and am using alternatives from the health store.  It's hard but I think it's worth a shot.

Something that I thought was interesting was another type of dermititis that it's similar to this one but I think more severe which is caused from fragance.  "Fragrance" is in everything as well...even really mild soaps.  The website said that the fragrance reacts from the sun which cause discolour in the skin!  Could it be that this is the same?  Some time of chemical we use on our skin reacts to heat???  Check it out

http://www.carefair.com/Skincare/Disorders/Berloque_Dermatitis_99.html

I don't know guys Sad  I'm trying so hard to come up with a reason here! Doctors are no help so I'm playing my own and I hate to have to do that...sometimes I feel like I really am looking for the needle in a haystack.  I'll post if I see any improvement with the not using products.  If anyone's interested in the diet the naturopath gave me I can send it to you!  No gaurantees but i think most of us here are willing to try anything.  I'm pretty sure I'll be going to clinic to test for allergies in a few weeks...see what they find...if anything.  Good luck everyone!!!
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chefgirl
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« Reply #167 on: Thursday March 04, 2010, 09:09:45 PM »

I've had Schamberg's now for about 2 years. Got it shortly after a cold and my fathers passing from Cancer. Been reading alot and have decided to try the Vitamin C with Rutin 500 mg each twice a day. Has anyone tried this and has it worked for you? Wondering if there is anyone out there that have had this go away (if so how did you do it). Haven't seen recent posts so I was wondering if its gone or if hope has been lost.
Chefgirl
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helene01
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« Reply #168 on: Sunday March 07, 2010, 07:50:13 AM »

The only thing i suggest which cleared up my schambergs for two years (it's coming back Sad booo) is vitamin k supplements, foods with vitamin k in it i.e spinach, strawberries, lettuce etc, and vitamin c supplements with bioflavanoids. To help fade the spots quicker i suggest the tanning beds or natural sun light...

I think it is linked to fake tan lotion in some cases, as that is what triggered mine off 3 years ago....Johnson's moisturiser one. Secondly viruses set it off as schambergs is linked to a low immune system etc, i just had Glandular Fever so mine will definitely be back now Cry. Thirdly getting depressed about it in my opinion only prolongs it....there is a cure for everything and thankfully someone found a cure, ok it doesn't last forever but it clears it up for a while....we all need to think along the lines of 'i can beat this, i WILL beat this', seriously i found that when i stopped worrying about it there was a dramatic decrease in spots.


For those that suffer really badly, i suggest going on a diet of vitamin k foods for a week, you will seriously notice a difference.... Smiley
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