Hello, I am 21 years old, male, from the Philippines. I would like to share my story again for those who are not able to back read from previous messages. I had PLC since 7 years old. red rashes which are not itchy appeared throughout my body (except for the face) and it was initially associated with a very high fever. Since i am still a child that time, i do not care about these patches on my skin but still it affected my life as a child since i was embarrassed to play outdoors and with games which require to play with shorts or with tshirt off. Anyway, I am now 21 years old and I am glad that I am now free from this disease, although sometimes one or two fresh and light red patches appear, i consider this to be a great blessing to be free from many marks and patches all throughout the body. I was diagnosed with this disease after 7 years , when i am 14 years old but i consider myself to be somehow free from this disease when i am 19 years old. Imagine the 12 years of suffering.
Enough for a long intro, here are some things that i have encountered throughout my experiences with this disease.
What I have done:
1) Took controlled costeroid medication (having higher doses then getting lower doses after some time) - This does not help
2) Took UVB phototherapy for around 50 sessions. (This do help but temporarily, it helps to make lesions to blacken and flatten but still, red marks still appear)
3) Applying triamcinolone cream. (This does not help also)
As a patient who experienced this for a long time and is somehow healed from this disease. These are the following things I would suggest to do and things i notice and observe about the disease.
1) This is an immune-system related disease. Observe whenever your stressed or have some kind of sickness even though it is just common cold, red patches all throughout your body is angry.
2) Staying late at night may cause your immune system to be weaker, hence, more onset of patches/lesions on skin.
3) The most important thing about this disease is make your IMMUNE SYSTEM STRONGER! Drink colostrum milk, drink vitamins or in my case I only took herbal medicine such as malunggay life oil (available in the philippines) which i really testify to be effective on making your immune system stronger. Don't rely much on antibiotics, etc which could give you temporary relief but does not attack the main problem of weak IMMUNE SYSTEM.
4)Pray! ask our God for us to be healed. This sickness really made my faith strong.
I hope that i could be of any help. I am busy lately due to board examination but i would be glad to answer your questions after these busy days. Thanks and God bless to all of us. May all of us be healed from this disease.
Also, i would suggest that may this disease not ruin your life in any case especially because of the effects of this disease on our skin ( bad appearance). I hope that if you have a child who experiences this disease, please make his/her immune system stronger as early as you can. Now, onsets of red marks on my body just disappeared or become minimized to the point of having only one or two if i am really stressed but still, the flattened and black patches is still throughout my body and i don't think this would disappear with only a year or two.
Anyway, I really don't know how this disease started to me but I agree with the post before me that the cause is environmental. I remember that a month or few months before i got this disease, a fesces-smelling thing was brushed to my arms when i am playing. This is just a suspicion, there is no medical basis about this but still i hope that this could give anyone who reads this an idea that maybe a bacteria or somewhat undesirable came in contact with us.